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by WriterGirl1969
Fri Jun 28, 2019 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 7
Views: 589

Re: Keytruda Side Effects: bad joint pain

I haven't taken Keytruda myself, but Annie did (BeansMama) and I remember her telling me that her bones just ached terribly, especially in the fall after she'd been getting it for several months. She pushed the doctors and surgeon to set a date for surgery to avoid additional rounds due to the pain....
by WriterGirl1969
Fri Jun 28, 2019 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 650

Re: Mop up chemo question

Thank you Tracy !! That was a very informative response and I really appreciate that you took your time to share your experience. :) I am just a little overwhelmed with everything right now, deep inside I was hoping everything would be over after chemoradiation and surgery but it is what it is..we ...
by WriterGirl1969
Wed Jun 26, 2019 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo question
Replies: 7
Views: 650

Re: Mop up chemo question

Hi everyone, My husband just got his path report from the APR surgery he got 2 weeks ago for rectal cancer. So his tumor was completely gone due to chemorad and everything was clear EXCEPT one positive lymph node. So my question is : is he automatically gonna get mop op chemo ? And second question ...
by WriterGirl1969
Sun May 12, 2019 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence - The Longest Month
Replies: 10
Views: 999

Re: Recurrence - The Longest Month

Then I had a PET Scan and my world came undone all over again. Multiple areas scattered over my retroperitoneum/bowel/pelvis lit up. The plan is to take it a day at a time. Every tool is being kept in the bucket including HIPEC. But will start with chemo and see what happens. Wish me luck everyone....
by WriterGirl1969
Sun May 12, 2019 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY MOTHER'S DAY!
Replies: 6
Views: 415

Re: HAPPY MOTHER'S DAY!

What a wonderful Mother's Day gift! Congratulations!!! And Happy Mother's Day back to you.

--Tracy
by WriterGirl1969
Sat May 04, 2019 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan contrast injection and kidneys, advice, please
Replies: 12
Views: 1170

Re: CT Scan contrast injection and kidneys, advice, please

Ethel - I'm really glad you started this topic. I'm particularly interested in the information as I've now developed an allergic reaction to the contrast dye as of this year's scan (never had this problem in the past). As part of that treatment, they asked me to push fluids as hard as I possibly cou...
by WriterGirl1969
Sat May 04, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Scan Since Completing Treatment
Replies: 2
Views: 585

Re: First Scan Since Completing Treatment

Hey all, I finished my second round of chemo March 15th, and had my first CT scan yesterday. I find out the results tomorrow, and am so nervous! I had a CT scan in October for a surgery related issue and it did not show any new masses or metastases. Has anyone had their first scan come back with ne...
by WriterGirl1969
Wed Apr 17, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 757
Views: 270430

Re: For Stage III's: NED for how long now?

Celebrating my 3-year scan results coming back CLEAN yesterday, so I am now officially 3 years NED. As ibcaree so eloquently said, God gets all the credit. I have been blessed with a wonderful support system (including all of you), an excellent surgeon, and the faith that sustains me daily. The book...
by WriterGirl1969
Wed Apr 17, 2019 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 1154

Re: O/T - my furbaby has cancer....hard last weekend - UPDATED

Jaynee, just wanted to add my hugs to this post. You did the right thing. It must have been so hard. When I finished chemo I celebrated by adopting my own grumpy kitty furbaby, and I know I'll face the same thing at some point in the future because she was already a little older when we adopted her....
by WriterGirl1969
Wed Apr 17, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 16
Views: 1769

Re: Finally reached the 'forgot I had cancer' spot!

This was beautiful to hear, Diane. :) I'm not quite to the forgot I had it place in my life yet, but I am happy to be able to say my 3 year scans just came back clean yesterday (although I've developed an allergic reaction to the contrast dye). Hopefully in another couple years I can join you in hea...
by WriterGirl1969
Wed Apr 17, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 1189

Re: Question about Xeloda scheduling/timing differences

For stage 3s, 5FU intensity rather than long durations repeatedly seems to be a key success factor in permanently rooting out residual cancer cells or clusters. Just like some of the 3-4 month vs 6 month success rates, your catch on the 8 day peak is interesting. My question is for kill optimizatio...
by WriterGirl1969
Thu Apr 11, 2019 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 520

Re: Lingering Diarrhea?

I'm 3 years post surgery and still have trouble with diarrhea. I try to manage with diet, and supplement with Immodium as needed.
by WriterGirl1969
Thu Apr 11, 2019 10:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda One week on/one week off dosing
Replies: 9
Views: 2943

Re: Xeloda One week on/one week off dosing

The original article mentioned in the other thread was a posting on Medscape by Dr. Marshall from Georgetown in Washington, DC. Here is a link to the other thread with a copy of the article pasted into the original posting but unfortunately the original poster took down the link to the Medscape art...
by WriterGirl1969
Thu Apr 11, 2019 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 9684

Re: Anyone doing xelox and xeloda. Please help

Just wondering if anyone else is doing xelox n taking xeloda pills for 14 days straight . I’m having a hard time with nausea. It’s already been a week taking the pills and this is only my 2nd cycle . I have Ativan , compazine to take but I do not like the Ativan it makes dizzy n kinda groggy . Will...

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