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by WriterGirl1969
Wed Apr 17, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 750
Views: 260610

Re: For Stage III's: NED for how long now?

Celebrating my 3-year scan results coming back CLEAN yesterday, so I am now officially 3 years NED. As ibcaree so eloquently said, God gets all the credit. I have been blessed with a wonderful support system (including all of you), an excellent surgeon, and the faith that sustains me daily. The book...
by WriterGirl1969
Wed Apr 17, 2019 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 681

Re: O/T - my furbaby has cancer....hard last weekend - UPDATED

Jaynee, just wanted to add my hugs to this post. You did the right thing. It must have been so hard. When I finished chemo I celebrated by adopting my own grumpy kitty furbaby, and I know I'll face the same thing at some point in the future because she was already a little older when we adopted her....
by WriterGirl1969
Wed Apr 17, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 13
Views: 711

Re: Finally reached the 'forgot I had cancer' spot!

This was beautiful to hear, Diane. :) I'm not quite to the forgot I had it place in my life yet, but I am happy to be able to say my 3 year scans just came back clean yesterday (although I've developed an allergic reaction to the contrast dye). Hopefully in another couple years I can join you in hea...
by WriterGirl1969
Wed Apr 17, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 725

Re: Question about Xeloda scheduling/timing differences

For stage 3s, 5FU intensity rather than long durations repeatedly seems to be a key success factor in permanently rooting out residual cancer cells or clusters. Just like some of the 3-4 month vs 6 month success rates, your catch on the 8 day peak is interesting. My question is for kill optimizatio...
by WriterGirl1969
Thu Apr 11, 2019 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 320

Re: Lingering Diarrhea?

I'm 3 years post surgery and still have trouble with diarrhea. I try to manage with diet, and supplement with Immodium as needed.
by WriterGirl1969
Thu Apr 11, 2019 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda One week on/one week off dosing
Replies: 9
Views: 2717

Re: Xeloda One week on/one week off dosing

The original article mentioned in the other thread was a posting on Medscape by Dr. Marshall from Georgetown in Washington, DC. Here is a link to the other thread with a copy of the article pasted into the original posting but unfortunately the original poster took down the link to the Medscape art...
by WriterGirl1969
Thu Apr 11, 2019 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 56
Views: 6760

Re: Anyone doing xelox and xeloda. Please help

Just wondering if anyone else is doing xelox n taking xeloda pills for 14 days straight . I’m having a hard time with nausea. It’s already been a week taking the pills and this is only my 2nd cycle . I have Ativan , compazine to take but I do not like the Ativan it makes dizzy n kinda groggy . Will...
by WriterGirl1969
Thu Apr 11, 2019 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 725

Re: Question about Xeloda scheduling/timing differences

There have been several threads about xeloda but I can't find where there's a discussion about different timing schedules. It appears that most people are on cycles of 2-3 weeks on and then a week off. Has anyone been on a shorter cycle and then changed to a longer one - or vice versa? I'm getting ...
by WriterGirl1969
Fri Dec 28, 2018 2:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, 26 weeks pregnant, Merry Christmas!
Replies: 13
Views: 1754

Re: Stage IV, 26 weeks pregnant, Merry Christmas!

So is it normal to feel just fine? I mean, I have a freaking 4.7cm mass of cancer in my liver and my daily routine hasn't changed. Nothing has changed. My kids don't treat me any different, lord knows they haven't taken on any more housework. :lol: My husband doesn't coddle me, everything is normal...
by WriterGirl1969
Fri Dec 28, 2018 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help deciding treatment after surgery!! THIS isn't Easy!!
Replies: 8
Views: 912

Re: I need help deciding treatment after surgery!! THIS isn't Easy!!

Hi CharlesT. I think it's great that you're doing research on your choices prior to making them. It looks as if you've already gotten some great information from the others, so I won't repeat any of that. What I will say is this - I also did a lot of research before making my decisions, and although...
by WriterGirl1969
Wed Dec 19, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staged T3N1 for Rectal Cancer Today
Replies: 3
Views: 1160

Re: Staged T3N1 for Rectal Cancer Today

Deep wrote:Finally got my staging done this morning and that is what the Doctor told me. I researched the net and I believe this makes me Stage IIIB. Anyone care to chime in to correct me if I am wrong?


Sounds right, Deep. I have same staging as you, and most charts have me as 3b (some still say 3a).
by WriterGirl1969
Wed Dec 19, 2018 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3A Rectal Cancer Diagnosis
Replies: 4
Views: 2045

Re: Stage 3A Rectal Cancer Diagnosis

Hi Sinewaves. Sorry you have to be going through this, but glad you found this group. Like you, I was diagnosed stage 3. Mine was colon vs. rectal, so I had surgery first with adjuvent chemo for 6 months vs. radiation, but I did do Xeloda oral. I did a *lot* of research on Xeloda pill form vs. IV (5...
by WriterGirl1969
Mon Oct 08, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 25
Views: 3923

Re: Robino1 has left us today at 6:40pm.

Another light lost . . . so very sad to hear this news. She was such a positive, uplifting and caring person.
We'll miss you, Robino.
by WriterGirl1969
Sat Jul 28, 2018 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Overdue Hello
Replies: 3
Views: 794

Overdue Hello

Just wanted to stop in and say hello to everyone, and to let you know I'm still here, still thinking of and praying for everyone. I think of you all very often. Those of you who know me also know I am an author. I have a new book being published soon, and decided to dedicate it to the people in my l...
by WriterGirl1969
Sat Jul 28, 2018 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 25
Views: 8150

Re: Goodbye

As the one with cancer, I often felt that being the caregiver / loved one forced to watch would be *so* much harder. I'm so very sorry to read both posts, but so moved by the love and devotion that you gave to your partners.
Keeping you both in my prayers.
Tracy

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