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by Canada777
Mon May 21, 2018 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Question for Caregivers
Replies: 20
Views: 692

Re: A Question for Caregivers

Hi crikklekay - try not to freak out. Just take it one step at a time. In the beginning I went to almost all DH's appointments mainly so I could get an army load of questions answered. I literally would take a piece of paper with a list of several questions. Every few weeks I would have new question...
by Canada777
Sun May 20, 2018 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My daughter is facing colon removal for non-cancerous reasons
Replies: 8
Views: 403

Re: My daughter is facing colon removal for non-cancerous reasons

Hi - DH has had chron's since he was a child and diarrhea was more his issue. Constantly running to a toilet. He has had his entire colon removed now. He is much happier this way. The bag is manageable for him and he is able to gain weight again. He was 30 when he had the surgery. Oddly enough we we...
by Canada777
Sun May 20, 2018 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Question for Caregivers
Replies: 20
Views: 692

Re: A Question for Caregivers

You are not alone. It happens to me too. DH was diagnosed stage IV 2.5 years ago. In some respects I'm lucky because he stills functions quite well...but some days I'm fine and others a switch flips and I'm not and I'm crying about all that isn't fair. I find it usually happens most when I'm alone a...
by Canada777
Wed May 16, 2018 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 1364

Re: How can I help my family watch me die?

I'm impressed by how well you seem to be handling everything planning wise and how much you have already accomplished. You've already made some things easier on your family. All I can really offer you is my thoughts as a caregiver (DH has stage 4 cancer) and what I would appreciate when it is my tim...
by Canada777
Wed May 16, 2018 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal CA secondary to Colon CA
Replies: 5
Views: 551

Re: Peritoneal CA secondary to Colon CA

I agree with all miss molly's comments about the port. My DH has had both a picc line and now a port. Although the picc line is easy to remove when chemo is over it was overall more annoying. It's has to be covered all the time when you shower and he was told no heavy lifting while it was in. It als...
by Canada777
Fri May 04, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loco-Regional Hyperthermia
Replies: 4
Views: 632

Re: Loco-Regional Hyperthermia

Thanks for the link CRGuy. It is similar information to what we received. Plastikos- Yes we are doing it in conjunction with standard treatment. He's had 2 sessions of it so far with no negative side effects. Another CT in about 8 weeks to see if it helped. I'll post the results in case anyone is in...
by Canada777
Fri May 04, 2018 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV - Off chemo two years
Replies: 4
Views: 1018

Re: Stage IV - Off chemo two years

Thank you for sharing this! I always love these stories. I hope for continued success for your DH.
by Canada777
Mon Apr 23, 2018 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loco-Regional Hyperthermia
Replies: 4
Views: 632

Loco-Regional Hyperthermia

Has anyone heard much about loco- regional hyperthermia or tried it? DH will be trying this with FOLFIRI for the next few cycles too see if it helps shrink an isolated recurrence to his pelvis. There is some data this can be effective but not much...so since it can compliment the chemo he's already ...
by Canada777
Sat Apr 07, 2018 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fertility Post FOLFOX
Replies: 5
Views: 548

Re: Fertility Post FOLFOX

Hi - to answer your question we were told wait two years after stopping chemo before trying to conceive.

I also sent you a pm too :)
by Canada777
Fri Mar 16, 2018 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling ALL Colorectal CANUCKS !
Replies: 321
Views: 67064

Re: Calling ALL Colorectal CANUCKS !

Not sure where in Canada you are...but if you are in ontario Google "service Ontario accessible parking pass" and the form comes up. Most is mobility related reasons but the final option (part g) if I Remember correctly is where you may qualify - it refers to " functional" needs....
by Canada777
Tue Feb 27, 2018 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My 35 year old wife got diagnosed with Stage IV colon cancer with peritoneal mets
Replies: 16
Views: 1769

Re: My 35 year old wife got diagnosed with Stage IV colon cancer with peritoneal mets

Hi - I am the spouse as well and my husband has appendix cancer with peritoneal mets. He was 30 when he did FOLFOX ( 6 months -12 treatments) and then hipec - and we had to push to get hipec ( his pci was 20). I recommend hipec if it's available. It's a big surgery but he coped with it reasonably we...
by Canada777
Thu Feb 15, 2018 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 months NED after 5 years stage IV
Replies: 15
Views: 1602

Re: 9 months NED after 5 years stage IV

Congrats! Stories like yours give me hope :)
by Canada777
Thu Feb 01, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 1222

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

HI - DH had Crohn's for about 20 years prior to cancer diagnosis. Unfortunately he did his yearly colonoscopies and still got to stage IV undetected by the colonoscopies. When it was time for surgery he took the permanent ileostomy because of the history of Crohn's and it has made things a lot easie...
by Canada777
Thu Jan 11, 2018 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1428

Re: Question for Canadians re genomic testing

We've lost the copy of the consent paperwork....but i'm pretty sure this is the study info:

https://clinicaltrials.gov/show/NCT0290 ... ctlocation
by Canada777
Thu Jan 11, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for Canadians re genomic testing
Replies: 20
Views: 1428

Re: Question for Canadians re genomic testing

We are in Ontario. MSS/MSI testing was done before we had asked about it - so maybe standard for stage 4? A few months ago he was approached asking if he wanted to participate in a study that would take some of his already resected tumor sample and do a bunch of testing on it to get more details abo...

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