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by Maelleous
Wed Jun 21, 2017 4:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been a while / updates / clnical trial
Replies: 4
Views: 1241

Re: Been a while / updates / clnical trial

Yes that is the one! Sorry I was thinking 1500 but it is the 1400 plus the other. Thank you about the cheo - I have been told that by a few doctors, I am a bit short in comparison but holding out hope! I know most people get chemo/radition first, but since I was staged 2 instead of 3C prior to surge...
by Maelleous
Wed Jun 21, 2017 4:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Qeustions
Replies: 5
Views: 1400

Re: Reversal Qeustions

Thanks everyone.

@del -- I was told by the Research Oncologist at UPMC said would be able to see on the CT scans local reoccurance if it was a certain size, but that does seem to fly in the face of what I have been told other times.
by Maelleous
Tue Jun 20, 2017 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been a while / updates / clnical trial
Replies: 4
Views: 1241

Re: Been a while / updates / clnical trial

Thank you for the link Maia! I "can" afford it so don't want to take a seat from someone who can't. It hurts financially but I only have two trips left and I have already bought and paid for them. The one I am doing is the INO-1500. I am in arm 6 (which I hoped for) that gives me the high ...
by Maelleous
Tue Jun 20, 2017 4:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Qeustions
Replies: 5
Views: 1400

Re: Reversal Qeustions

Edit: I know what the flex sig is.
by Maelleous
Tue Jun 20, 2017 4:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Qeustions
Replies: 5
Views: 1400

Reversal Qeustions

I get my last CT scan for the clinical trial I am in on July 6th, praying all is still clear, and then I will have my reversal done. I asked he doctor about a colonoscopy etc and he responded: "Since you can't be prepped a follow colonoscopy would be done after stoma closure. Prior to closure a...
by Maelleous
Tue Jun 20, 2017 4:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery is over
Replies: 35
Views: 9937

Re: Surgery is over

Good luck! Keep walking, your sig bio sounds similar to mine (except I didn't do the chemo first.) The ileostomy takes a while to get used to, but after having mine for 8+ months, you get more used to it than you would think. Will be happy to have it reversed though!
by Maelleous
Tue Jun 20, 2017 4:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Been a while / updates / clnical trial
Replies: 4
Views: 1241

Been a while / updates / clnical trial

Hey all -- it has been a few months since I have posted. I had to take a break from reading about cancer stories for a while, as I just coudn't mentally handle it for a while. I'm 36 as of this part march. I had rectal cancer, ended up being stage 3C as the lymph nodes did not show anything pre-surg...
by Maelleous
Tue Jun 20, 2017 4:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 folow up CT scan
Replies: 8
Views: 2096

Re: Stage 1 folow up CT scan

I was stage 3C and had to stop chemo after 3 rounds due to cardiac arrest from the chemo and they only had me doing CT scans every 6 months. I had the arrest this past December 31s and because I entered a clinical trial for a vaccine got one in March, and will be getting one on July 6th and then won...
by Maelleous
Thu Feb 23, 2017 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaccine Clinical Trial
Replies: 1
Views: 602

Vaccine Clinical Trial

I was finally able to find and (looking positive) to get into a vaccine clinical trial. For those of you who hadn't seen my previous posts, I had 3 rounds of chemo and cardiac arrest on the 3rd round in December. I have been searching for other options to avoid reoccurance but the docs stated radiat...
by Maelleous
Mon Feb 06, 2017 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not allowed to do chemo / nervous
Replies: 19
Views: 3801

Re: Not allowed to do chemo / nervous

Flying up to Duke for a consultation at the end of the week after this one. Hopefully I can get something good going!
by Maelleous
Fri Feb 03, 2017 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not allowed to do chemo / nervous
Replies: 19
Views: 3801

Re: Not allowed to do chemo / nervous

Thank you for that post Painintheass, I really needed to hear that right now! Got a second opinion from Moffitt yesterday. The doc here was good, but basically said the same thing as Cleveland Clinic - said they met with a panel because my case is rare and unique. Said chemo wouldn't be worth the ri...
by Maelleous
Wed Feb 01, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight gain post surgeries
Replies: 10
Views: 4377

Re: Weight gain post surgeries

The only issue with that is that I can't do chemo because of my cardiac arrest so my risk of reoccurrence is higher... worried if I eat like crap I will make my reoccurrence risk even higher. Trying to decide if weight or healthy food is more important. Thanks for the response!
by Maelleous
Wed Feb 01, 2017 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight gain post surgeries
Replies: 10
Views: 4377

Weight gain post surgeries

Hi all, Prior to my rectal resection I weighed about 195lbs (I'm 6''4''), which is about 10lbs more than I had traditionally weighed. I switched to an ultra healthy diet once I suspected I had cancer and exercised super heavily and dropped to about 185 in two months. After the resection I lost about...
by Maelleous
Wed Feb 01, 2017 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not allowed to do chemo / nervous
Replies: 19
Views: 3801

Re: Not allowed to do chemo / nervous

I would be happy to hear the names Ipas. The cardiologists don't want me on any supplements until after I get my ICD. I was able to get in early (yesterday) to the EP doctor. Apparently once you have Sudden Cardiac Death (I was technically dead for almost 10 minutes I have learned) that your risk, e...
by Maelleous
Wed Feb 01, 2017 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 days post reversal
Replies: 8
Views: 1450

Re: 3 days post reversal

I've been reading about reversals (hopefully doing mine in a few months) and unfortunately it does seem to have a lot of issues, esp for the first few weeks immediately after. I have been reading stories on the Inspire webiste about people with ostomies, they have a ton of posts on that very subject...

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