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by susie0915
Tue Nov 13, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1380
Views: 258246

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I just saw my oncologist for my 6 month check. She told me she will order a ct scan for April, one year after the last. She had been doing them every 6 months but said she thinks yearly is fine. I know there is a balance of radiation exposure and how often to monitor. I guess less to worry about for...
by susie0915
Sun Nov 11, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 179
Views: 43404

Re: Surviving radiation for rectal cancer

Hi Annie! W&W approach is changing. Used to be only chemo/rad, risk was high, one doesn’t know if any microcell is left in the body, or not. That extra chemo is to wipe out those questionable microcells. California was most advaneced, they have been doing this kind of approach for more than 10 ...
by susie0915
Fri Nov 09, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To share my “ghost” story
Replies: 9
Views: 839

Re: To share my “ghost” story

Those six months scans and check ups are bitter sweet. You want to go and confirm everything is fine and you are still NED, but at the same time you are anxious because it's time to go and get checked to see if you are still NED. I go next week to see oncologist. I am 3 years from resection when I w...
by susie0915
Thu Nov 08, 2018 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1242

Re: Did Daily Enema Users consult Doctors?

The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need. Did your doc ever mention any long term effects of immodium? My surgeon said it can mess with the natural process of peristalsis and warned against using it. No...
by susie0915
Wed Nov 07, 2018 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1242

Re: Did Daily Enema Users consult Doctors?

I was given cholestyramine during chemotherapy for diarrhea. It worked pretty well. Since doing enemas I don't need anymore. The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need.
by susie0915
Fri Nov 02, 2018 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1242

Re: Did Daily Enema Users consult Doctors?

. . . my surgeon who said "oh, you'll just make a couple extra trips to the bathroom...no biggie" , , , ! WOW :shock: just wow :evil: My surgeon was a bit more honest. 2/3 of my rectal muscles were destroyed due to radiation damage. I was already doing 20+ visits to the bathroom on a dail...
by susie0915
Thu Nov 01, 2018 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1242

Re: Did Daily Enema Users consult Doctors?

I asked my Surgeon and she said no. But I'm only three months out. The reversal has been difficult. It is improving very slowly. It does take time. I tried many different things. Three months may be too soon. I just know some doctors recommend them, others don't seem to think it's a problem, and so...
by susie0915
Thu Nov 01, 2018 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1242

Re: Did Daily Enema Users consult Doctors?

I started doing enemas 15 months after reversal. I researched doctors dealing with LARS since all that I tried did not help. I found the bowel control clinic at the University of Michigan. I called and spoke with the nurse and she said I was a perfect candidate to become a patient. The GI I saw orde...
by susie0915
Thu Nov 01, 2018 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does the successful result of hydrocortisone suppositories rule out cancer?
Replies: 6
Views: 511

Re: Does the successful result of hydrocortisone suppositories rule out cancer?

I had symptoms of red streaks of blood on stool periodically. I was sure it was hemorrhoids as I had a colonoscopy 5 years prior and it was clear, just internal hemorrhoids. However, during a regular visit with GP he gave me a stool test sample to take home. I used a sample when I did not see blood ...
by susie0915
Mon Oct 29, 2018 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Lesion Identified, Four Years After Original Diagnosis
Replies: 8
Views: 1180

Re: Liver Lesion Identified, Four Years After Original Diagnosis

I had a 4mm nodule show up in my ct scan 5/2017. Since it was too small to biopsy or for a pet scan to pick up, I have had repeat scans at 3 months, 6 months after that, and again 6 months later. My nodule has not changed. My oncologist explained that growth is a sign of a cancer and lesions can gro...
by susie0915
Sat Oct 27, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 2 Long Term RECTAL Cancer Survivors
Replies: 5
Views: 855

Re: Any Stage 2 Long Term RECTAL Cancer Survivors

I am stage 2a rectal cancer. I am considered 3 years NED. I was considered NED after my LAR in Sept. 2015. I did do chemo after but was considered cancer free before and chemo was clean up. I did adjuvant therapy. After chemo/radiation I had a sigmoid and all that was left was scar tissue. A pet sca...
by susie0915
Sat Oct 27, 2018 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4912

Re: Update from Rikimaroo

I used questran during chemo for diarrhea. My ileo was reversed 5 weeks after surgery due to a bowel blockage and surgery to remove scar tissue. So I didn't have it for chemo. The questran worked well for me. I have stopped all meds as I currently use daily enemas. I takes me about 30 minutes and la...
by susie0915
Sat Oct 27, 2018 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox - How many Oxaliplatin rounds?
Replies: 10
Views: 776

Re: Folfox - How many Oxaliplatin rounds?

My oncologist also scheduled 7 rounds of Xelox after surgery in order to have a total of 12 when counting preadjuvant therapy. I ended up doing 6 because my son was getting married out of town and I wanted a month to recuperate before the wedding. I told her I would do the 7th round if she felt it w...
by susie0915
Sat Oct 27, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 2188

Re: Major cancer centers/insurance

Insurance is the reason my husband will not be retiring early. Unless you are a public school teacher or work for one of the auto companies and are grandfathered, no insurance is provided to retirees unless you qualify for medicare. We could retire easily but the insurance is what holds us back. Hop...
by susie0915
Mon Oct 15, 2018 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 23
Views: 3204

Re: Stage 3 to 4

A 4mm nodule was seen on my scan in May, 2017. I have had 3 more scans since then and there has been no change. The last scan the radiologist attributed it to scarring and inflammation which I do have in may lungs. Ev en though my oncologist never thought it was cancer it will be monitored. She told...

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