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by veckon
Mon Sep 25, 2017 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda? What else is new?
Replies: 43
Views: 6467

Re: Keytruda? What else is new?

It's been awhile since I've been on... what's up with Keytruda? Anything else i should know about? Quick overview: Hubby originally stage 3.. then became stage 4 with liver mets and others showing in abdomen and around that area. 6 months of Folfiri with Avastin shrunk EVERYTHING (we also did Iscad...
by veckon
Tue Sep 19, 2017 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 year old female, waiting on pathology
Replies: 6
Views: 982

Re: 23 year old female, waiting on pathology

Sorry to hear this. I recommend getting comprehensive set of germline mutations tested for, like Lynch syndrome.
by veckon
Sun Sep 17, 2017 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Larry has an eviction date!!!
Replies: 42
Views: 3887

Re: Larry has an eviction date!!!

This news made my day. Good luck. :D
by veckon
Wed Sep 13, 2017 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What was everyone's symptoms of colon cancer
Replies: 20
Views: 4209

Re: What was everyone's symptoms of colon cancer

My husband had none. He had a stomach ache on a Wednesday. Worked the rest of the week, finally the following Sunday night he let me take him to the ER. Stage IV, innumerable and inoperable mets to liver. He was 46 at diagnosis. Sooo frustrating to have no symptoms and to be too young to even think...
by veckon
Wed Sep 13, 2017 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: is it possible having a cancer and not losing weight?
Replies: 11
Views: 3052

Re: is it possible having a cancer and not losing weight?

Thanks for the response. I was assuming i dont have it cuz iwasnt losing weight but i was having some symptoms for the past 2 years bleeding on and off expecting it was only hemorhoids but few months the symptoms got worse now im having stomach pain on the right side and under the rib so i got a li...
by veckon
Wed Sep 13, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24yo female, 5-6 precancerous polyps
Replies: 8
Views: 2030

Re: 24yo female, 5-6 precancerous polyps

Definitely get a comprehensive set of germline genetic tests. Contact a genetic counselor at Memorial Sloan Kettering.
by veckon
Wed Sep 13, 2017 6:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 447
Views: 42322

Re: NEW-Need some positivity here

Also, don’t ask if you’re going to die. Even if your cancer is advanced like mine they have no idea beyond “probably”. “Probably” may be true statistically as a population but we are individuals. So get your tumor staged, treatment protocol decided on, and work at it until you’re cured or can live y...
by veckon
Wed Sep 13, 2017 5:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 447
Views: 42322

Re: NEW-Need some positivity here.

I feel slightly better. This surgeon at Columbia Presreally knew his stuff. He was factual and direct and when I asked him if I was going to die he replied, not from this Ct scan. The Ct scan showed that it isn't in any lymph nodes, not in the liver, kidneys, pancreas, etc. they did not get to see ...
by veckon
Tue Sep 12, 2017 4:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing
Replies: 9
Views: 1881

Re: Genetic Testing

Lynch is not just about lifetime colorectal risks. That is just the most well known and largest risk. There are a litany or other cancers you have to watch out for. There are also other germline genetic mutations clinically relevant for other cancers.
by veckon
Tue Sep 12, 2017 3:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What was everyone's symptoms of colon cancer
Replies: 20
Views: 4209

Re: What was everyone's symptoms of colon cancer

Rectal bleeding. Some discomfort sitting.
by veckon
Mon Sep 11, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 447
Views: 42322

Re: NEW-Need some positivity here.

Where do you live? If around New York, memorial Sloan Kettering is good. They accept most insurance. If not, call anyway and see if they can figure out how to help you. This step may take patience.
by veckon
Mon Sep 11, 2017 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: is it possible having a cancer and not losing weight?
Replies: 11
Views: 3052

Re: is it possible having a cancer and not losing weight?

Yeah. I didn’t lose weight until chemotherapy destroyed my appetite.
by veckon
Mon Sep 11, 2017 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Polyps at (relatively) young age...wonderibg how to advocate
Replies: 11
Views: 2610

Re: Polyps at (relatively) young age...wonderibg how to advocate

My first genetic testing was through myriad, which found the two clinically important mutations I had. MSK also did this but the results were identical.
by veckon
Mon Sep 11, 2017 7:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 3486

Re: DK37 Experimental Immunotherapy Treatment Update

Ah I understand. I am sensitive to misinformation going around the internet with our disease because most people will try just about anything out of desperation. So a counterbalance against that impulse is important if you want to be objective about treatment. That being said, I read some more of yo...
by veckon
Mon Sep 11, 2017 5:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 3486

Re: DK37 Experimental Immunotherapy Treatment Update

Why combine chemotherapy and immunotherapy? Aren’t most chemotherapies immunosuppressive?

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