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by NHMike
Fri Jul 10, 2020 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH is back in the hospital :(
Replies: 22
Views: 2971

Re: DH is back in the hospital :(

I have small bowel obstructions from time to time due to scar tissue from surgery. Sometimes things are slow in the large intestine too. I've found that taking Slippery Elm and Nopalina daily improves flow. Some people take these two along with a dose of Miralax in the morning to keep things moving....
by NHMike
Fri Jul 10, 2020 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tea, and other warm beverages while on FOLFOX
Replies: 9
Views: 492

Re: Tea, and other warm beverages while on FOLFOX

I've had coffee and warm or hot water during chemo. My general feeling is that water is the best for hydration. Water is best for bypassing the ileostomy bag. You will probably need to go to the bathroom during or after chemo to drain the bag and water is better for going through the bladder than co...
by NHMike
Fri Jul 10, 2020 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Complementary opinions
Replies: 4
Views: 357

Re: Complementary opinions

One of my sisters speaks highly of Lexington (she lives in the town where they are located). She has two close friends that had stage 4 cancer (not CRC but I don't remember the types) and they were alive longer and doing better than expected. She mentioned them to me in 2017 - I have not asked about...
by NHMike
Fri Jul 10, 2020 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal anxiety
Replies: 3
Views: 173

Re: Reversal anxiety

I think that knowing ahead of time what could happen is really helpful as you (or someone else) can bring supplies to deal with problems. I wasn't really prepared for what happened but I did learn. I think that things are a bit harder these days with tighter visitor policies in hospitals.
by NHMike
Fri Jul 10, 2020 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1693
Views: 413655

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Appointment Notes from Dana-Farber/Brigham and Women's: Please do not arrive more than 20 minutes before your first scheduled appointment. This simple step can reduce the number of people in the building, which helps us ensure fewer people in waiting areas and safe physical distancing throughout the...
by NHMike
Fri Jul 10, 2020 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1693
Views: 413655

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hi Mike, I think I'm sorted, tbh, nothing to report, I'm just reading posts ATM, I'm after my 1 year colonoscopy in April under Anastasia because of the fact I had a fisture, he was happy with everything but never got to see him for a follow up appointment or scan because of covid, but had bloods d...
by NHMike
Fri Jul 10, 2020 6:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1693
Views: 413655

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I haven't been around much as I was working a lot and dealing with stressful stuff. I haven't been working out that much either and have put on weight as a result. My home gym is better and I am using it but I'm not working out to the degree that I used to. Neuropathy has increased somewhat and I su...
by NHMike
Fri Jul 10, 2020 6:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1693
Views: 413655

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Sorry to hyjack ur post Mike but I've have to set up a new account aver nemours attempts to re log in failed, so new e mail and loc I'm, so my new user name from ELEDA is Adele so sorry if I don't reply to any messages Thanks adele Hello Adele, I see that you only have one post so maybe you're stil...
by NHMike
Fri Jul 10, 2020 6:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 month scan
Replies: 4
Views: 299

Re: Pet scan

Marie25 wrote:
Claudine wrote:Hoping for a clear scan, Marie25, keep us posted! The waiting part is the worst!


Came back all clear!


Great news. Back to real life.
by NHMike
Fri Jul 10, 2020 6:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 year scan. Wish me luck!
Replies: 12
Views: 488

Re: 3 year scan. Wish me luck!

Hoping things go well for you.
by NHMike
Fri Jul 10, 2020 6:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 794
Views: 324683

Re: For Stage III's: NED for how long now?

wwroam wrote:Had a CT on Monday and had my oncologist appointment on Wed.; Evident tumour shrinkage. Even at 66% dosage the results are favourable and my haemoglobin levels are fairly steady at 93g/L. Looking good.
Just keep plugging away.


Very nice report.
by NHMike
Mon Jun 01, 2020 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 test required by Cancer Center
Replies: 7
Views: 1441

Re: COVID-19 test required by Cancer Center

Tests have better availability in my state and I plan to get the Antibody test though I'd like to get the Roche test and I don't know if any providers have it yet. I haven't been sick since December and January, family came down with something that was mild with really oddball symptoms and I'd like ...
by NHMike
Mon Jun 01, 2020 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - surgery a few days ago, it hurts and need advice
Replies: 4
Views: 752

Re: O/T - surgery a few days ago, it hurts and need advice

I assume that they know what they are doing. I woke up with staples in my abdomen and the doctor said that she would pull them out with pliers in the office. I was pretty freaked out about doing that but she had me lie down and just grabbed them and yanked them out. It was not painful. People are ve...
by NHMike
Mon Jun 01, 2020 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1693
Views: 413655

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I am really sorry for your loss. These things make also feel us more vulnerable and lonely. A big hug Claudia Thanks. The pandemic is tough on people all over with a lot of frustration and difficult getting access to things that we normally take for granted. There are deaths due to people not being...
by NHMike
Wed May 27, 2020 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW HERE - ADVICE PLEASE
Replies: 1
Views: 464

Re: NEW HERE - ADVICE PLEASE

I had considerable pain after surgery in my lower back. It might have been on the right side. I felt this in the recovery room and I was still under the effect of painkillers during surgery. It was odd because I had several holes in my body and they weren't causing any pain. So I asked for a folded ...

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