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by NHMike
Wed May 22, 2019 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 25
Views: 2449

Re: Did anyone ever decide to go back to ileostomy after reversal

Thanks for all the posts. Some days are just clustering, but sometimes big breaks in between. But its frustrating because I hate to be dealing with this. I am going to give it some more time. The enema is so intimidating and I was reading coffee enemas may be safer then tap water enema because of p...
by NHMike
Tue May 21, 2019 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309025

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I tried the Napolina capsules today so this is the third time that I've taken it. The first time was in the evening and the other two times were in the morning. The Napolina results in going to the bathroom about 8-10 hours later and, I think, doing a cleanout. The two times I took it in the morning...
by NHMike
Tue May 21, 2019 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309025

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I have add a difficulty time with veggies too. I peeled my eggplant and it was okay. Butter lettuce also is easy to digest. I find I have a night of emptying and two days of just little stuff. The gas is probably the most uncomfortable thing. I honestly think the colonoscopy and aragon gas treatmen...
by NHMike
Tue May 21, 2019 5:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 6323

Re: Anyone pass out after abdominal cramping??? ER time

We are doing well, especially after going to MSK-Westchester yesterday afternoon for a blood draw that showed excellent progress with his hemoglobin. It is up to over 10.3!!! That is higher than Sunday last week when first in the ER in Vermont. With relief from that news, I got a great night's slee...
by NHMike
Mon May 20, 2019 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 398
Views: 117617

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Dear WW-ers, In my first Xelox cycle, I experienced a 2 day constipation in the first week of my first cycle. I took Duphlac syrup and was prescribed Domeperidone and it was resolved immediately. I had same problem, it was most likely caused by all those extra meds that you getting, like anti nause...
by NHMike
Mon May 20, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 398
Views: 117617

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My problem during chemo was exactly the opposite of constipation. Sometimes with the nausea I felt like a human fire hose at both ends! :D I had a different doctor for my last colonoscopy, and part of his prep was to drink a 10oz bottle of magnesium citrate the day before beginning the regular Mira...
by NHMike
Mon May 20, 2019 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309025

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had an obstruction on Friday night and threw up several times with a lot of output. Throwing up does provide pressure relief but then it builds back up. It does look like the stomach emptied out and that's good because it's not pleasant when there is too much in the small intestine. I was ready t...
by NHMike
Mon May 20, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A forum suggestion - including location in Signatures
Replies: 10
Views: 580

Re: A forum suggestion - including location in Signatures

I like at least a relative location as it does pertain to coverage and the hospitals available. My approach is to put it in my username.
by NHMike
Mon May 20, 2019 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 25
Views: 2449

Re: Did anyone ever decide to go back to ileostomy after reversal

I have thought about it. There were times in the first month when I thought that the Ileostomy bag was a lot easier than what I was going through. I thought about the Ileostomy because that was what I was familiar with. This morning was a mess for me but I think that I'm through with things for a da...
by NHMike
Mon May 20, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help - Diagnosed yesterday and confused
Replies: 23
Views: 1917

Re: Please help - Diagnosed yesterday and confused

I had a mass and went to the ER and then had a colonoscopy (without full prep) by a GI doc. The GI doc became my point doctor. He set up meetings with the oncologist and radiation oncologist as I had rectal cancer and the protocol for my stage was chemo and radiation first before surgery. I would gu...
by NHMike
Mon May 20, 2019 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 6323

Re: Anyone pass out after abdominal cramping??? ER time

I started a new thread titled "HAI pump nightmare" that has received not one comment. Interesting. My sense is that almost all of the active members here were tuned into your original thread and commented here vs there. I did read it but thought better to keep the dialogue on this one. Ho...
by NHMike
Mon May 20, 2019 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1488
Views: 309025

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I had an obstruction on Friday night and threw up several times with a lot of output. Throwing up does provide pressure relief but then it builds back up. It does look like the stomach emptied out and that's good because it's not pleasant when there is too much in the small intestine. I was ready to...
by NHMike
Fri May 17, 2019 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 6323

Re: Anyone pass out after abdominal cramping??? ER time

This has been a really rough journey for both of you. I hope that they can fix the leak issue.
by NHMike
Fri May 17, 2019 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - rectal cancer, very nervous about radiation (update: tell me about xeloda!)
Replies: 33
Views: 2559

Re: New here - rectal cancer, very nervous about radiation

I think most people have said a lot of what I'd say to you, but I'll add my 2 cents anyway. Coming from someone who was stage IIIC in 2012. My personal feeling, I wanted to do whatever I had to do to be alive for my daughter. Statistics mean nothing, you don't know which group your going to be in, ...
by NHMike
Thu May 16, 2019 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 1348

Re: Chemo break

I had two chemo breaks. One was for one week - my numbers weren't great, the side-effects weren't going away and I felt rotten. The other one was probably for a week as well and I don't recall the reason. It may be that I just didn't feel like doing it.

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