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by Basil
Fri Jul 28, 2017 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic Surgery
Replies: 52
Views: 7948

Re: Robotic Surgery

I had a robotic LAR on June 14th. I was out of the hospital on June 17th. I had minimal pain, even in the hospital. By the last day, I had not asked for pain meds at all. I currently have a temporary loop ileostomy and am going through chemo. I feel that my surgery was very successful, for what I h...
by Basil
Fri Jul 28, 2017 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic Surgery
Replies: 52
Views: 7948

Re: Robotic Surgery

Well, said awkward as it is to type this, the drs. said, welI I can't remember the exact terminology, but the import is that I have a very tight sphincter. Can barely tolerate a finger exam.
by Basil
Fri Jul 28, 2017 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robotic Surgery
Replies: 52
Views: 7948

Robotic Surgery

Anyone had this. I have a mid-rectum tumor that most mostly killed off with chemo. I'm having robotic surgery Monday that will remove most of my rectum but the surgeon says there's enough to stitch everything back together. He's doing this robotically, which I understand will help some, but it's sti...
by Basil
Fri Jul 28, 2017 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo brain
Replies: 6
Views: 1437

Re: Chemo brain

I'm a trial attorney and struggled with this. Not fun losing your train of thought or not being able to summon the right words when you're in front of a jury or questioning a witness. I've been off chemo a month and its mostly gone away, although I have some residual sluggishness.
by Basil
Sun Jul 23, 2017 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect?
Replies: 24
Views: 8207

Re: What to expect?

Oh, and IMO eastern medicine is useless. This is cancer. Your life is on the line. My advice is to seek the best onc care you can at the best hospital you can get into. And that's a STAT recommendation.
by Basil
Sun Jul 23, 2017 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect?
Replies: 24
Views: 8207

Re: What to expect?

There's something you need to ask about - PROSPECT trial. It's not for everyone and I'm not sure of the requirements, only than it's geared towards stage iii-ers. It's using FOLFOX pre-surgery instead of chemorad as the pre-surgery treatment. Avoids the nasty side effects of radiation issues. I'm on...
by Basil
Sun Jul 23, 2017 8:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I heart FOLFOX
Replies: 21
Views: 6679

Re: I heart FOLFOX

I'm not an expert on these things but I got the call, later in the day I was diagnosed, from a doc saying, "It's good news, there's no mets blah blah blah but we do want you to come in for a MRI for a spot on your liver." Scared the hell out of me. Did MRI and doc called two days later sai...
by Basil
Sat Jul 22, 2017 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 12567

Re: I need a little hope

No idea on the wait times but - and I may have already said this - but my rec would be to request a consult with dr. George Chang. He's my surgeon and I have a lot of confidence in him.
by Basil
Sat Jul 22, 2017 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pinch me, I must be dreaming.... It was 13 years ago today!!!
Replies: 27
Views: 8180

Re: Pinch me, I must be dreaming.... It was 13 years ago today!!!

I don't understand or believe that numerous oncologists and cancer surgeons were telling you you could die at any moment from a disease that does not kills a person in years or, at worst, months.
by Basil
Fri Jul 21, 2017 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So many questions
Replies: 17
Views: 5717

Re: So many questions

I have been told by the doctors that anything under 1 cm a PET does a poor job of picking it up especially in the liver. They are basing it all off of the two CT scans and an MRI. on her initial CT on 3/3/17 it identified a liver cyst in her, yahoo it was an answer to a prayer that day. On the 7/5/1...
by Basil
Fri Jul 21, 2017 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 359586

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Might ask about the PROSPECT trial if you want to avoid radiation. It gives 6 rounds of FOLFOX instead of chemorad. I am under it and had 80% regression from chemo alone. Now waiting on surgery.
by Basil
Thu Jul 20, 2017 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So many questions
Replies: 17
Views: 5717

Re: So many questions

Tater, sorry you're here. I'm forty with young kids diagnosed stage 3 with lymph mode involvement 3/16/17. Similar initial journey although I don't have any mets. I'm at MD Anderson and was itching to start chemo. My onc told me statistically it doesn't really matter if we start this week or three w...
by Basil
Thu Jul 20, 2017 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about chemo and blood work
Replies: 6
Views: 3031

Re: Question about chemo and blood work

Pretty routine to delay treatment for low blood counts. I delayed my sixth FOLFOX round a week and a half due to low platelets. Onc was not concerned.
by Basil
Thu Jul 20, 2017 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal Surgery (Rectal) post op?
Replies: 12
Views: 4079

Re: Colorectal Surgery (Rectal) post op?

I'm going in July 31. I have a mid-rectum tumor that had 80% regression after six rounds FOLFOX. Surgery is minimally invasive robotic performed by Dr. Chang at MDAnderson. Because I had no radiation, Chang told me there's a 50% chance he will not install a temp bag. That all sounds well and good, r...
by Basil
Wed Jul 19, 2017 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a little hope
Replies: 44
Views: 12567

Re: I need a little hope

I would wait to get into Anderson. I'm there and my docs were not slow, but not overly aggressive into getting to the treatment part. Said it was slow growing thing. I'd think the benefit of md Anderson expertise would be worth a slight delay.

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