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by Mercy110
Fri Mar 09, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, recently diagnosed, just had surgery but more to come...
Replies: 13
Views: 2725

Re: New here, recently diagnosed, just had surgery but more to come...

So sorry to hear your story. My mum is a current stage4 patient with lung mets. We do remember how hard and bitter for us to swallow the fact. I hope folfox is helping you so that the spots in your liver shrink. There are lots of members here had liver mets but able to have surgery finally. Hope you...
by Mercy110
Fri Mar 09, 2018 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice For Next Steps
Replies: 2
Views: 1072

Re: Advice For Next Steps

So sorry to hear your news, but it seems that your chemo is doing the right job. I guess it would be best to keep going with the chemo plan and hope everything will keep on shrinking and you can try surgery eventually. Until then just stay with chemo. You can change the drugs if you have serious sid...
by Mercy110
Fri Mar 09, 2018 12:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious and concerned
Replies: 8
Views: 1875

Re: Curious and concerned

My mum has tried xeloda pills but there is no use. I guess it's usefulness depends. We do have another chemo plan called xelox but I forgot if there is oxalipatin. The doc used to tell us that injection of drugs is more direct than pills so I guess you can ask for nore options. As for reourrence, I ...
by Mercy110
Thu Mar 01, 2018 8:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung and needle biopsy
Replies: 17
Views: 4547

Re: Lung and needle biopsy

My mum didn't as her CEA has not go down after surgery and 2 rounds of xeloda. Onco assume there are mets in her lungs as nodules grew.
Hope this help.
by Mercy110
Tue Feb 27, 2018 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2148

Re: CEA rising after break

...suspect the combination of drugs in HK is a bit different compare to US, but we will see how it goes. Some drug regimens are pretty standard, the different combinations are what you choose instead of merely accept. You also have the tegafur drug, TS-1, and maybe UFT (tegafur uracil) that aren't ...
by Mercy110
Tue Feb 27, 2018 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2148

Re: CEA rising after break

Given the economics, frequent longevity, and improved QOL, I would look into ADAPT style protocols for mCRC - capecitabine (or UFT-LV) + celecoxib; with the easy adjuncts like PSK, EGCG, quercetin and curcumin. There are lots of others that can be additive and that we have used with a low total cos...
by Mercy110
Tue Feb 27, 2018 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2148

Re: CEA rising after break

This was always the hardest part for me, the unknown what does every little test mean. My mom's CEA would fluctuate up and down a little and when there was no real change, but the times there were growth or spreading we saw large jumps in her numbers. Everybody is different in how much CEA is even ...
by Mercy110
Mon Feb 26, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA rising after break
Replies: 8
Views: 2148

CEA rising after break

Hello. My mum has been treating with Folfox with Avastin since Aug last year as there are multiple nodules in her lungs after surgery. Her CEA has been steady since the use of Folfox and Avastin though the nodules do not go away. Last week we took her to a trip to Japan (we live in HK). To prepare t...
by Mercy110
Fri Feb 09, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????
Replies: 2
Views: 1072

Re: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????

My mum has been using Folfox and Avastin after discovering her mets in lungs. She is doing well so far, and the 8th round has been finished. Her did developed some neuropathy side effects like numbness of her arms but the effects are reversible. Side effects are obvious in the first week after chemo...
by Mercy110
Wed Jan 10, 2018 9:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Break
Replies: 8
Views: 1611

Chemo Break

HI. My mum is having chemo every 2 weeks started from August-2017 as her CEA did not go down after surgery. She is now undergoing Folfox with Avastin as her lung mets are inoperable. So far the result seems ok coz her CEA dropped back to normal. We manage to travel with her in mid-Feb. The problem i...
by Mercy110
Tue Jan 09, 2018 2:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 25
Views: 10014

Re: Mother stage IV, terrified

I am so sorry to hear the news about your mum. Look at my signature and you will find me having similar experience with you except my mum's met seems more controllable. She is also doing Folfox with Avastin and told to be inoperable. My nurse friend did what your first onco did but I see my mum is d...
by Mercy110
Mon Dec 04, 2017 4:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling hopeless. Para aortic nodes-inoperable?
Replies: 16
Views: 3237

Re: Feeling hopeless. Para aortic nodes-inoperable?

I am sorry to hear your news. My mum has nodules in her lungs and doc said inoperable. I do remember how disappointed we are and we did search for second opinions which told us similar results. Now she is in Folfox with Avastin. Luckily she is doing fine temporarily. Although her lung nodules did no...
by Mercy110
Wed Nov 29, 2017 9:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Lung Nodule Experiences
Replies: 35
Views: 17261

Re: All Lung Nodule Experiences

My mum also got multiple lung nodules from previous scan. She has never smoke before. These nodules were first appear in Pet Scan and the report mentioned wait and see strategy. We never thought that she is actually in stage4 and assumed those are just some minor spots. Then it turns out those are M...
by Mercy110
Thu Nov 23, 2017 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NRAS Q61R - what does that mean?
Replies: 3
Views: 784

NRAS Q61R - what does that mean?

Lots of useful information I have encounter in the forum. I know that my mum carries NRAS mutant since Aug as she became a stage4 patient after the surgery and a few rounds of xeloda. Then I have come to notice that Q61R does mean something other than EGFR antibodies are not sensitive for her so she...
by Mercy110
Wed Nov 22, 2017 4:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update: It's just a matter of time
Replies: 15
Views: 3890

Re: Update: It's just a matter of time

I am so sorry about your news. It is rely difficult to see someone you love suffering. Reality is too bitter to swallow.
Prayers to your family, especially to your wife, to stay strong. God Bless.

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