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by Basil
Wed Dec 06, 2017 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling “NED”
Replies: 12
Views: 2503

Feeling “NED”

This is a very mundane post but I figure it may resonate with someone here, either now or in the future. I was diagnosed stage iii with one suspicious node in March. Had a great reaction to preadjuvant chemo (trial with no chemorad) and my pathology report showed a complete response after LAR/TME. G...
by Basil
Wed Dec 06, 2017 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 8992

Re: CT Scan Just came in Liver Met (one)

Those five year rates are based on mountains of outdated data. You will want to look at them and start running a bunch of statistical brain teasers in your head. Don’t, because the statistics are skewed, and not in a positive way. It’a not a cake walk - cancer never is - but your doctors have a lot ...
by Basil
Tue Nov 28, 2017 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 48
Views: 10046

Re: Age 30 (M) Recently Diagnosed, Family History

Surgeon rang me last week about my concerns, said he operates at "12 weeks, 16 weeks, 20 weeks etc" and has no concerns for me at 20 weeks, Dec 18th. Put my mind at ease for a little bit, I guess it's not an exact science and they base there decisions on what's in front of them. Still han...
by Basil
Sat Nov 18, 2017 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 29
Views: 12736

Re: Just found out I have cancer

Male, 40 y/o. Had a colongoscopy yesterday, following abdominal pain and blood in stool. They found a large mass in the descending colon. Awaiting biopsy, but doc said it is almost certainly cancer. I am scared, and frightened of the future. I know I am supposed to be positive, but dont know how. H...
by Basil
Tue Nov 07, 2017 9:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out yesterday I have colon cancer.
Replies: 12
Views: 2763

Re: Just found out yesterday I have colon cancer.

My tumor was medium sized. I got an appointment at MDA within a week. I can't give you more because that time was a bit of a blur. Others set the appointment for me.
by Basil
Tue Nov 07, 2017 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out yesterday I have colon cancer.
Replies: 12
Views: 2763

Re: Just found out yesterday I have colon cancer.

My name is Ginger I’m 42 and who would’ve thought cancer at my age. I know tons of people have it younger even kids. But it is still mind blowing. So the report from my gastro is a CEA marker in my blood and it’s 3.9. The report says it’s moderately differentiated adenocarcenoma arising from villio...
by Basil
Fri Oct 27, 2017 10:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1714
Views: 425147

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I can't speak for anyone but myself but I wouldn't have cared two licks if my ass was sticking out of my gown despite my best efforts. I promise you the nurses would care even less. They wade through shit and puss and all sorts of other nastiness every day. A couple of ass cheeks ain't going to make...
by Basil
Fri Oct 27, 2017 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 13203

Re: Reversal Thread

Well, had my first (pun intended) crappy experience, at the World Series no less! I took my nine year old and we had good seats in a field box along the third base line. The first home run passed about 20 yards in front of us and exited the park just inside the foul pole about 30 yards away. We got ...
by Basil
Wed Oct 25, 2017 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low rectal tumor without LARS?
Replies: 9
Views: 1786

Re: Low rectal tumor without LARS?

Not exactly on point but I was 7 cm from the verge. 90% of my rectum was removed. I had reversal surgery on 9/25 and was back to work in two weeks. Only issue is very minor constipation. I'm fine ar work and all the other things I have to do outside the home.
by Basil
Mon Oct 23, 2017 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent diagnosis
Replies: 22
Views: 4137

Re: Recent diagnosis

Thanks! I appreciate the information. My surgeon told me when I was first dx that if he did surgery only there was a 90% chance of no local recurrence and a 50% chance of a systemic recurrence. Sound about right? If so, does a path complete response prior to surgery help with the local recurrence ri...
by Basil
Sun Oct 22, 2017 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 13203

Re: Reversal Thread

Good luck, hope there are no problems. You may already know this, butt will pass along just in case. Some people keep a change of clothes either in their car of office , or both. Just in case :shock: Good luck, sounds like the prune juice might be the thing to drink. Lee If I'm ever in a situation ...
by Basil
Sun Oct 22, 2017 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent diagnosis
Replies: 22
Views: 4137

Re: Recent diagnosis

I am bumping this because I'm a PROSPECT trial patient newly in surveillance stage. Had a great result - path complete response to six rounds of FOLFOX. Despite the response - docs knew tumor was gone or all but gone prior to LAR - they removed 90% of my rectum and 42 lymph nodes. My understanding w...
by Basil
Sun Oct 22, 2017 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 13203

Re: Reversal Thread

As of tomorrow I'm one month out from reversal. As a reminder, I had 90% of my rectum removed but did not have radiation. I had been using prune juice in the evenings as a system flush, I.e. I empty out at night and then have no BMs or issues the next day. I have have been doing well but worried tha...
by Basil
Fri Oct 13, 2017 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 13203

Re: Reversal Thread

I have mentioned this before but should also reiterate that I was on a trial that skipped all radiation. Surgery and chemo only. From the beginning my docs mentioned this should help with post-reversal bowel function but nobody really knew to what extent. I still don't know either but it's a variabl...
by Basil
Fri Oct 13, 2017 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Thread
Replies: 81
Views: 13203

Re: Reversal Thread

Well, I'm closing in on three weeks post reversal and things have been going very well. My bowel function is not as "normal" as it was pre-LAR, but it's not all that different either. I was suffering from mild constipation after surgery, which is certainly common, so I introduced fiber sup...

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