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by lkub
Sun Jun 17, 2018 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma mid-rectum with with signet-ring component, grade 3
Replies: 8
Views: 734

Re: Adenocarcinoma mid-rectum with with signet-ring component, grade 3

It's my husband. He has started home hospice. The doctor thinks he has just days to weeks left. For his sake, I hope it is just days. He is suffering.
by lkub
Fri Jun 15, 2018 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 13
Views: 1188

hospice

My dear T started home hospice on Monday. The oncologist thinks he has days to weeks. He is suffering, so sadly I hope he's right.
by lkub
Mon May 28, 2018 12:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma mid-rectum with with signet-ring component, grade 3
Replies: 8
Views: 734

Re: Adenocarcinoma mid-rectum with with signet-ring component, grade 3

Make sure she sees an oncologist with experience with signet ring cell, as it is especially aggressive and many doctors are clueless about its nature.
by lkub
Thu Feb 22, 2018 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 1374

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

My husband's GI told him for almost 20 years that he was at greater risk for colon cancer and he recommended a colectomy and j-pouch after 10 years. He was getting colonoscopies every 3 years when rectal cancer was found.
by lkub
Sat Feb 17, 2018 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cannot decide whether to do targeted therapy are not
Replies: 2
Views: 487

Re: Cannot decide whether to do targeted therapy are not

Attack it with everything available! My husband's is SRC and it came back with a vengeance.
by lkub
Sat Feb 17, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 14140

Re: any peeps with BRAF mutation on here?

Dear one, I can’t imagine what you’re going through right now. I know it is so hard thinking about losing a life partner, and it must be even harder with children. My heart hurts for you but there is still hope and time if they are treating him. Your hubby sounds like a very strong man. The treatme...
by lkub
Sat Feb 17, 2018 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 14140

Re: any peeps with BRAF mutation on here?

Mrs. Ziggy - I just read this whole thread. My fear is that my husband is just a few months behind Mr. Ziggy. He just had the ureteral stents put in a week ago. He has small pleural effusion, and now bone mets. They had him start FOLFIRI+Avastin on Wednesday after FOLFIRI+Erbitux failed. He's in a l...
by lkub
Mon Feb 12, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell - new thread
Replies: 0
Views: 956

Signet Ring Cell - new thread

There are a few with signet ring cell here, and I thought we could have a place for this doozy. The search tool has been very helpful for information, but it has mostly been from people who have passed away and their caregivers. My signature shows the summary of my husband's journey so far. I know s...
by lkub
Thu Feb 08, 2018 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 1374

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

Yes, there is a link. My husband had UC for almost 20 years. His GI suggested colon removal for the last 10 years because his chances of cancer were increased, and for quality of life.
by lkub
Wed Feb 07, 2018 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet ring cell with mucoid
Replies: 5
Views: 990

Re: Signet ring cell with mucoid

How often was your husband getting his scan/pet and colonoscopy? I am very sorry that his cancer returned :( I’ve spoken with 2 oncologists and one agreed with me that follow up should be done every 3 months for the first year. And maybe every 4 months for the second year. And after every 6 months....
by lkub
Fri Feb 02, 2018 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet ring cell with mucoid
Replies: 5
Views: 990

Re: Signet ring cell with mucoid

My husband has SRC and it IMO it was not monitored closely enough. It's wonderful that his team is vigilant. I see that you joined the small SRC support group on FB. There are success stories there of people pre-stage 4.
by lkub
Thu Feb 01, 2018 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3535
Views: 539617

Re: Wives of husbands with Stage IV Colon Freaking Cancer

I updated my sig with the newest info. After 3 months of FOLFIRI + Erbitux (not fun), his CT yesterday showed growth and spread as well as mets to spine and pelvic bone. He's switching to FOLFIRI + Avastin. We were so surprised because his pain went away. His kidney is backed up because of tumor pre...
by lkub
Thu Nov 16, 2017 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3535
Views: 539617

Re: Wives of husbands with Stage IV Colon Freaking Cancer

I've been reading your stories and I thought I'd introduce myself. My DH is 43 and has had a recurrence. Rectal ca now metastatic. He just started this week on FOLFIRI and will begin Erbitux on Monday. Onc and surgeon agree that he is inoperable at this time. Mets are too numerous and connected to a...
by lkub
Thu Oct 26, 2017 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: so scared
Replies: 12
Views: 1437

Re: so scared

dr. called. stage 4. We don't know much else yet. masses in abdomen and pelvis, but lungs and liver are clear.

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