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by benben
Sun Jun 18, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21010

Re: what should I expect on the first day of chemo?

so my nose has felt pretty dry for the past week or so and I had a bloody nose today. anyone else experience this? I'm pretty sure it's from the chemo since I've never had a bloody nose before. Other than that, it's been a great week so far. Round 4 starts Monday so I'm glad Father's Day is this we...
by benben
Fri Jun 16, 2017 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 2351

Re: on and off bleeding for 5 years - no pain

As stated, usual method includes sedation - so you won't feel anything during scope - unless you're in an area where they don't put you under. Scope is best option to find out the cause of lower GI bleeding. Nothing else can really confirm the reason. I had zero weight loss prior to my diagnosis. In...
by benben
Thu Jun 15, 2017 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on and off bleeding for 5 years - no pain
Replies: 10
Views: 2351

Re: on and off bleeding for 5 years - no pain

When in doubt, Scope it out! Seriously any sign of blood needs to have a scope, and not just an anoscope, or sigmoidscope - scope the whole enchilada. I first started having some mild bleeding around 29 years of age. All the docs just said its most likely some hemorrhoids, etc.. etc.. I had my first...
by benben
Thu Jun 15, 2017 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beansmama Checking in
Replies: 35
Views: 11617

Re: Beansmama Checking in

Ouch Beansmama, that's a serious stress you really didn't need.
Hang in there! Focus on yourself, your children, and getting Larry the hell out of dodge!

Many hugs!
by benben
Thu Jun 15, 2017 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A sore bottom- diaper rash med recommendation?
Replies: 10
Views: 2579

Re: A sore bottom- diaper rash med recommendation?

LOL what exactly is this Butt Paste? So far I've not used anything, but Nurse recommended Desitin to me this past week when I started developing diarrhea. I did get some in case it keeps happening. Otherwise I generally hop directly into the shower and use my removable shower head to thoroughly clea...
by benben
Thu Jun 15, 2017 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over
Replies: 35
Views: 9925

Re: Surgery is over

Here's to a full and speedy recovery!

Keep walking and drinking.
by benben
Thu Jun 15, 2017 4:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 33107

Re: Things Not to Say and the Responses I want to Make (Rant)

I fully understand. For example my GF, which I hadn't seen for several months when I first told her I was diagnosed with CRC said this - "If you seek western medicine, you will die." - yes she said this point blank. She told me to drop everything I was doing and go with her to India to pur...
by benben
Tue Jun 13, 2017 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10198

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

i"m wondering - has anyone had their oncologist bring this up and suggest it on their own? I'm guessing most must know of the study. That's a very good question. One that I've thought about as well. I wonder, if there is concern on the part of cancer treatment centers about the consequences of...
by benben
Tue Jun 13, 2017 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery prep day!
Replies: 11
Views: 1706

Re: Surgery prep day!

Sounds like you are in good hands.
I'm sure you'll do fine. In fact you've already done the chemo-radiation.
This surgical part, while not easy, might seem like a walk in the park in comparison to the chemo and radiation.
by benben
Mon Jun 12, 2017 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel cancer patient conquers Everest
Replies: 5
Views: 1378

Re: Bowel cancer patient conquers Everest

Ian Toothill's tweet on 20 May said: "For those who with suffer daily because of cancer, I climb for you. For those who lost the battle with cancer and the friends and families left to pick up broken pieces, I climb for you." Ian Toothill I SALUTE YOU!! Thank you for your strength and brin...
by benben
Mon Jun 12, 2017 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK
Replies: 38
Views: 10198

Re: NEWS from ongoing ASCO 2017: shorter chemo for stage III OK

I'll be talking with my ONC about this Tuesday when I go in for treatment #2. First one was pretty smooth, only had mild first bite syndrome for about 24 hours, tired day after disconnect - otherwise good to go. When first discussing with my ONC he suggested I go at least 8 session as that seemed t...
by benben
Thu Jun 08, 2017 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 11 birthday today
Replies: 13
Views: 2551

Re: 11 birthday today

thanks for all the good thoughts the colon club, one of the few places you want to be obsolete (reminds me of the twilight zone episodes) where else can I share my pooping my pants stories had one a few weeks back though since I had fiber cereal, a midmorning frapachino and cheddar broccoli soup fo...
by benben
Wed Jun 07, 2017 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21010

Re: what should I expect on the first day of chemo?

Tdubz wrote:Apparently cardiologists are in high demand. I can't get in to one for another 2 weeks.


Have you had any more chest pain?
If you do, you might just go to ER. That's one way to fast track a trip to cardio.
If not hopefully its all good and you can wait it out.
by benben
Wed Jun 07, 2017 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Message of hope from a wiley crc veteran
Replies: 32
Views: 5979

Re: Message of hope from a wiley crc veteran

Thanks Rob and to all the old hatters out there giving us newbs of the jungle inklings of Hope!
by benben
Wed Jun 07, 2017 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what should I expect on the first day of chemo?
Replies: 85
Views: 21010

Re: what should I expect on the first day of chemo?

Well round 3 really wiped me out. Feeling more tired than the previous 2 rounds, but at least all other side effects are minimal. On the bright side, I'm a quarter of the way done! I still can't believe how fast things move. 3 months ago I was a normal 36 yr old. Now I've had 3 ft of colon removed ...

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