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by SarahS
Tue Jun 13, 2017 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 718877

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hi Jess I am so sorry you are having to go through this with your Father,I am from the Uk originally and lost my father to cancer 23 years ago. I think treatment has come a long way since then and it wasn't colon cancer he had, not meaning to scare you, just to let you know I can relate to the feeli...
by SarahS
Sat Jun 10, 2017 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctor recommendations..Georgia
Replies: 4
Views: 1413

Re: Doctor recommendations..Georgia

Hi Missy

We are in Georgia and go to Piedmont cancer center just on the outskirts of Atlanta
The staff are fantastic, the infusion center is bright, clean and spacious. Our oncologist is great and they are affiliated with MD Anderson. I highly recommend them.
by SarahS
Wed Jun 07, 2017 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Larotrectinib at ASCO 2017
Replies: 8
Views: 1886

Re: Larotrectinib at ASCO 2017

According to this article, yes , colorectal is mentioned butt I don't understand the "TRK fusion" part. https://ir.loxooncology.com/press-releases/loxo-oncology-breakthrough-therapy-larotrectinib-demonstrates-76-percent-confirmed-objective-response-rate-in-trk-fusion-adult-and-pediatric-ca...
by SarahS
Sun Jun 04, 2017 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ascites. Peritoneal mets confirmed.
Replies: 34
Views: 10277

Re: Ascites. Peritoneal mets confirmed.

Sorry to butt in on your post LMighty, and wishing you and your Mom all the best, I went through similar with my mother last year Quick question for Maia, and thank you so much for all of your incredibly useful information, As far as you understand, are PD-1 inhibitors better suited towards MSI tumo...
by SarahS
Thu Jun 01, 2017 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What supplements do you take????
Replies: 45
Views: 9715

Re: What supplements do you take????

"1) No one questions the efficacy of chemotherapy, at least as far as I have noticed. " Exactly, How long has 5-fu been the standard treatment for colorectal and several other cancers? decades, nothing new since the 1970s It works, sort of kind of on some people if you're lucky until it st...
by SarahS
Wed May 31, 2017 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What supplements do you take????
Replies: 45
Views: 9715

Re: What supplements do you take????

Lots and lots of supplements, including vitamin D, curcumin, PSK, IP6, cimitedine , beta glucans, ellagic acid and some others that I have forgotten, just as well it is not me taking them. Some are in tablet form , some from food for better bio availability. After being given a "month to live&q...
by SarahS
Wed May 31, 2017 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 718877

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Regan I am so sorry about your husband and yes it is depressing to hear but it's reality and I am sorry you are having to deal with it. I lost my father to cancer when I was 24, last year I lost my mother to metastatic breast cancer, then 2 months later the man I love was diagnosed with stage 4 colo...
by SarahS
Tue May 30, 2017 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got post-surgery results and they aren't good
Replies: 59
Views: 16922

Re: Just got post-surgery results and they aren't good

The "margins" as far as I understand it mean that the tumor was removed along with a small amount of non cancerous tissue so that there was no cancer left in the area where the surgery took place. You want "clear margins" and it sounds as though this is what your surgeon achieved...
by SarahS
Thu May 25, 2017 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 718877

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hi Lena

Thank you , that is so sweet of you, we are eating pizza in our hotel room all set for tomorrow!
I am from England yes , I don't have any family in Manchester thank fully but thank you for thinking of me
I hope all is well with you.
by SarahS
Mon May 22, 2017 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 718877

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hello Melissa That's how I feel, whatever it takes, who ever I have to contact I think there must be something in the air today, becasue we have the blues here too :( On Weds we leave for New York , as a Brit I am very excited even if the trip is for crappy! reasons. We'll have a day for sight seein...
by SarahS
Sat May 20, 2017 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)
Replies: 5
Views: 2858

Re: MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)

Tim that is very encouraging, I'd been reading about your progress not realizing that the trial you are on was the one Tom is referencing here.
It is especially encouraging to read that you had peritoneal response.
Will you be continuing on with this trial or looking now at something else?
by SarahS
Thu May 18, 2017 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)
Replies: 5
Views: 2858

Re: MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)

Tom, thank you so very much for everything that you do I'm actually crying as I type this becasue for the first time in a very long 6 months, I feel like there is some real hope for the future We will be meeting with Dr Segal at MSK next week and I want to ask him about this trial combination in par...
by SarahS
Thu May 18, 2017 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingerprint lost....how bizarre!!
Replies: 14
Views: 2487

Re: Fingerprint lost....how bizarre!!

Hi Judi Yes my husband has lost his fingerprints . He also noticed it when he tried to use his fingerprint to access his phone He has had 8 sessions of Folfox so far, 2 without the oxaliplatin and I think he noticed the fingerprint issue after about 5 sessions, his finger tips are shiny and he has a...
by SarahS
Sun May 14, 2017 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 718877

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Hi Melissa I am sorry to hear that your latest scan was somewhat disappointing for you, I know the expectation we have before a scan especially if CEA has been dropping That said, it doesn't sound all that bad, I hope you will get some more useful information and a plan for going forward from your o...

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