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by veckon
Wed Aug 23, 2017 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung mets
Replies: 8
Views: 1213

Re: Lung mets

Hi, I am new to this group but I've been reading the threads since last year when my Mom was diagnosed with Stage 1 rectal cancer T2N0M0. It really helped me a lot and gave me relief and hope everytime I'm reading the threads. I would just like to share my Mom's story and ask for your advice... Whe...
by veckon
Wed Aug 23, 2017 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needing some feedback
Replies: 6
Views: 1231

Re: Needing some feedback

First of all, I want to commend you for seeking treatment and getting that colonoscopy booked. Have you been tested for Lynch Syndrome? How many polyps were found when you were young, and if you can't remember, perhaps your parents can? If they were numerous but very small, that may indicate another...
by veckon
Wed Aug 23, 2017 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been bleeding from colon for 10 years..
Replies: 7
Views: 1293

Re: Been bleeding from colon for 10 years..

Hi I've been bleeding off and on from my colon for 10 years. I'm 30 and it started when I began to diet and try to lose weight. I was taking many kinds of laxatives at the time too. Through my 20s I struggled with weight and used laxatives and bled much from my colon. It wasn't until recent that I ...
by veckon
Mon Aug 21, 2017 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 903
Views: 77119

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Just placed the second order for Xeloda. The original order was for 25 days when it should have been for 28 so I spoke to the oncology nurse and she fixed it. My insurance company will only pay for four weeks of these kinds of drugs and then you have to renew the prescription. I took care of that t...
by veckon
Sun Aug 20, 2017 6:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help- signet ring cell & two primary cancers! Rare & scared
Replies: 20
Views: 3700

Re: Please help- signet ring cell & two primary cancers! Rare & scared

Hello Sarah, Thanks for sharing your experiences. It seems by now you may have a newborn baby girl to look after. I do hope your husband is tolerating things well. Your thread has helped me. My husband too has been diagnosed with Signet Ring Cell colon cancer. He also has Lynch Syndrome which is a ...
by veckon
Sun Aug 20, 2017 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu pump disconnect question
Replies: 13
Views: 1408

Re: 5-fu pump disconnect question

I was in a trial at MDA so I had to see my onc every two weeks. It was part of the trial protocol but mostly a waste of time. He told me he didn't need to see me that often. We would spend a few minutes chatting, mostly about non-cancer stuff. I had two infusions at the Katy satellite office, which...
by veckon
Sun Aug 20, 2017 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-fu pump disconnect question
Replies: 13
Views: 1408

Re: 5-fu pump disconnect question

My wife always disconnected me at home. At the first chemo infusion I got last December a nurse gave her a tutorial about how to flush the lines and disconnect, and also a “disconnect kit” with everything you need. No need to come in and zero pressure from doctor to do so.
by veckon
Fri Aug 18, 2017 4:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 4 / just checking in 11 years later/cancer free
Replies: 10
Views: 1453

Re: STAGE 4 / just checking in 11 years later/cancer free

scottg wrote:stage 4 2 hipecs/ 2 years chemo,3 big surgeries/cancer free diag 2006,,,it can be beaten!!!!!!!!!!!!!!!!!!!!!!!!!


How did you convince them to give you HIPEC for CRC? I am having trouble with this.
by veckon
Thu Aug 17, 2017 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for excellent colorectal surgeon for minimally invasive surgery
Replies: 14
Views: 2217

Re: Looking for excellent colorectal surgeon for minimally invasive surgery

Contact Memorial Sloan Kettering. Dr. Philip B. Paty is an expert at this. But there are also many more there who are as well.
by veckon
Thu Aug 17, 2017 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo kicked my ass yesterday
Replies: 7
Views: 984

Re: Chemo kicked my ass yesterday

So sorry you had to go through this, it is frightening as heck. My thoughts are with you.
by veckon
Thu Aug 17, 2017 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 903
Views: 77119

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I've given up on the idea of running while I have the radiation issues unless they get a lot better. Walking, yes. Running would create too much friction. Sounds like I'm going to be doing a lot of yoga for the next couple of weeks. I am really sorry to hear this mike, I know how much you loved run...
by veckon
Wed Aug 16, 2017 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T I Was Refused Employment Due To My Cancer.
Replies: 6
Views: 1324

Re: O/T I Was Refused Employment Due To My Cancer.

I went in for a job interview yesterday, I told ther interviewer that I could only work a certain amount of hours because I am disabled. He asked me how I was disabled I told him that I have cancer. He looked at me and said "Wow, I don't know if I want you around the meat with cancer." He...
by veckon
Wed Aug 16, 2017 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to deal with Doctors reluctance to use surgery as part of treatment
Replies: 11
Views: 1489

Re: How to deal with Doctors reluctance to use surgery as part of treatm

I am currently considered inoperable as well, so I understand your frustration. However my liver surgeon at Sloan Kettering felt that he could fully resect the liver and still leave enough to recover and my initial surgical consults were not optimistic at all. Thanks to MSK’s willingness to give it...
by veckon
Wed Aug 16, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to deal with Doctors reluctance to use surgery as part of treatment
Replies: 11
Views: 1489

Re: How to deal with Doctors reluctance to use surgery as part of treatm

I have now received a second opinion and again been told surgery is not an option for me. They can't remove the liver tumors so they won't even think about removing the colon tumor. I was told there is no point as if all the cancer can't be removed it would just come back. I can't figure out why th...
by veckon
Wed Aug 16, 2017 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Ports
Replies: 5
Views: 739

Re: Chemo Ports

I love my port. Makes blood work and then treatment so much easier and less uncomfortable for long periods. Not to mention, Oxaliplatin can be hard on veins. The only time I had an issue getting blood return in the port was oddly immediately before attempted liver surgery in March. So they had me ge...

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