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by AppleTree
Sat Apr 13, 2019 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 1042

Re: O/T - my furbaby has cancer....hard last weekend

You have written a sweet tribute. Enjoy you end time together and know that you are doing the right thing so she can go forward in peace and love instaid of pain and anguish.
Sending Hugs.
by AppleTree
Sat Apr 13, 2019 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 28
Views: 2300

Re: Stage 4 hope to share

It is always good to read what works for other people, because we are all different. I take multi vitamin, Vit D and Vit C. Very basic. I eat basically what I feel like. Most things will give me the runs within 2 hours anyway, so I figure I should at least enjoy eating if I have to suffer the conseq...
by AppleTree
Sat Apr 13, 2019 1:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe back pain
Replies: 20
Views: 2496

Re: Severe back pain

Shortly after surgery I had very bad back pain. Turned out the pain med I was taking was masking the pain for urinating. My lower back hurt because I had a bladder infection and needed an antibiotic. Sometimes we jump to the worst conclusions. I totally understand that. But see if you can get a simp...
by AppleTree
Wed Apr 10, 2019 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1599

Re: What options after chemo no longer effective?

2nd opinion! When my lung met showed up my onc wanted to try different chemos, up the scans schedule and see what was effective. Well, what if it was not effective? I wanted it out! Oncologists are not surgeons. I got a referral to Mass General surgeon from my PC and he did Lung VATS surgery right a...
by AppleTree
Wed Apr 10, 2019 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 fu and oxaliplatin
Replies: 16
Views: 1309

Re: 5 fu and oxaliplatin

I did 12 rounds of Folfox. My platelets did not always co-operate, so toward the end it was usually every 3 weeks instead of every other. I started at the 100% strength and after maybe 5(?) treatments, dropped it down to 80%. I knit all through chemo (although very slowly) and most every day walked ...
by AppleTree
Fri Mar 29, 2019 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 141
Views: 18025

Re: My CRC with liver mets journey

All sounds like good updates. Safe travels home. I like to time my pain meds before car trips...just to cover all my bases. Speedy recovery.
by AppleTree
Fri Mar 29, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well this is interesting
Replies: 16
Views: 1225

Re: Well this is interesting

Sounds like they took care of you fast and efficiently! Speedy recovery. I always beg to stay an extra day so the hospital pharmacy can fill my RX, etc.
by AppleTree
Sat Mar 23, 2019 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 6
Views: 461

Re: Radiation induced menopause

This happened to me too. Get a remote controlled fan!!! On. Off. On. Off...all without having to get up, out of bed. I tell all my friends...a remote controlled fan is your best friend during this time!
by AppleTree
Sat Mar 23, 2019 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 3525

Re: Starting immunotherapy next week

Just a note about traveling...because my rectum was removed, I sometimes am hit hard with the runs, when out and about. I always wear Depends when I go out. I have a zippered bag that I keep extra leggings, 2 Depends, wet wipes, 2-3 plastic bags, a pair of socks and a few RX pills for anti-diareah i...
by AppleTree
Wed Mar 20, 2019 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12th Round + Rang the Bell
Replies: 11
Views: 1242

Re: 12th Round + Rang the Bell

Congratulations on the 12th! I had alot of advice from well meaning friends/family who read 8 is an option sometimes in Europe. But my DR wanted me to do all 12, so I stuck with it. It took me time to get used to being off chemo because I lost so much weight and was very week... and they take away t...
by AppleTree
Wed Mar 20, 2019 10:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s surgery is tomorrow
Replies: 5
Views: 495

Re: Mom’s surgery is tomorrow

My thoughts are with you. I hope everything goes according to plan and she has a good recovery.
by AppleTree
Mon Feb 25, 2019 12:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is a ileostomy reversal worth it for a 60 year old guy?
Replies: 13
Views: 1162

Re: Is a ileostomy reversal worth it for a 60 year old guy?

I have no bowel and the DRs had to cut into my sphincter muscles to get clear margins. Due to an infection, I had my reversal very soon. I do remember the 1st 2 weeks of very painful clustering, but they gave me strong pain killer and told me to try to time things around that. But it hurt like crazy...
by AppleTree
Sun Feb 24, 2019 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 15
Views: 1364

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

6.6 mm met in lung. They tried to talk me into chemo and watching to see how it reacts. No thanks! Had it removed by VATS at Mass General and THEN did the follow up chemo. Since then, my scans are clear. I had no idea how much chemo would affect me. I went from 150 to 103 pounds. I am happy I had th...
by AppleTree
Sun Feb 24, 2019 11:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years Today!
Replies: 22
Views: 1733

Re: 10 Years Today!

What an amazing story...and that you were so quiet about it that so many of your friends did not know. 10 years is a wonderful milestone. Thank you for sharing your story.
by AppleTree
Sun Feb 24, 2019 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared
Replies: 11
Views: 979

Re: Scared

I was so sick in Austria. My doctors asked if I had made arrangements for my son. I think other countries are just straight up frank. Not that they were saying I was dying, but that I would have less stress knowing these things were taken care of. And you know what...whatever you set up, you can cha...

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