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by benben
Sun Aug 12, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: L-Glutamine
Replies: 10
Views: 2120

Re: L-Glutamine

BenBen - What is CBC and THC and how did it help? Also, I see your Ox was reduced. Mine was reduced to 50% after Round 3 b/c my hand and leg cramping was so extreme. I am now back up to 65%. Hi Lakeswim. CBD and THC are extracts from the marijuana plant. I used edible forms of these so as not to in...
by benben
Sun Aug 12, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: L-Glutamine
Replies: 10
Views: 2120

Re: L-Glutamine

I took L-Glutamine along with a handful of other supps and small doses of CBD and THC during my entire chemotherapy treatment. So I can't say for certain whether any one thing did anything or whether or not they did anything at all - HAH. But I am 9 months out of therapy and have virtually ZERO neur...
by benben
Fri Aug 10, 2018 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally O/T
Replies: 23
Views: 7354

Re: Totally O/T

Image

Shine on you Crazy Diamonds!

Photo taken by my son with his new camera around 3am at the base of the South Sister mountain. Morning before we Ascended. 7/22/18
by benben
Fri Aug 03, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

Hi , I think that is their standard default position , time to let inflammation settle as well . What I don’t think they factor in is the anxiety that three months generates when the same information could be available sooner . Just my none medical opinion . My mum had a really susbstancial spread ...
by benben
Thu Aug 02, 2018 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of chemo
Replies: 5
Views: 1190

Re: The end of chemo

I am 9 months post Chemo. I still have a port. I got an all clear CT-SCAN, just inflammation in esophagus and colon - but no mets. My oncologist finally approved port removal, but then my CEA level came back that night at 4.6. Now my ONC says "lets wait on port removal". So now I'm stuck w...
by benben
Thu Aug 02, 2018 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

Hi , Sorry to hear that and I understand why you are concerned. I am sure your oncologist will help you get to the bottom of it . What was your CEA leaves before surgery . We’re they only slightly elevated or higher ? I still think there is room for it being something unrelated but until it’s back ...
by benben
Wed Aug 01, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

Update. So today I had follow up with my oncologist. As everyone suggested the scan was a good one and my Oncologist was quite happy with the results and so was I. He put me on scheduling list for port removal. Of course normal blood work was drawn and everything was great with the exception of AST ...
by benben
Thu Jul 26, 2018 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

dianetavegia wrote:https://radiology-universe.org/2017_Fleischner_Society_Pulmonary_Nodule_Follow-Up_New_Guidelines_Recommendations/


Thanks Diane! That's an informative chart.
by benben
Thu Jul 26, 2018 12:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 Years Old - Rectal Bleeding
Replies: 6
Views: 1371

Re: 23 Years Old - Rectal Bleeding

We are not doctors. We are cancer survivors or loved ones of survivors. Any concern about your health should be addressed by the appropriate medical professional and not on a message board. Best of luck to you. Sorry, but I'm not sure I agree fully with this sentiment. Yes health issues should be a...
by benben
Thu Jul 26, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

Hey benben, sounds like a good scan to me! My last scan in April showed I had a small lung nodule with no change from the previous scan. Similar to your situation, it was never mentioned in the notes of any of my previous scans. My onc didn’t even mention it to me either so I guess it’s nothing to ...
by benben
Thu Jul 26, 2018 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 Years Old - Rectal Bleeding
Replies: 6
Views: 1371

Re: 23 Years Old - Rectal Bleeding

Hi there. Sorry to hear you're experiencing some concerns, but it's good to be proactive about your health. You are very young and most likely you don't have cancer, but there is no certainty. You state that you feel pain sometimes when wiping after bowel movement. This is a good indication that it ...
by benben
Wed Jul 25, 2018 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Re: Scan Results 15 months post surgery. NDED vs NED?

Thanks everyone who chimed in. Hearing your stories and words brings confirmation on my interpretations of the scan.
Very grateful for everyone's support and grateful for being NED. YAYE!

Hopefully port removal is in the my near future. Until then - keep fighting! :D
by benben
Wed Jul 25, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom is dying
Replies: 24
Views: 8589

Re: My mom is dying

My mom passed away on 4th July. Me and my sisters were there with her throughout this time. It's been 3 weeks n I still don't feel accepting this. She was our best friend. Strong. Fierce . Independent. A doctor herself. So many people came for her funeral . Relatives. Ex students. Patients . I felt...
by benben
Wed Jul 25, 2018 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 26
Views: 8572

Scan Results 15 months post surgery. NDED vs NED?

Hi all, I had a scan yesterday. Of course it came with all the normal scanxiety and many trips to the bathroom from the barium contrast. I am not overly surprised by the electronic reports results which are as follows: 1. No definite evidence of metastatic disease within the chest, abdomen and pelvi...
by benben
Mon Jul 23, 2018 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 25
Views: 9771

Re: Goodbye

Very sorry for the loss. I hope that you will feel comfort in your fond memories and the love you shared together.
Peace and love to you in this transition.

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