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by benben
Thu Jun 22, 2017 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: granix extreme bone pain
Replies: 84
Views: 22785

Re: granix extreme bone pain

3) I have had 5 treatments so far with the 2nd and 3rd delayed one week. The fifth round I just BARELY got approved and that was without a week delay and with the shot and reduced dosage. It's very frustrating because they reduced dosage and still not cooperating. I hope you get some positive impro...
by benben
Thu Jun 22, 2017 3:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: granix extreme bone pain
Replies: 84
Views: 22785

Re: granix extreme bone pain

Sorry you are going through this! I too have had low WBC from folfox and had to delay rounds 2 and three. I had three daily shots of neuprogen and experienced terrible bone pain. My oncologist warned me that it might feel like I am having a heart attack- wow, fun! Claritin doesn't seem to work for ...
by benben
Tue Jun 20, 2017 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anastomotic leak and chemo delay
Replies: 4
Views: 3843

Re: anastomotic leak and chemo delay

Hi Mich, Sorry to hear about your pain/leak. That's really a drag I'm sure. While I can't offer much advice, I did have an upper LAR performed and I experience mucus discharge about once a week or so. At first it was more frequent, but has diminished with time to once ever 1-2 weeks. About once a mo...
by benben
Tue Jun 20, 2017 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 yr old wants colonoscopy, doctor declined
Replies: 29
Views: 8020

Re: 38 yr old wants colonoscopy, doctor declined

Lee wrote:Find a new doctor.

Anytime you have bleeding (hemorrhoids or not), a colonoscopy should be done. A colonoscopy will give a true diagnoses of what is going on, anything else is just a speculation. And your life is worth more than a speculation.

Lee


Agreed 100%!
by benben
Tue Jun 20, 2017 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: granix extreme bone pain
Replies: 84
Views: 22785

Re: granix extreme bone pain

So, last night monitored fever and finally placed call to ONC as 12:30 am because fever was holding 100.4 + for couple hours. He told me to just get some sleep and come in at regular time next morning to suss things out. I tossed and turned all night as the oxycodone wore off the bone pain intensifi...
by benben
Tue Jun 20, 2017 12:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: granix extreme bone pain
Replies: 84
Views: 22785

Re: granix extreme bone pain

I have the shot almost every treatment and sometimes it's better than other times. I never know. My nurses have me take anti inflammatory along with the Claritin. I take two every 12 hours and then Claritin once every 24. I would ask my onc or the nurses about that as well. I also take the Claritin...
by benben
Mon Jun 19, 2017 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: granix extreme bone pain
Replies: 84
Views: 22785

granix extreme bone pain

I got my first Granix (neupogen) shot yesterday to up my diminished white blood cell count, and only experience a mild pain in my right hip for like 30 minutes. Today I received my second shot and 6 hours later started getting pain in my lower spine near my herniated discs and a mild elevated temp o...
by benben
Mon Jun 19, 2017 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin stool, scared
Replies: 2
Views: 2169

Re: Thin stool, scared

I am a 17 year old male, turning 18 next month. I have always held my stools as a child, I don't really know why, just have. This has led to serious constipatition that I have never really done anything about until about a month ago now when I had blood in my stool after I passed a very large stool...
by benben
Mon Jun 19, 2017 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21103

Re: what should I expect on the first day of chemo?

Hopefully the shot works for you and you don't have to delay treatment. How low did your WBC counts have to go for them to give you a shot? My Neutrophil count was 1.05 at day 14 after first treatment (2nd infusion day). Bottom line for my clinic is 1.0 to do treatment, and they are aggressive - no...
by benben
Sun Jun 18, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21103

Re: what should I expect on the first day of chemo?

so my nose has felt pretty dry for the past week or so and I had a bloody nose today. anyone else experience this? I'm pretty sure it's from the chemo since I've never had a bloody nose before. Other than that, it's been a great week so far. Round 4 starts Monday so I'm glad Father's Day is this we...
by benben
Fri Jun 16, 2017 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 2394

Re: on and off bleeding for 5 years - no pain

As stated, usual method includes sedation - so you won't feel anything during scope - unless you're in an area where they don't put you under. Scope is best option to find out the cause of lower GI bleeding. Nothing else can really confirm the reason. I had zero weight loss prior to my diagnosis. In...
by benben
Thu Jun 15, 2017 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 2394

Re: on and off bleeding for 5 years - no pain

When in doubt, Scope it out! Seriously any sign of blood needs to have a scope, and not just an anoscope, or sigmoidscope - scope the whole enchilada. I first started having some mild bleeding around 29 years of age. All the docs just said its most likely some hemorrhoids, etc.. etc.. I had my first...
by benben
Thu Jun 15, 2017 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama Checking in
Replies: 35
Views: 11648

Re: Beansmama Checking in

Ouch Beansmama, that's a serious stress you really didn't need.
Hang in there! Focus on yourself, your children, and getting Larry the hell out of dodge!

Many hugs!
by benben
Thu Jun 15, 2017 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A sore bottom- diaper rash med recommendation?
Replies: 10
Views: 2696

Re: A sore bottom- diaper rash med recommendation?

LOL what exactly is this Butt Paste? So far I've not used anything, but Nurse recommended Desitin to me this past week when I started developing diarrhea. I did get some in case it keeps happening. Otherwise I generally hop directly into the shower and use my removable shower head to thoroughly clea...
by benben
Thu Jun 15, 2017 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over
Replies: 35
Views: 9939

Re: Surgery is over

Here's to a full and speedy recovery!

Keep walking and drinking.

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