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by benben
Thu Jun 15, 2017 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 33222

Re: Things Not to Say and the Responses I want to Make (Rant)

I fully understand. For example my GF, which I hadn't seen for several months when I first told her I was diagnosed with CRC said this - "If you seek western medicine, you will die." - yes she said this point blank. She told me to drop everything I was doing and go with her to India to pur...
by benben
Tue Jun 13, 2017 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10283

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

i"m wondering - has anyone had their oncologist bring this up and suggest it on their own? I'm guessing most must know of the study. That's a very good question. One that I've thought about as well. I wonder, if there is concern on the part of cancer treatment centers about the consequences of...
by benben
Tue Jun 13, 2017 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery prep day!
Replies: 11
Views: 1711

Re: Surgery prep day!

Sounds like you are in good hands.
I'm sure you'll do fine. In fact you've already done the chemo-radiation.
This surgical part, while not easy, might seem like a walk in the park in comparison to the chemo and radiation.
by benben
Mon Jun 12, 2017 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel cancer patient conquers Everest
Replies: 5
Views: 1381

Re: Bowel cancer patient conquers Everest

Ian Toothill's tweet on 20 May said: "For those who with suffer daily because of cancer, I climb for you. For those who lost the battle with cancer and the friends and families left to pick up broken pieces, I climb for you." Ian Toothill I SALUTE YOU!! Thank you for your strength and brin...
by benben
Mon Jun 12, 2017 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10283

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I'll be talking with my ONC about this Tuesday when I go in for treatment #2. First one was pretty smooth, only had mild first bite syndrome for about 24 hours, tired day after disconnect - otherwise good to go. When first discussing with my ONC he suggested I go at least 8 session as that seemed t...
by benben
Thu Jun 08, 2017 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 birthday today
Replies: 13
Views: 2571

Re: 11 birthday today

thanks for all the good thoughts the colon club, one of the few places you want to be obsolete (reminds me of the twilight zone episodes) where else can I share my pooping my pants stories had one a few weeks back though since I had fiber cereal, a midmorning frapachino and cheddar broccoli soup fo...
by benben
Wed Jun 07, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21103

Re: what should I expect on the first day of chemo?

Tdubz wrote:Apparently cardiologists are in high demand. I can't get in to one for another 2 weeks.


Have you had any more chest pain?
If you do, you might just go to ER. That's one way to fast track a trip to cardio.
If not hopefully its all good and you can wait it out.
by benben
Wed Jun 07, 2017 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Message of hope from a wiley crc veteran
Replies: 32
Views: 5993

Re: Message of hope from a wiley crc veteran

Thanks Rob and to all the old hatters out there giving us newbs of the jungle inklings of Hope!
by benben
Wed Jun 07, 2017 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21103

Re: what should I expect on the first day of chemo?

Well round 3 really wiped me out. Feeling more tired than the previous 2 rounds, but at least all other side effects are minimal. On the bright side, I'm a quarter of the way done! I still can't believe how fast things move. 3 months ago I was a normal 36 yr old. Now I've had 3 ft of colon removed ...
by benben
Wed Jun 07, 2017 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hellooo Neuropathyiiiiiiiiiii
Replies: 54
Views: 16837

Re: Hellooo Neuropathyiiiiiiiiiii

Soooo... I was sitting on my chemo chair for the first time this afternoon and i was feeling pretty damn great. Drunk 2 1/2 liters of water and moved around... When there were only 10 ml left from my Oxi it has begun: neuropathy! Didn't feel my mouth, my hands and feet startet to feel funny.. sting...
by benben
Tue Jun 06, 2017 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 birthday today
Replies: 13
Views: 2571

Re: 11 birthday today

I don't post as much as more as I am not sure I can add much being so far removed from cancer/chemo


For many of us a statement like this while seeming far from our realities, is something we hope for.

Congratulations Helen and thanks for the positive note.
by benben
Tue Jun 06, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10283

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I talked with my assistant ONC today. She is actually my ONC's assistant. He wasn't out of office. I asked and she said "oh no, he's here - just in the other room with another patient. We trade off sometimes." I was a bit peaved as I was discussing low blood count with his assistant rather...
by benben
Tue Jun 06, 2017 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU cumulative side effects?
Replies: 18
Views: 5267

Re: 5-FU cumulative side effects?

Hi, I'm new to this - just finished my 3rd treatment with 5-FU and Leucovorin. The first treatment was fine and my oncologist said how you react to the 1st one is usually how you react from that point on. I had mild nausea and fatigue but that was basically it. Second treatment about the same. Thir...
by benben
Tue Jun 06, 2017 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9342

Re: Another new Forum Member.

You are an ironman my friend. I try to walk at least a mile a day, but with the chest pain I have, it's impossible to do on treatment week. I feel weak on treatment week, can't imagine lifting weights now lol. I've also cut back to only 1 or 2 dex pills during treatment week so that might explain l...
by benben
Mon Jun 05, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9342

Re: Another new Forum Member.

You will feel like a new man next week and you have the holiday weekend. Gonna be a fun roller coaster ride for the next 6 months! Pretty much right on Tdubz. I was down for just 1 day, back to 80% next and then pretty much full on from then on. I worked everyday, including the 1 day of exhaustion,...

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