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by mhf1986
Wed Apr 05, 2017 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four months in , scared, confused and overwhelmed about how to proceed
Replies: 35
Views: 9356

Re: Four months in , scared, confused and overwhelmed about how to proceed

Hi Kim, Can we sell our paddles and buy an outboard motor? Real question: I asked about Folfirinox back in November and our oncologist poo-poo-ed (no pun intended) the idea. How's it going? Did your onc recommend it or what? DH is on Folfox w/Avastian and it's doing it's thing but I've read that add...
by mhf1986
Sun Apr 02, 2017 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unresectable Colorectal Cancer Liver Mets - New Info
Replies: 2
Views: 1551

Re: Unresectable Colorectal Cancer Liver Mets - New Info

Thank you for taking the time to post this. We were told that they won't go in if they can't get it all. That seems in direct contradiction to reducing tumor burden. Very confused and doing lots of research myself.

Sending you hugs, prayers, and other good tidings.
by mhf1986
Sun Apr 02, 2017 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LOW 'good cholesterol' and CEA levels!
Replies: 4
Views: 1122

Re: LOW 'good cholesterol' and CEA levels!

This is sneaky and it might not work but it has for me...call the imaging center and calmly tell them you need the results faxed to another location. Then give them your/spouse's/friend's Work fax number. Don't tell the center it's not a dr's office, just that the results need to go to fax # XX. I d...
by mhf1986
Sun Apr 02, 2017 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer
Replies: 45
Views: 23880

Re: Proton Therapy for Liver Metastasis from Stage 4 Colon Cancer

The Maryland Proton Therapy Center is open in downtown Baltimore. We have not been given this (or any other option but chemo) by Hopkins so will be discussing on our own after CT scan in May. You can look at their website and request a consultation without a referral. A friend of mine in PA (who is ...
by mhf1986
Mon Mar 20, 2017 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four months in , scared, confused and overwhelmed about how to proceed
Replies: 35
Views: 9356

Re: Four months in , scared, confused and overwhelmed about how to proceed

Hi Sarah, Are you allowed to disconnect the pump? The home health care nurse taught me and after 2 times watching me, she said I was fine to go solo. So that's a time/expense savings for us in that we don't have to go back to the hospital or arrange for the nurse to come to the house. It's a very ea...
by mhf1986
Sat Mar 18, 2017 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four months in , scared, confused and overwhelmed about how to proceed
Replies: 35
Views: 9356

Re: Four months in , scared, confused and overwhelmed about how to proceed

Sarah! You still around? I wanted to share that DH's latest CEA has fallen to 14. Yes, FOURTEEN. It was 114 in September right before surgery and has been going down since he started FOLFOX in late November. It was 31 in February. We had a long talk tonight about HAI, surgery, and such. Thinking abo...
by mhf1986
Tue Mar 14, 2017 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 716568

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hi, This is my first post here. My husband was diagnosed with stage IV CRC at the end of January. He has mets to the peritoneum wall, the omentum, and maybe the liver. The liver mets seem to be on the surface and may actually be on the peritoneum and just crushed up against the liver. He has starte...
by mhf1986
Mon Mar 13, 2017 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four months in , scared, confused and overwhelmed about how to proceed
Replies: 35
Views: 9356

Re: Four months in , scared, confused and overwhelmed about how to proceed

Hi Sarah, we are almost in the exact same place you are. I"m researching, crying, praying, repeat each day while trying to work a little too. Sooooo overwhelming. Do we try for another oncologist as ours seems a little "yep, you got 2 years but have some chemo"? Go to NYC? Talk to a s...

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