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by benben
Wed Jun 07, 2017 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hellooo Neuropathyiiiiiiiiiii
Replies: 54
Views: 16790

Re: Hellooo Neuropathyiiiiiiiiiii

Soooo... I was sitting on my chemo chair for the first time this afternoon and i was feeling pretty damn great. Drunk 2 1/2 liters of water and moved around... When there were only 10 ml left from my Oxi it has begun: neuropathy! Didn't feel my mouth, my hands and feet startet to feel funny.. sting...
by benben
Tue Jun 06, 2017 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 birthday today
Replies: 13
Views: 2551

Re: 11 birthday today

I don't post as much as more as I am not sure I can add much being so far removed from cancer/chemo


For many of us a statement like this while seeming far from our realities, is something we hope for.

Congratulations Helen and thanks for the positive note.
by benben
Tue Jun 06, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10198

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I talked with my assistant ONC today. She is actually my ONC's assistant. He wasn't out of office. I asked and she said "oh no, he's here - just in the other room with another patient. We trade off sometimes." I was a bit peaved as I was discussing low blood count with his assistant rather...
by benben
Tue Jun 06, 2017 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU cumulative side effects?
Replies: 18
Views: 5223

Re: 5-FU cumulative side effects?

Hi, I'm new to this - just finished my 3rd treatment with 5-FU and Leucovorin. The first treatment was fine and my oncologist said how you react to the 1st one is usually how you react from that point on. I had mild nausea and fatigue but that was basically it. Second treatment about the same. Thir...
by benben
Tue Jun 06, 2017 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9263

Re: Another new Forum Member.

You are an ironman my friend. I try to walk at least a mile a day, but with the chest pain I have, it's impossible to do on treatment week. I feel weak on treatment week, can't imagine lifting weights now lol. I've also cut back to only 1 or 2 dex pills during treatment week so that might explain l...
by benben
Mon Jun 05, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new Forum Member.
Replies: 47
Views: 9263

Re: Another new Forum Member.

You will feel like a new man next week and you have the holiday weekend. Gonna be a fun roller coaster ride for the next 6 months! Pretty much right on Tdubz. I was down for just 1 day, back to 80% next and then pretty much full on from then on. I worked everyday, including the 1 day of exhaustion,...
by benben
Mon Jun 05, 2017 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10198

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

This is very interesting. It sure would be awesome to say I'm half way done instead of a quarter done. Is a lifetime of neuropathy worth a 1% difference? Especially for those of us on the younger side? Tough call. I get my genetic test back in 4 weeks. Maybe that would be a good time to discuss thi...
by benben
Sun Jun 04, 2017 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10198

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I'll be talking with my ONC about this Tuesday when I go in for treatment #2. First one was pretty smooth, only had mild first bite syndrome for about 24 hours, tired day after disconnect - otherwise good to go. When first discussing with my ONC he suggested I go at least 8 session as that seemed to...
by benben
Sun Jun 04, 2017 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21010

Re: what should I expect on the first day of chemo?

Yes, I believe that is what they suspect. It only happens on the day before, of, and after disconnect. During that time my heart rate slows to the 45-55 bpm range and blood pressure drops to 90/50 along with the chest pains. I'm normally around 80 bpm and 120/80 blood pressure. I'm not sure what my...
by benben
Sun Jun 04, 2017 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My ONC released me
Replies: 9
Views: 2200

Re: My ONC released me

Not sure why the surgeon would tell you, you only had 4-5 years to live. Perhaps with no treatment at all, but statistically speaking about 50% give or take 5% depending on the source - are cured just by surgery alone. At any rate, thanks for sharing. I'm also IIIB like yourself and Basil. I've had ...
by benben
Wed May 31, 2017 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good scan results 2.5 years out
Replies: 10
Views: 2248

Re: Good scan results 2.5 years out

That's great news! I bet your entire family is feeling good. Celebrate for sure!
by benben
Wed May 31, 2017 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What supplements do you take????
Replies: 45
Views: 9715

Re: What supplements do you take????

I take the following: vitamins ======= D3 B12 Daily multi C other ===== Turmeric - 720mg Probiotic omezeropole ----------------------------------------- I've been taking Turmeric almost daily since 2011, way before cancer diagnosis. Given that my pathology suggests a slower growing cancer than most ...
by benben
Wed May 31, 2017 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 59
Views: 16922

Re: Just got post-surgery results and they aren't good

Thanks, Maggie and Sarah. On another note, is it normal to have internal pain 12 days after surgery? My husband is a left side sleeper and his surgeon said it would be no problem whatsoever for him to resume his usual sleeping position. So, last night he tried sleeping on his left side (left hemi-c...
by benben
Fri May 26, 2017 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospital visit
Replies: 6
Views: 1449

Re: Hospital visit

Here's to a fast and complete recovery Chuck.
Keep up the walking.
by benben
Fri May 26, 2017 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21010

Re: what should I expect on the first day of chemo?

Went in to give blood for the genetics test today and do some other lab work. They found that my potassium levels were low. I have read on some other threads that others had chest pain with low potassium so hopefully the supplements they are prescribing will help. Looking forward to feeling better ...

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