Search found 71 matches

Go to advanced search

by keepcalmcarryon
Sat Aug 18, 2012 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My life is surging ahead - lots happening
Replies: 13
Views: 1285

Re: My life is surging ahead - lots happening

I had a hard time lying still on the proton machine. So they gave me a fentanyl lollipop just before treatment treatment and it helped a lot. I was already on pain meds but the lollipop was necessary. Hopefully you won't need it but thought you might want to know just in case.
by keepcalmcarryon
Sat Jul 14, 2012 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gaelen update - TUESDAY 7/17 UPDATE
Replies: 108
Views: 9329

Re: Gaelen update

I've been dreading hearing this
I always read her postings first. They were so informative, well written, and straightforward. I wish I could thank her for educating me and undoubtably many others. May her death be easy and pain free, as she wished it.
by keepcalmcarryon
Sun Mar 04, 2012 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: erbitux rash-- do most people get?
Replies: 5
Views: 2067

erbitux rash-- do most people get?

I asked my onc about pretreating erbitux with antibiotics. He said there was no point in using an antibiotic unneccesarily and to wait to see if I got the rash. He added that only 20% of people got the rash. He also said there was no point seeing a dermatologist until I had the rash. I have extremel...
by keepcalmcarryon
Sun Mar 04, 2012 10:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chronic Pain
Replies: 6
Views: 1562

Re: Chronic Pain

Try methadone. It's the only narcotic known to specifically treat nerve pain. It was amazing changing from morphine to methadone. My pain scale on morphine was 5 or 6 on an average day. Now it's 1 to 2 most days.
Good luck!
by keepcalmcarryon
Tue Feb 28, 2012 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those with neuropathy, what shoes do you wear?
Replies: 33
Views: 32869

Re: For those with neuropathy, what shoes do you wear?

I really like my Timberland hybrid sneaker/hiking shoe. I know the name of one model is Lionhead. There are similar models. The are very breathable, supportive, absolutely waterproof. not too pricey, I think about $70
by keepcalmcarryon
Thu Feb 23, 2012 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad scan
Replies: 3
Views: 792

Bad scan

I just got my PET scan results. Everything is worse : lungs, pelvic wall, uterus. No new areas, at least. They're already planning proton therapy to the uterus. Any suggestions for treatment? I've already had xeloda, oxali, irinotcan, aavastan. I'm kras ras wild but have been avoiding erbitux due to...
by keepcalmcarryon
Fri Feb 10, 2012 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cancer back have a pelvic tumour
Replies: 3
Views: 967

Re: cancer back have a pelvic tumour

Ive had a tumor on my pelvic sidewall for years. The first surgery could not locate it. The second found it hidden behind a mat of blood.vessels and lymph nodes, too dangerous for removal. But I had Proton therapy which seems to have been effective. If theres a Proton center near you its definitely ...
by keepcalmcarryon
Wed Jan 04, 2012 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP!! + 12/5 BRIEF UPDATE
Replies: 105
Views: 7793

Re: HELP!!

I am so Sorry. You have been such a source of warmth and strength on this board. I hope you can feel all the love and strong wishes. Somehow you will have to figure out what's best for YOU. As others have said, a counselor might help you to work things out.
by keepcalmcarryon
Thu Nov 10, 2011 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: periods
Replies: 26
Views: 1692

Re: periods

I stopped having my period in 2007, when I was 44 and first diagnosed. No symptoms other than the end of periods. Ok, fast forward to today. My horrible pelvic lymph node decided that squashing my left sciatic nerve, paralyzing my foot and causing all sorts of fun pain, wasn't enough. Now its crawli...
by keepcalmcarryon
Sun Sep 25, 2011 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Venting! Drs office and their staff!!!!!
Replies: 28
Views: 2226

Re: Venting! Drs office and their staff!!!!!

All of the onc people (med onc, rad. Onc, surgeons (!) , nurses, p.a.'s. ) at the U of Pa are superlative, very, very patient oriented. They remember your name, make appt, always call/email back, AND listen to what you say and are even open to learning from you. But then there's the urology dept. Ve...
by keepcalmcarryon
Tue Sep 20, 2011 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday Keepcalmcarryon!
Replies: 6
Views: 614

Re: Happy Birthday Keepcalmcarryon!

Many, many thanks! I've been a little down thinking this might be my last birthday (the 'lost' four months during a clinical trial allowed a lotion tumor progression, including new ones in my uterus and vagina.) But then both cats snuggled against me. They don't like each other so this was a rare bi...
by keepcalmcarryon
Wed Aug 17, 2011 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deborah Anne passed away today
Replies: 80
Views: 5284

Re: Deborah Anne passed away today

I am so sorry. I cannot imagine your grief, but I hope are comforted by memories of your warrior daughter.
by keepcalmcarryon
Fri Aug 12, 2011 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: do your pets help?
Replies: 26
Views: 1817

Re: do your pets help?

The refrigerator shots gave me a much needed laugh, thanks! They are beautiful. I always had Orange cats in the past, I love them but have 2 adopted greys now. And my brother lives for his Siamese. It really helps being greeted by them when I come home, it would be so sad and lonely if they weren't ...
by keepcalmcarryon
Fri Aug 12, 2011 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: do your pets help?
Replies: 26
Views: 1817

do your pets help?

I am writing this with my cat Tuva holding my hand in her paws as she snuggles and purrs. When I have my blood pressure checked, I think of when I use her as a pillow and get surround sound purrs. My husband's cat Feynman is an amazing nurse cat. When one of us is sick, he sticks to us like velcro. ...
by keepcalmcarryon
Fri Aug 12, 2011 8:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: scared--failed trial, cea soaring, CAT scan today
Replies: 13
Views: 1153

scared--failed trial, cea soaring, CAT scan today

Hindsight is terrible. I wish I hadn't entered the trial. I think it was just 4 months of letting my cancer grow unchecked. Before my proton therapy my cea was 120, then it went down to 75 and now it's 136! So CAT scan today. I'm so afraid of what it will find. Is it back in the pelvis? I think so b...

Go to advanced search