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by del
Tue Nov 14, 2017 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low rectal tumor without LARS?
Replies: 9
Views: 969

Re: Low rectal tumor without LARS?

Mine was ultra-low (from memory, 5 cm from the verge). I had a lot of the same fears as you after reading some horror stories and was seriously contemplating asking my surgeon whether I could permanently keep the ileostomy bag. But my reversal surgery was 12 months ago and life has pretty much gone ...
by del
Tue Nov 14, 2017 7:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T1 rectal cancer and LVI
Replies: 10
Views: 1153

Re: T1 rectal cancer and LVI

I'd definitely recommend getting as many second opinions as you can. I also had LVI listed on my pathology report. I spoke to two colorectal surgeons and a medical oncologist, who all told me that LVI is not so important for stage 1.
by del
Sat Sep 23, 2017 4:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: They found a 12mm sessile polyp
Replies: 18
Views: 1902

Re: They found a 12mm sessile polyp

Polyps are very common and 12mm is not large. I'd say the probability it is cancer is small. But waiting for results sucks and I'm sure everyone on this forum can sympathise with you. Just try to keep yourself busy and not think about it too much. And whatever you do, stay away from Dr Google. Best ...
by del
Wed Jun 21, 2017 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 folow up CT scan
Replies: 8
Views: 1354

Re: Stage 1 folow up CT scan

I get a full chest/pelvic/abdomen CT every 6 months. There is no standard follow-up protocol for stage 1, but I think I would want at least one full CT for some peace of mind.
by del
Wed Jun 21, 2017 4:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Qeustions
Replies: 5
Views: 874

Re: Reversal Qeustions

The Research Oncologist in the trial I am in states they could see if the cancer returned on the CT, but I was under the impression they could only see it if it is larger and a colonoscopy is the only way they actually could see if the rectal cancer has returned? CTs are for detecting metastases (l...
by del
Sat May 06, 2017 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: bleeding Months after pre cancerous polyp removed- Age 26
Replies: 11
Views: 1659

Re: bleeding Months after pre cancerous polyp removed- Age 26

I am 26 years old and In January 2017 I had a pre cancerous polyp removed. I never got anymore information other than that it was pre cancerous and that I would need to be checked again in a few years. I would be pushing for the next colonoscopy to be at 12 months. If no new polyps are discovered t...
by del
Tue Apr 18, 2017 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommended Stage 1 follow up?
Replies: 11
Views: 2156

Re: Recommended Stage 1 follow up?

Is genetic analysis typically done in case of Stage 1? Since genetic testing is expensive, I think you would usually only be sent for genetic testing if there was some reason to suspect your cancer was caused by genetics, like a family history of colorectal cancer, large number of polyps, etc. I do...
by del
Wed Apr 12, 2017 4:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal or keep ileostomy?
Replies: 9
Views: 3077

Re: Reversal or keep ileostomy?

I had exactly the same thoughts before my reversal last November. You read so many horror stories about LAR syndrome, and I had my entire rectum removed so I was sure I would have major problems. I went back to work after two weeks and everything has been getting better month by month. I'd say 5 mon...
by del
Wed Apr 12, 2017 4:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommended Stage 1 follow up?
Replies: 11
Views: 2156

Re: Recommended Stage 1 follow up?

I'm also in Australia and it's 3 monthly CEA tests, 6 monthly CT scans and yearly colonoscopies for 5 years for me (and probably regular colonoscopies for the rest of my life). As others have said, there's not really any standard protocol for stage 1.
by del
Sun Jun 19, 2016 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal on June 14
Replies: 6
Views: 718

Re: Reversal on June 14

Glad to hear the surgery went well. That's impressive that you were up and walking just a few hours after surgery!
by del
Sun May 22, 2016 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laparoscopic or open surgery for colon cancer
Replies: 38
Views: 3501

Re: Laparoscopic or open surgery for colon cancer

I was originally going to have laparoscopic surgery but had to have open surgery due to the low location of my tumour. My surgeon explained that the pelvis is a very tight area with lots of nerves and blood vessels and it can be difficult to safely access the lower rectum without going open. Persona...
by del
Sun May 22, 2016 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: G'day
Replies: 9
Views: 1047

Re: G'day

Sounds like you are coping very well, GK. I'm in Sydney and had ULAR surgery around the same time as you. I agree that this forum is an amazing resource and source of inspiration and it has helped me a lot. Wishing you all the best with your treatment!
by del
Wed May 11, 2016 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leak test
Replies: 19
Views: 1751

Re: Leak test

tarheelmom wrote:So sorry about the complication. My take down is scheduled for mid-June. Hope the vascular guy has a solution.


Thank you! Best wishes for your upcoming surgery, let us know how it goes.
by del
Mon May 09, 2016 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leak test
Replies: 19
Views: 1751

Re: Leak test

My reversal was originally scheduled for some time in mid June, but unfortunately I developed a DVT and pulmonary embolism a few weeks after the ULAR surgery. I am on daily blood thinners for the next 3 months so the reversal will probably have to be delayed until some time in September, but I will ...
by del
Mon May 09, 2016 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leak test
Replies: 19
Views: 1751

Re: Leak test

Thank you for posting about your experience Lydia! I had my leak test today and read your post while in the waiting room and it made me a lot less anxious about it. In the end it was a pretty quick and painless experience, much less traumatic than I was expecting! :)

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