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by benben
Mon Jun 05, 2017 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10324

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

This is very interesting. It sure would be awesome to say I'm half way done instead of a quarter done. Is a lifetime of neuropathy worth a 1% difference? Especially for those of us on the younger side? Tough call. I get my genetic test back in 4 weeks. Maybe that would be a good time to discuss thi...
by benben
Sun Jun 04, 2017 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10324

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I'll be talking with my ONC about this Tuesday when I go in for treatment #2. First one was pretty smooth, only had mild first bite syndrome for about 24 hours, tired day after disconnect - otherwise good to go. When first discussing with my ONC he suggested I go at least 8 session as that seemed to...
by benben
Sun Jun 04, 2017 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21222

Re: what should I expect on the first day of chemo?

Yes, I believe that is what they suspect. It only happens on the day before, of, and after disconnect. During that time my heart rate slows to the 45-55 bpm range and blood pressure drops to 90/50 along with the chest pains. I'm normally around 80 bpm and 120/80 blood pressure. I'm not sure what my...
by benben
Sun Jun 04, 2017 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My ONC released me
Replies: 9
Views: 2224

Re: My ONC released me

Not sure why the surgeon would tell you, you only had 4-5 years to live. Perhaps with no treatment at all, but statistically speaking about 50% give or take 5% depending on the source - are cured just by surgery alone. At any rate, thanks for sharing. I'm also IIIB like yourself and Basil. I've had ...
by benben
Wed May 31, 2017 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good scan results 2.5 years out
Replies: 10
Views: 2253

Re: Good scan results 2.5 years out

That's great news! I bet your entire family is feeling good. Celebrate for sure!
by benben
Wed May 31, 2017 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What supplements do you take????
Replies: 45
Views: 9911

Re: What supplements do you take????

I take the following: vitamins ======= D3 B12 Daily multi C other ===== Turmeric - 720mg Probiotic omezeropole ----------------------------------------- I've been taking Turmeric almost daily since 2011, way before cancer diagnosis. Given that my pathology suggests a slower growing cancer than most ...
by benben
Wed May 31, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 59
Views: 17075

Re: Just got post-surgery results and they aren't good

Thanks, Maggie and Sarah. On another note, is it normal to have internal pain 12 days after surgery? My husband is a left side sleeper and his surgeon said it would be no problem whatsoever for him to resume his usual sleeping position. So, last night he tried sleeping on his left side (left hemi-c...
by benben
Fri May 26, 2017 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospital visit
Replies: 6
Views: 1455

Re: Hospital visit

Here's to a fast and complete recovery Chuck.
Keep up the walking.
by benben
Fri May 26, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21222

Re: what should I expect on the first day of chemo?

Went in to give blood for the genetics test today and do some other lab work. They found that my potassium levels were low. I have read on some other threads that others had chest pain with low potassium so hopefully the supplements they are prescribing will help. Looking forward to feeling better ...
by benben
Fri May 26, 2017 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9379

Re: Another new Forum Member.

Port disconnect went fine on Wednesday - was fast. I didn't feel exhausted right away, but 2 hours after I started to hit a wall. Yesterday I was spent. Felt blah, and had little to no appetite. I forced myself to eat and drink as much water as possible. Managed to do a little bit of work, but mostl...
by benben
Tue May 23, 2017 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21222

Re: what should I expect on the first day of chemo?

Day two of second treatment was pretty uneventful. I felt good most of the day. Towards the evening, I started to get some slight chest pains again, although it doesn't seem as painful as it did after the first treatment. Maybe it was heartburn after all and the Prilosec is working. I'm still going...
by benben
Tue May 23, 2017 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9379

Re: Another new Forum Member.

How was day 2? Hey Tdubz. Day two went smooth sailing. I had a bit of insomnia from 2:30-5:00pm, perhaps lingering steroid by product. I had eaten a 1/3rd of a thc/cbd choco 2 hours prior to bed and that gave me about 4.5 hours uninterrupted sleep. I also strapped the sports wrap pump pack on and p...
by benben
Tue May 23, 2017 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9379

Re: Another new Forum Member.

That's awesome that you don't have the cold sensitivity. I'm a cold drink guy, can't stand any warm drink, so drinking room temp water has been tough lol I normally in with you on liking liquids on the cool side, but this morning I got some chilled filter water from the fridge. Filled up a water bo...
by benben
Mon May 22, 2017 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9379

Re: Another new Forum Member.

Well round one is done, at least the in chair portion. Now I'm home wearing a 5FU pump in a camera bag of sorts. Overall the treatment was a breeze. I only experienced one slight symptom. First bite of yogurt I ate while there I got some nerve sensation in a couple of upper molars. I had this occur ...
by benben
Mon May 22, 2017 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21222

Re: what should I expect on the first day of chemo?

Well, after a great week and a half off I'm back at it for round 2. It ended up being great timing. I was feeling good for Mother's Day, my sons end of school program, my daughters dance rectial, and my birthday lol. So I had a pretty good off week. This week is round 2. Off to good start so far. W...

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