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by NHMike
Fri Sep 27, 2019 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

MistyBlu wrote:
NHMike wrote:

I gained weight on Chemo but that's because I didn't work out as much.


Aren't you the one following the anti-inflammatory diet. I started that! Kinda sucks...[/quote]

No, that's not me. I use a Mediterranian-ish approach.
by NHMike
Fri Sep 27, 2019 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

MistyBlu wrote:Did any of you lose hair or weight? With the one week break, I'll be on this until next Summer!


I gained weight on Chemo but that's because I didn't work out as much.

My hair thinned but that's due to age.
by NHMike
Fri Sep 27, 2019 9:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

I was unable to get the actual script because I have to go through a specialty pharmacy. Also, NY they tend to not give out scripts anymore. They send them straight to the pharmacy. I asked the specialty pharmacy what they received??? I'm shocked now to discover they have two scripts 500mg(3 big pi...
by NHMike
Fri Sep 27, 2019 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1567
Views: 337766

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

This was not so good a week as clustering returned. It was manageable but annoying. Today was a pretty good morning. I went several times early this morning and am cleaned out or near cleaned out. But I was trying to get work done and going to the bathroom got in the way. Sometimes I have a fairly c...
by NHMike
Thu Sep 26, 2019 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vision & chemo
Replies: 6
Views: 839

Re: Vision & chemo

I see that blurry vision can be a side effect from the steroids or chemo. Has any one had it only happen in just 1 eye? (It went away after about 2/3 days) The oncologist says it should happen in both eyes and because of that, if it happens again she wants a scan. I don't recall vision problems tho...
by NHMike
Thu Sep 26, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

And, they’re very slow. All documents were sent ahead to them and I was still there waiting for three hours for a consultation that took less than 30 minutes. And I was warned that transferring to them would mean lengthy appointments. When I asked what for they said there’s just a larger population...
by NHMike
Wed Sep 25, 2019 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 15125

Re: Newly diagnosed rectal cancer

I got the magic mouthwash prescription. It's a small bottle with no refills and cost $55. You swish and spit 5ml every 4 hours. It's a very tiny amount to be trying to swish around. I don't care for it. It makes my mouth numb all over. I know that is to help with it hurting but I'd rather not have ...
by NHMike
Wed Sep 25, 2019 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

Update: Got some clarity last night at the ONC's office. • I am moderately differentiated not poorly differentiated. Correction on his part. • As for stats, he quoted that from his head???. He said what he should have said was 1 in 4 people have a reoccurrence in my situation. • As for the drug tre...
by NHMike
Tue Sep 24, 2019 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 2741

Re: CRC Veteran Check-In! LAR Syndrome question

I had the pain for a few months - I believe that it was severed nerve that quieted down over time. I don't have any pain today.
by NHMike
Tue Sep 24, 2019 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1567
Views: 337766

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I can't read private messages. Something's been wrong with my mailbox. It might be full but I haven't figured out how to delete things.
by NHMike
Tue Sep 24, 2019 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 173
Views: 15125

Re: Newly diagnosed rectal cancer

I didn't have the mouth sores or I can't recall them.

I don't recall anyone else doing 28 days straight of Xeloda. Has anyone else here seen this before?
by NHMike
Tue Sep 24, 2019 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1567
Views: 337766

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had a clustering day on Saturday but it turned out to be a cleanout. I took Miralax and that helped. Then nothing until this morning - nice to have two days off. So kind of back to the old routine. Bathroom is better with bulk. I was tempted to buy Bioclense as there was a seller for $32 (normal p...
by NHMike
Tue Sep 24, 2019 6:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on Stage IV...
Replies: 24
Views: 2186

Re: Thoughts on Stage IV...

I have seen many survivors here as well but I've seen many that didn't survive. It may also be that Stage 4 patients benefit from this community in learning about resources and counsel that the typical patient wouldn't normally have easy access to.
by NHMike
Mon Sep 23, 2019 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed while working abroad
Replies: 40
Views: 2803

Re: Diagnosed while working abroad

Hi, Thanks everyone for the replies. I thought I would post an update from last week. There are two hospitals in my city that are certified for colo-rectal cancer. The smaller one is the one I visited before (they do about 40 rectal surgeries per year, but I had trouble communicating with the surge...
by NHMike
Sun Sep 22, 2019 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 47
Views: 3067

Re: Surgery Pathology Report

I have hand and foot in my hands. But it is very mild. It is a bit worse in cold weather but it doesn’t stop me from doing what I did before diagnosis Hi Mike, sorry to hear you’re still dealing with this. Just to check - you definitely mean hand & foot syndrome, not neuropathy? Yup. I have neu...

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