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by brigita
Sun Jan 18, 2015 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Split-Dose Bowel Prep: What's the Logic?
Replies: 1
Views: 362

Split-Dose Bowel Prep: What's the Logic?

I'm prepping for my every-three-years follow-up colonoscopy this week and have to do the PEG (GoLytely) split-dose prep.

Does anyone know what the upside is to doing a split dose vs. all at once? Because the only thing better than bowel prep is getting up at 2am to finish it. :roll:
by brigita
Sun May 18, 2014 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: not a fan of the "new normal"
Replies: 64
Views: 4869

Re: not a fan of the "new normal"

I prefer the phrase "new reality." There's nothing normal about this "new normal."

That said, I successfully ran a marathon last November. Neuropathy and my stupid bowels aren't the boss of me. :)
by brigita
Sun May 18, 2014 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Accupuncture and Neuropathy
Replies: 4
Views: 511

Re: Accupuncture and Neuropathy

While I enjoyed acupuncture overall it did nothing for my neuropathy (or infertility). :-(
by brigita
Wed May 14, 2014 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tinnitus and Neuropathy what a lovely cocktail!
Replies: 12
Views: 758

Re: Tinnitus and Neuropathy what a lovely cocktail!

I also developed tinnitus after chemo *and* was told that it wasn't a side effect. Uh huh. :-/
by brigita
Fri Mar 14, 2014 5:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Having babies after chemo
Replies: 19
Views: 3330

Re: Having babies after chemo

I tried IVF after chemo/radiation/surgery. Despite my having my period and "feeling" fertile, my ovaries refused to play ball. :-(

(Just my one data point.)
by brigita
Wed Dec 04, 2013 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospital Bill Rant... and an idea
Replies: 16
Views: 1128

Re: Hospital Bill Rant... and an idea

I wonder- are there any agencies that help cancer patients navigate the billing/ insurance nightmare? If not, there should be! Does anyone know if this kind of thing exists? Try The Center for Patient Partnerships--they have law students (based right here at UW Madison!) volunteering their services...
by brigita
Wed Dec 04, 2013 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy
Replies: 15
Views: 1327

Re: Neuropathy

My CIPN spiked about 6 weeks after finishing FOLFOX. The bad news is that was just over five years ago. :cry: The good news is that the shooting pains & burning are mostly manageable with Gabapentin (1800mg/d). :) The GREAT news is that I completed a full marathon last month despite it all. :D
by brigita
Wed Sep 04, 2013 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 691
Views: 144888

Re: For Stage III's: NED for how long now?

I've been too superstitious to post in this thread until now: I celebrated my 5 year anniversary of completing chemo a few weeks ago. Between that and my complete response to radiation, I'm comfortable saying it should be smooth sailing from here on out. In other news, I'm running my first marathon ...
by brigita
Mon Aug 12, 2013 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy after folfox
Replies: 11
Views: 1436

Re: Neuropathy after folfox

Not to be a buzzkill, but I've had my CIPN (chemo-induced neuropathy) for nearly five years. It gets better...unless it doesn't. I would suggest trying acupuncture (the acupuncturist that works in our cancer clinic said that she mine is the most stubborn case she's ever seen and that she might have ...
by brigita
Tue Jun 18, 2013 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tooting My Own Horn (toot toot!)
Replies: 14
Views: 1101

Re: Tooting My Own Horn (toot toot!)

Thx, everyone! I'm actually wondering if I need to have my head checked as I do some initial googling about marathon training plans... ;)

Best to all of my chemosabes!
by brigita
Sun Jun 16, 2013 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tooting My Own Horn (toot toot!)
Replies: 14
Views: 1101

Tooting My Own Horn (toot toot!)

Hey all--Just wanted to let you know that I've had chemo-induced neuropathy for nearly f̶o̶u̶r̶--oops, FIVE!--years but I didn't let it stop me from running my first half marathon! Finished 13.1 miles in 2:10:00 yesterday. Feeling pretty bad @$$ (and *wicked* pooped)! Just another day of giving canc...
by brigita
Sun Jun 16, 2013 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: annoying ringing in ears
Replies: 12
Views: 1271

Re: annoying ringing in ears

I started noticing tinnitus in both ears about three years after finishing treatment. They gave me a head MRI & tested my hearing--all came back normal.

Don't know if this was from FOLFOX or attending too many rock shows in my hipper days. ;)
by brigita
Tue Apr 16, 2013 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nutrition/lifestyle changes
Replies: 9
Views: 772

Re: Nutrition/lifestyle changes

I was a 10-year vegetarian when I was diagnosed. Since that obviously wasn't the answer [for me], I now eat meat & avoid processed foods.
by brigita
Tue Jul 24, 2012 12:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fighting Neuropathy
Replies: 18
Views: 1697

Re: Fighting Neuropathy

I've had Oxi neuropathy for nearly four years (fingertips but mostly feet & legs). I've tried just about everything under the sun to no avail, so the best advice I can give is what my onc told me: I'll get better...unless it doesn't. :roll:
by brigita
Mon Jun 18, 2012 12:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: You Know You're a CRC Veteran When...
Replies: 32
Views: 2314

You Know You're a CRC Veteran When...

...you misread "office supplies" as "ostomy supplies." :roll:

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