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by susie0915
Tue Jul 24, 2018 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A month after takedown/ reversal-a few questions
Replies: 5
Views: 248

Re: A month after takedown/ reversal-a few questions

I also began daily enemas about 15 months after reversal. I didn't have loose stools or accidents, but did have many small movements per day. I tried fiber, Imodium, lomotil, cholestyramine, fodmap diet, and also did pelvic floor physical therapy. The daily enemas have given me my life back. It take...
by susie0915
Mon Jul 23, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to board: Rectal Cancer 2a
Replies: 7
Views: 300

Re: New to board: Rectal Cancer 2a

I was stage 2A. Did chemo/radiation, surgery, and xelox again. When I finished chemo/radiation surgeon did sigmoidoscopy and said all that's left is scar tissue. The pet scan showed no sign of cancer, and he said after surgery I may not need chemo. I was thrilled. When the pathology from surgery cam...
by susie0915
Mon Jul 23, 2018 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 15 Months Post LAR - fluid and 2 lung nodules
Replies: 5
Views: 302

Re: 15 Months Post LAR - fluid and 2 lung nodules

I also had a 4mm lung nodule show up one year after treatment. I had repeat scans at 3 months, 6 months after that, at one year after the first scan. All scans showed no change in the nodule. Although, we will continue to watch the radiologist attributed the nodule to fibrosis or inflammation in the...
by susie0915
Mon Jul 16, 2018 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 7
Views: 395

Re: Daily Enema Therapy for LARS

Rectal irrigation(enemas) is becoming more accepted in the medical field as a treatment for LARS. When I told my oncologist I was doing them she thought it was a great solution and a safe one as well. Our digestive system is never going to be the same. Once losing most of your rectum, the colon can ...
by susie0915
Wed Jul 11, 2018 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 7
Views: 395

Re: Daily Enema Therapy for LARS

I have been doing daily enemas for about 17 months.It has changed my life. I was about 15 months out from reversal. I went to the bowel control clinic at the University of Michigan. The GI there did a couple tests (defocagraphy, anorectal manometry), referred me to a dietician and pelvic floor physi...
by susie0915
Tue Jul 10, 2018 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 17
Views: 733

Re: what happens after chemo?

After I finished chemo, my oncologist scheduled a ct scan one month later and saw her also where she also ordered CEA test. I think the first 2 years I saw my surgeon and oncologist every 3 months, then after 2 years I am now on a 6 month schedule. I think after my scan in November if all is well wi...
by susie0915
Mon Jul 09, 2018 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Looking Pretty Good
Replies: 12
Views: 569

Re: All Looking Pretty Good

After my chemo/radiation my surgeon did a sigmoidoscopy and said all that was left was scar tissue. Also a pet scan showed no evidence of disease especially in the distal rectal area. After surgery the pathology report did show minimal residual cancer cells, with 0/24 lymph nodes and clear margins. ...
by susie0915
Sun Jul 08, 2018 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 172
Views: 19256

Re: Mop up chemo experiences

Congrats on completion! Such a great feeling when you're done.
by susie0915
Sun Jul 08, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lung nodules
Replies: 6
Views: 474

Re: lung nodules

I had my first CEA drawn after I finished chemo/radiation before surgery. So I also don't really know if it is a marker for me as after chemo/radiation my surgeon did a sigmoidoscopy and said all that was left was scar tissue. I did have surgery and pathology showed minimal residual cancer cells, 0/...
by susie0915
Fri Jun 29, 2018 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1155
Views: 98335

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I always eat my dinner early. I find that even after reversal it helps with sleep. Not needing to get up during the night to go to the bathroom.
by susie0915
Wed Jun 27, 2018 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Empyema
Replies: 4
Views: 363

Re: Empyema

I am so sorry. You are such a wonderful caregiver to your wife. I will pray that she is comfortable and this infection does not cause her more pain.
by susie0915
Tue Jun 26, 2018 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VATS lung resection
Replies: 16
Views: 897

Re: VATS lung resection

I'm glad everything went well. Praying you'll heal quickly and will be at the end of your treatment. My guess is that you will do great as you have recovered quickly and done very well throughout your treatment.
by susie0915
Fri Jun 22, 2018 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 765

Re: Areas of high density in lungs...infection or cancer?

My first cat scan after finished treatment showed scarring and inflammation of the lungs. My oncologist said it could be caused by chemotherapy or may be something else. I was referred to a pulmonologist. After doing a repeat scan with no change my pulmonologist started testing me for an autoimmune ...
by susie0915
Fri Jun 22, 2018 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1155
Views: 98335

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yep the barium enema is fun. I had it in the hospital 4 weeks after by resection when I had my bowel blockage. My surgeon told me if he had to do surgery to remove scar tissue causing the blockage he would reverse my ileo right there. Since the blockage didn't resolve within a week of walking with a...

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