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by WriterGirl1969
Sun Oct 24, 2021 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy output hydration and kidney damage???
Replies: 4
Views: 2812

Re: Ostomy output hydration and kidney damage???

Given that history of extensive pelvic surgery, have they checked for ureteral strictures due to scar adhesions? (That wouldn't usually account for liver problems, however.) Not sure, but I'll raise that question if they're still having trouble. I haven't heard back from them in a few days, so they...
by WriterGirl1969
Tue Oct 19, 2021 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy output hydration and kidney damage???
Replies: 4
Views: 2812

Re: Ostomy output hydration and kidney damage???

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=58824&p=468260#p468260 Thank you! Super helpful info. I've passed on your notes about blockage and ways to hydrate to my friend. She's hesitant to try out a support group, but I'm hopeful when she sees how much amazing info can be...
by WriterGirl1969
Tue Oct 19, 2021 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda med concerns and timing
Replies: 24
Views: 6459

Re: Xeloda med concerns and timing

Kiter wrote:Thx Tracy, very good to know. Sounds a lot like my starting point too.


That's what I thought, too. Please feel free to ask me any questions I might be able to give input on. The people here are just wonderful, and provide such good information. They truly turned my life around.
by WriterGirl1969
Wed Oct 13, 2021 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mrs. Wiggins is gone!
Replies: 9
Views: 2972

Re: Mrs. Wiggins is gone!

JMRWife wrote:Pathology report: Stage 2, 0/36 nodes, good margins.


Love that you named your tumor Mrs. Wiggins! I named mine Oscar (after the grouch). Glad to hear they got her out of you with clean margins, and that no nodes came back positive. Also glad to hear surgery recovery went well for you. :)
--Tracy
by WriterGirl1969
Wed Oct 13, 2021 8:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy output hydration and kidney damage???
Replies: 4
Views: 2812

Ostomy output hydration and kidney damage???

Hoping the knowledgeable folks here can help me find some info for a friend. They had a recurrence with mets that led to a liver resection, colon resection, complete hysterectomy and gallbladder removal, all in the same session - along with hernia repair and ileostomy. They ended up having to have a...
by WriterGirl1969
Wed Oct 13, 2021 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda med concerns and timing
Replies: 24
Views: 6459

Re: Xeloda med concerns and timing

Question 1: how critical is food with Xeloda and how much food is really needed? Question 2: What's with the "don't exercise after taking" instructions... and is 30 min enough time after taking to address this? Additional Question 3: Has anyone seen an increase in their Nueropathy with Xe...
by WriterGirl1969
Wed Oct 13, 2021 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pissed off with my GI!!
Replies: 16
Views: 6258

Re: Pissed off with my GI!!

My GI was supposed to call me yesterday morning. He didn't call at all and there was no explanation. I emailed his receptionist asking what had happened. I didn't receive a response. Monday, is Thanksgiving so I won't receive a call until at least Tuesday. I can't change doctors because of the doct...
by WriterGirl1969
Sun Jul 25, 2021 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I was in the hospital
Replies: 21
Views: 3984

Re: I was in the hospital

Ugh - so sorry to hear you had to go through that! Sounds awful. Praying you feel better soon.
Hugs!
--Tracy
by WriterGirl1969
Tue Apr 20, 2021 11:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long wait for an echocardiogram and stress test
Replies: 11
Views: 2868

Re: Long wait for an echocardiogram and stress test

Ugh! That is definitely frustrating. I've been finding out due to changes in jobs within our family that insurance coverage is changing also. Where before we'd have a deductible we had to meet but were still covered for basic care, now we're finding most insurance only covers what they call "pr...
by WriterGirl1969
Tue Apr 20, 2021 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 27
Views: 6602

Re: My mum needs prayers

Mercy110 wrote:Thank you all. My mum passed away today. May her rest in peace.

So very sorry for your loss. I pray God will hold your family in His loving arms and give you consolation, rest and peace during this difficult time.
Much love and many hugs,
Tracy
by WriterGirl1969
Tue Apr 20, 2021 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 13
Views: 4230

Re: Anyone on daily Xeloda?

I did Xeloda (oral) as mop-up chemo in 2016. They had me on a 2 week on, 1 week off schedule. After maybe 4 months it began to build up and I had a lot of hand/foot syndrome and fatigue. I went to a 1 week on 1 week off schedule after finding backing and information here on the group that supported ...
by WriterGirl1969
Fri Jun 28, 2019 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 25
Views: 4959

Re: Keytruda Side Effects: bad joint pain

I haven't taken Keytruda myself, but Annie did (BeansMama) and I remember her telling me that her bones just ached terribly, especially in the fall after she'd been getting it for several months. She pushed the doctors and surgeon to set a date for surgery to avoid additional rounds due to the pain....
by WriterGirl1969
Fri Jun 28, 2019 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 1787

Re: Mop up chemo question

Thank you Tracy !! That was a very informative response and I really appreciate that you took your time to share your experience. :) I am just a little overwhelmed with everything right now, deep inside I was hoping everything would be over after chemoradiation and surgery but it is what it is..we ...
by WriterGirl1969
Wed Jun 26, 2019 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 1787

Re: Mop up chemo question

Hi everyone, My husband just got his path report from the APR surgery he got 2 weeks ago for rectal cancer. So his tumor was completely gone due to chemorad and everything was clear EXCEPT one positive lymph node. So my question is : is he automatically gonna get mop op chemo ? And second question ...

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