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by Basil
Sun May 27, 2018 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 45
Views: 11835

Re: Scan scheduled

I logged in after a break because my one year scans are coming up in a couple of weeks. Starting to get that scanxiety. Hope the MRI confirms what you docs believe!
by Basil
Thu Apr 19, 2018 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help dealing with Health Anxiety/Panic
Replies: 7
Views: 1597

Re: Help dealing with Health Anxiety/Panic

This may seem obvious but I rely on Xanax. Never taken it before being diagnosed but I've had a couple of panic attacks in the last year and sometimes feel one coming on. The Xanax does the trick. I also take it before going into MDA for surveillance appointments.
by Basil
Thu Apr 05, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the Chemo Working?
Replies: 6
Views: 1659

Re: Is the Chemo Working?

My onc told me side effects have no correlation to the effectiveness of the chemo.

I did have greatly improved bowel function at about round three. As I hadn’t had surgery yet, my onc said that was a great sign. It was.
by Basil
Sat Mar 03, 2018 8:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety
Replies: 19
Views: 4712

Re: Scanxiety

Before cancer (2017 dx) I had never taken an anti anxiety med before. For scanxiety or other random cancer issues, I lean on Xanax. It works, at least for me. Only issue is it makes me really tired about three hours later. I have Ativan left over from all the anti nausea drugs I got last year. I ne...
by Basil
Fri Mar 02, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal is Over
Replies: 67
Views: 14971

Re: Reversal is Over

To those facing (should be IMO looking forward to) surgery - I was reversed last September. Bowel function is great. No issues day-to-day. Live, work and play without any concern about bathrooms. A lot of folks turn out well.
by Basil
Fri Mar 02, 2018 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety
Replies: 19
Views: 4712

Re: Scanxiety

Before cancer (2017 dx) I had never taken an anti anxiety med before. For scanxiety or other random cancer issues, I lean on Xanax. It works, at least for me. Only issue is it makes me really tired about three hours later.
by Basil
Mon Jan 29, 2018 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???
Replies: 30
Views: 7105

Re: Rectal Cancer - Standard of Care Approach or Neoadjuvant Chemo approach???

My signature tells my story. No radiation has been great for me. Just got to get through the years of waiting for a recurrence.

BTW, my bowel function has been excellent after losing 90% of my rectum. Docs attribute that to not having radiation.
by Basil
Mon Jan 29, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 506
Views: 191552

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Per the below I was dx’d t3,n1,m0. After six rounds of folfox I was t0,n0,m0 - path complete response. Only one datapoint, sure, but there may be some changes on the horizon if the data is good.
by Basil
Mon Jan 29, 2018 9:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Control
Replies: 9
Views: 1753

Re: Control

Lotta free space in Alaska. Should be prime grounds for popping a squat in nature whenever the need may occur.
by Basil
Sun Jan 28, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What's In a Name
Replies: 11
Views: 2450

Re: What's In a Name

Awesome. Enjoy it.
by Basil
Sat Jan 20, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR June 20 2017 passing blood now!!
Replies: 5
Views: 1543

Re: LAR June 20 2017 passing blood now!!

Never thought I would congratulate someone with that diagnosis, but congrats!
by Basil
Sat Jan 20, 2018 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 4053

Re: Tumor gone, cea level of 1

If you are stage iii, chemo significantly decreases tour chance of a recurrence. I’d do it 100 out of 100 times.
by Basil
Tue Jan 16, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goblet Cell Carcinoid
Replies: 7
Views: 1665

Re: Goblet Cell Carcinoid

I would echo the above and get a second opinion at a major cancer treatment center. That’s rare and you’ll want the best expertise in figuring out a “patch work” chemo protocol. The major centers have the expertise.
by Basil
Sun Jan 14, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan timing
Replies: 6
Views: 1314

Re: Scan timing

Scan intervals depend on your chances of recurrence. It’s a good thing to have them spread out. It means your docs don’t think you’ll have a recurrence. If you were more at risk they would see you more often. Take solace in that.
by Basil
Sun Jan 14, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over!
Replies: 52
Views: 8160

Re: Surgery is over!

KathyLynn, Just my own experience, but I had six rounds of FOLFOX instead of radiation, with the plan being six more rounds of chemo after surgery. I had a path complete response after surgery and my surgeon cancelled the last six rounds of chemo. My case was presented to “conference” after surgery ...

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