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by NHMike
Fri Oct 11, 2019 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 283712

Re: For Stage III's: NED for how long now?

I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and ...
by NHMike
Fri Oct 11, 2019 4:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1546

Re: Long flights with cancer/chemo

Maelleous wrote:I flew from Florida to Pittsburgh every other week for 8 months, 4 months after surgery, with no issues. I was on baby aspirin for cardiac arrest from chemo, but other than that no issues.


I am routinely amazed at the things that we go through here.
by NHMike
Tue Oct 08, 2019 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upcoming Surgery
Replies: 23
Views: 2354

Re: Upcoming Surgery

Two weeks out from surgery. A question for you all: I continue to have unanticipated challenges with my bladder. I had my catheter removed last Wednesday. Since then, I am voiding but it takes effort to get a stream started and to fully void. The urologist I saw prescribed Flomax. He flippantly sta...
by NHMike
Tue Oct 08, 2019 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering fatigue and changes in stool
Replies: 5
Views: 587

Re: Lingering fatigue and changes in stool

I have fatigue but it may be more caused by spending more time in the bathroom, thereby losing sleep time.

Fiber may help with bulking up stool. I find that it makes a difference for me.
by NHMike
Tue Oct 08, 2019 6:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: EXaCT1 Testing?
Replies: 3
Views: 449

Re: EXaCT1 Testing?

I looked it up as the name isn't necessarily descriptive. It is genetic testing (not genomic testing on the tumor) and looks for genetic coding and variants or mutations that may be of use in treatment. I saw that there are research papers on this but I didn't read any of them. They would probably b...
by NHMike
Tue Oct 08, 2019 6:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1595
Views: 343042

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Someone made the comment (I think GravelGuy) that he uses his abs a lot in going. I find myself doing that more and more as well, sometimes to the point of getting dizzy. The rectum is a muscle and that did the evacuation before but I don't have one now. It may be that compressing the intestines wit...
by NHMike
Tue Oct 08, 2019 6:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer diagnosed July 2019
Replies: 10
Views: 681

Re: Colon cancer diagnosed July 2019

I think c before TNM means clinical (from the scans and biopsies, before surgery). see here: http://oncolex.org/Colorectal-cancer/Background/Staging cTNM is based on all available information from: Clinical examination Endoscopy Radiology The final stage is given after the evaluation of the patholo...
by NHMike
Mon Oct 07, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1595
Views: 343042

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I hope things are going well with the accommodations to make things easier at work. I understand wanting to go in to the office rather than working from home. I'm sorry it's gotten so cold so fast. Hope you get some warmer days popping in here and there for a little relief. Temperatures are back to...
by NHMike
Mon Oct 07, 2019 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long flights with cancer/chemo
Replies: 15
Views: 1546

Re: Long flights with cancer/chemo

I avoided air travel during chemo but did take a long AmTrak trip (Boston to DC). You can easily walk to the bathrooms on trains which made it the more attractive option.
by NHMike
Mon Oct 07, 2019 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer diagnosed July 2019
Replies: 10
Views: 681

Re: Colon cancer diagnosed July 2019

Five hundred fifty-five patients who underwent surgery for primary colorectal cancer from January 2003 to December 2009 were analyzed for T3 subdivision. T3 subdivision was determined by the depth of invasion beyond the outer border of the proper muscle (T3a, <1 mm; T3b, 1 to 5 mm; T3c, >5 to 15 mm...
by NHMike
Mon Oct 07, 2019 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer diagnosed July 2019
Replies: 10
Views: 681

Re: Colon cancer diagnosed July 2019

URMC / Encyclopedia / Grading and Staging of Cancer Search Encyclopedia Grading and Staging of Cancer After cancer is diagnosed, healthcare provides need to learn as much as they can about it. This helps them to plan the best treatment and look at overall outcomes and goals. For many types of cancer...
by NHMike
Mon Oct 07, 2019 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer diagnosed July 2019
Replies: 10
Views: 681

Re: Colon cancer diagnosed July 2019

N1 means 1-3 lymph nodes involved. N1a is 1 lymph node. N1b is 2-3 lymph nodes. N1c has some other features involved.

I use this webpage for staging definitions:

https://cancerstaging.org/references-to ... Medium.pdf
by NHMike
Mon Oct 07, 2019 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 17846

Re: Quick intro -- diagnosed Friday

Hi All, Wanted to drop in and provide an update. Been taking Xeloda since Tuesday morning, and had the infusion of Oxaliplatin Tuesday afternoon. Tues/Wed easy days and I pushed myself to go work out at the gym. Thursday the steroid or whatever wore off and the nausea was pretty real. I didn't take...
by NHMike
Sun Oct 06, 2019 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1595
Views: 343042

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Below freezing temperatures this morning and I turned on the heat. My toes and fingers felt it but I can manage with the proper clothes.
by NHMike
Sat Oct 05, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1284

Re: So excited, had to share CEA results!!

It's great to see a number well into the normal range.

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