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by Canada777
Thu Feb 15, 2018 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 months NED after 5 years stage IV
Replies: 13
Views: 349

Re: 9 months NED after 5 years stage IV

Congrats! Stories like yours give me hope :)
by Canada777
Thu Feb 01, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 10
Views: 333

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

HI - DH had Crohn's for about 20 years prior to cancer diagnosis. Unfortunately he did his yearly colonoscopies and still got to stage IV undetected by the colonoscopies. When it was time for surgery he took the permanent ileostomy because of the history of Crohn's and it has made things a lot easie...
by Canada777
Thu Jan 11, 2018 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 778

Re: Question for Canadians re genomic testing

We've lost the copy of the consent paperwork....but i'm pretty sure this is the study info:

https://clinicaltrials.gov/show/NCT0290 ... ctlocation
by Canada777
Thu Jan 11, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 778

Re: Question for Canadians re genomic testing

We are in Ontario. MSS/MSI testing was done before we had asked about it - so maybe standard for stage 4? A few months ago he was approached asking if he wanted to participate in a study that would take some of his already resected tumor sample and do a bunch of testing on it to get more details abo...
by Canada777
Fri Dec 29, 2017 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPECERS - subsequent surgery to remove a small spot?
Replies: 2
Views: 287

HIPECERS - subsequent surgery to remove a small spot?

DH had HIPEC a little over a year ago. About nine months later a cancerous spot showed up on his pelvis - no where else. It's been kept stable with FOLFIRI for about 3 months and he was told after another 3 months if it stays stable surgery is a possibility to have it removed. Anyone have a similar ...
by Canada777
Wed Dec 20, 2017 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adding a baby to stage iv cancer life: Looking for real-life experiences
Replies: 13
Views: 1880

Re: Adding a baby to stage iv cancer life: Looking for real-life experiences

Hi Kara! Thanks so much for sharing. Fostering sounds like a great idea! I'd never thought of it actually. I hope you continue to stay NED and have a great experience fostering :)
by Canada777
Thu Dec 14, 2017 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adding a baby to stage iv cancer life: Looking for real-life experiences
Replies: 13
Views: 1880

Re: Adding a baby to stage iv cancer life: Looking for real-life experiences

Hi - I was hoping to revive this thread and wondering if the original poster had followed through with the surrogate or if anyone else is in a similar situation with stage iv diagnosis yet still planning to go through with starting a family? It's really hard to find blogs or stories....its seems to ...
by Canada777
Sat Dec 09, 2017 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets
Replies: 7
Views: 626

Re: Peri mets

I second the need to get a HIPEC consult ( maybe even a couple). Dh had peritoneal mets from the beginning (2 years ago now) and the third surgeon we approached was the one that said yes to the surgery. From what I remember from the research I read it's a curative surgery for 35-40% with peritoneal ...
by Canada777
Wed Oct 11, 2017 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Sort Of...Things Come In 5's - Appendiceal + Prostate Cancer - Update
Replies: 23
Views: 1696

Re: O/T...Sort Of...Things Come In 4's - Appendiceal (Appendix) Cancer - Not Me

Hi - so sorry to hear about your friend. My partner has appendix cancer with peritoneal mets. He did HIPEC. At first they thought it was colon cancer...only during surgery did they realize it was likely from appendix. Later testing proved that assumption correct. We've been told that because not muc...
by Canada777
Mon Oct 09, 2017 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 1146

Re: Looking for HIPEC Experiences

Hi - Just wanted to let you know my partner had HIPEC. Unlike your situation we were told to consider it from the get go. It's my understanding that a surgeon won't do hipec unless they feel they can get all the cancer. But definitely speak with a surgeon NOT just an oncologist. The surgeon will kno...
by Canada777
Sun Sep 24, 2017 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it possible for a Stage IV to have no met in LN at all?
Replies: 12
Views: 997

Re: Is it possible for a Stage IV to have no met in LN at all?

Hi - my partner has stage IV. Mets to the peritoneum but no lymph nodes involved yet. I think they checked 20ish lymph nodes during his surgery and none were positive for cancer. I'm not sure if this is a good or a bad thing...but we choose to believe it's a good thing no lymph nodes are involved. O...
by Canada777
Fri Sep 01, 2017 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 2182

Re: ANY Pros/Cons Vitamin D3 ?

We both take d3 5000 iu a day and live in Ontario with periods of the year with very little chance to get sunlight naturally. No issues for either of us.
by Canada777
Fri Sep 01, 2017 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swollen Pelvic Lymph Node?
Replies: 9
Views: 2461

Re: Swollen Pelvic Lymph Node?

Hi Chelita - similar situation to you. The spot came back positive for cancer after the biopsy. Apparently it's a spot not a node. We got a PET too and it seems to be the only area that lit up on the PET...so surgery is still possible but need chemo for awhile first. Hope all goes well for your mom ...
by Canada777
Thu Aug 10, 2017 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help understanding statistics and studies
Replies: 4
Views: 802

Help understanding statistics and studies

Hi all - I know that I need to interpret survival statistics cautiously as everyone is different and treatment is always improving. However, what I'm curious about is the studies when they compare group A who gets chemo only and group B who gets chemo and surgery. In the conclusions they usually say...
by Canada777
Sun Jul 30, 2017 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swollen Pelvic Lymph Node?
Replies: 9
Views: 2461

Re: Swollen Pelvic Lymph Node?

Hi Chelita - he did have the biopsy. It was a relatively quickly and simple procedure and very low in the pelvic area. We get results this week and i'll post to let you know.

Just curious...what is an EUS?

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