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by DAS43
Sat Dec 16, 2017 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: At Slight Crossroads and NCT01174121
Replies: 15
Views: 3109

Re: At Slight Crossroads and NCT01174121

I just had my follow up there. It is working great for me. I will be praying for great results for your wife
by DAS43
Thu Dec 14, 2017 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

:D Very good news today! The tumor in my lungs has remained the same size but is fading. The Dr thinks it may now be scar tissue left by the dead cancer cell. I will come back in 3 months for test. I am so glad that the Lord brought me here for treatment. Thank you to all of you that have kept me in...
by DAS43
Fri Sep 15, 2017 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

DH2Sleen wrote:
DAS43 wrote::D
Had my follow up at NIH today. The tumor has shrunk to 49.8% very happy and feel blessed. My next follow up will be in December.

Awesome!!!!!! So you are officially a Partial Responder now?

Yes I am :D
by DAS43
Thu Sep 14, 2017 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

:D
Had my follow up at NIH today. The tumor has shrunk to 49.8% very happy and feel blessed. My next follow up will be in December.
by DAS43
Fri Jul 14, 2017 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

:D. Great news Celine! Can I ask who your new fellow is? I received an email and found out I will have new research nurse when I go back. Kinda sad over that I really loved my nurse she was great!
by DAS43
Sat Jul 01, 2017 6:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

Sleen wrote:Way to go, DAS!!! That's fantastic news.
Got any scoop on the new immunotherapy fellows? I heard the new ones rotated in this week. :)

Celine


New fellows start Monday. But that is all I know.
by DAS43
Thu Jun 29, 2017 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

sdino wrote:Das43, can u supply more info ? Are u MSS/MSI, or kras mutant or not ? A little morphology would help us all.


I know that I am kras wild type and mss. Unfortunately that is all I know.
by DAS43
Thu Jun 29, 2017 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

Congratulations on your success. Think that calls for some celebrating.

Lee[/quote]
Yes it does!
by DAS43
Thu Jun 29, 2017 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

:D very happy today with my visits to NIH. Tumor continues to shrink and is now 38% smaller. The pulmonary embolism is also smaller but unfortunately still there. I will continue to be on a blood thinner for 3 to 6 months. Next visit will be months.
by DAS43
Sun Jun 18, 2017 6:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

jdepp wrote:I had a scan and met with my doctors today. Progression everywhere, so I'm now off the trial. Best wishes to DAS43 and everyone. /jdepp


Jdeep so sorry to read this. Did NIH have any suggestions on what you should try next?
by DAS43
Thu Jun 01, 2017 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

My ct scan shows 37% tumor shrinkage! Yes!!!!!! I hope the pulmonary embolism gets resolved soon! What do you mean with the last on getting Keytruda? Are they changing the protocol? Oh, hope you update your fellows in other venues with your good news... *hint* :) Yes they are changing the protocol ...
by DAS43
Thu Jun 01, 2017 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

My ct scan shows 37% tumor shrinkage! Very happy with that. I however have a small pulmonary embolism. They started me on xalto and I will go back in a month for another scan. No brain MRI said that was mis scheduling. So that made me happy. A little worried about the pulmonary embolism but I have n...
by DAS43
Wed May 24, 2017 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

Does anyone know if you have to show chemo resistance to qualify for this trial? DH had folfox and finished up last summer. NED for a bit but not has about 5 lung mets. As long as DH has had oxaliplatin/irretican he can be considered. There has to be at least 2 tumors one must be at least 1cm and b...
by DAS43
Wed May 24, 2017 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

Jdepp Please stay positive, some are shrinking! Remember sleen also had a tumor grow and they were able to treat it and she is now ned. I go next Wednesday for a ct scan and a brain MRI. Not sure why they are repeating the brain MRI. This will be the 3rd. They said the last 2 were clear. I thought i...
by DAS43
Thu Apr 20, 2017 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 625
Views: 218230

Re: TIL Immunotherapy at NCI

At NIH today for 3rd Keytruda tx and results of ct scan yesterday. The CT scan shows graying around the cancer tumor. My "fellow" said it's hard to tell but the cell may of shrank a small amount. No new tumors. All very good news to me. :D

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