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by NHMike
Fri Jun 29, 2018 12:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91368

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Sounds like you have a good roadmap now! :D It appears they are planning to use an iodine-based (rather than barium-sulfate) contrast for your leak test, probably something like Gastrografin. And I quite imagine your oncologist will recommend removing your port during the reversal surgery since you...
by NHMike
Thu Jun 28, 2018 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

I did not smell anything related to the chemo in sweat but I found it odd that I didn't have any mosquito bites last summer while on Xeloda and afterwards and got my first mosquito bite in about a year, last week after being done with my 8 rounds two weeks ago. So there may be something to it. The c...
by NHMike
Thu Jun 28, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

My oncologist added magnesium to the IV when I complained of cramping after an infusion and I took pills for it the following couple of days. You could increase your electrolyte intake a few days before the infusion so that they don't get depleted with the infusion. The electrolyte/cramping issue ha...
by NHMike
Thu Jun 28, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91368

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Something I've learned through a lot of walking. If you eat dinner and do a lot of walking (say 2-3 hours), a lot of the stuff that you ate will head into the bag over time meaning that you don't have to worry as much about the bag filling up overnight (gas and output). I've been waking up only once...
by NHMike
Thu Jun 28, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: VATS lung resection
Replies: 11
Views: 450

Re: VATS lung resection

Your progress has been amazing through two surgeries and very fast recoveries.

Are you NED now?
by NHMike
Thu Jun 28, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lung mets rectal cancer UK
Replies: 14
Views: 691

Re: Liver lung mets rectal cancer UK

CEA isn't necessarily reliable and there are lots of people that have had anxiety over CEA results. Mine was 2.7 at diagnosis, went down to 0.9 after surgery, and climbed to 2.8 after Adjuvant Chemo. So it's been all over the place. It makes for a lot of anxiety for the next lab test. I would defini...
by NHMike
Tue Jun 26, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91368

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had the appointment with the surgeon today and she laid out what most of the folks here already told me. She had either an intern or resident in there as well - he asked me questions before the doctor came in. I have the reversal the last Monday of July and the preop stuff the week before. They ar...
by NHMike
Tue Jun 26, 2018 5:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 2233

Re: The Miseries - But 'Hey I have it pretty good...'

APPOINTMENT WITH SURGEON - JUNE 26th Update A really nice guy even discussed the international conference he had just been to on colorectal cancer and latest techniques in my particular case. Great to know he is up to date. Sadly his examination (finger technique-lol- the tumour is against my anus ...
by NHMike
Mon Jun 25, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 5772

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

Today my oncologist office called to let me know they had phoned in an RX for numbing cream to put on my port one hour before my appointment, so glad they did this. I can't imagine the port being used this Friday as it is very sensitive to touch, the incision very raw looking, with plenty of bruisi...
by NHMike
Mon Jun 25, 2018 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 684

Re: Is the day that cheno treatment ...

Days 2 through 4 seemed to be the worst for me. I don’t remember ever feeling bad on a weekend (Monday was infusion and wed was disconnect). Take into consideration what days you will be working. My employer let me take off all of the infusion weeks, so I chose to do Monday as my infusion day. This...
by NHMike
Mon Jun 25, 2018 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD OIL
Replies: 5
Views: 348

Re: CBD OIL

It was heavily recommended by a few of the nurses - I'm just so old that there's a stigma in my mind attached to it. I did check out the dispensaries in my area and that's about it. I don't think that I'd have any problems getting a prescription but I'm through Adjuvant chemo and I can deal with the...
by NHMike
Mon Jun 25, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 16
Views: 797

Re: Hello from a new member

Hi Jannine Loosing weight was something I had to worry about too and my biggest way of keeping on top of the nausea was talking anti nausea tablets as soon as any symptoms started. I tried to keep my fluids up as much as I could and I also found that if I kept taking electrolyte supplements I was a...
by NHMike
Mon Jun 25, 2018 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 5772

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

I had the pulling sensation for about a week. It was a little reminder that it was there when I did some motion that it didn't like. It should fade with time. I'm glad that the procedure and aftermath were smooth.
by NHMike
Sun Jun 24, 2018 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1024
Views: 91368

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

1.5 weeks out from chemo and most of the tingles are gone. I still have them in my toes though. The fingers have some numbness but I can generally function with them. Hoping to get all of my feeling back there.
by NHMike
Sat Jun 23, 2018 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 35
Views: 2233

Re: The Miseries - But 'Hey I have it pretty good...'

You might want to put together a timeline for the surgery as there's a lot of prep stuff for surgery these days and it's nice to see everything on a calendar or timeline so that you can see if there are any issues which need to be resolved.

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