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by recruiter
Wed May 16, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda, Avastin, post nasal drip and a cough
Replies: 5
Views: 1105

Xeloda, Avastin, post nasal drip and a cough

Anyone had trouble with this?

I have congestion balling up in the base of my throat. My nose runs like a river, inside and out. And late day, I find myself trying to cough the congestion up. It's worse now, with allergies part of the equation.

Any thoughts and advice?
by recruiter
Thu May 10, 2018 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anemia while taking xeloda and avastin UPDATE PROGRESSION
Replies: 12
Views: 2883

Re: Anemia while taking xeloda and avastin UPDATE Elevated CA125

Exactly what's going on with me right now. Hgb has dropped steadily since February, when we discovered my insurance pharmacy had been feeding me half the Xeloda dosage intended by my doctor - 1500 mg a day instead of 3000. Since the dosage has been corrected, I've had some bleeding for a day or two ...
by recruiter
Wed Mar 28, 2018 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 15592

Re: Scanxiety: Anyone else having testing now?

As much as I try to avoid it, absolutely. My scan is tomorrow, results on Tuesday - I always get a weekend to putter around the house and convince myself that it's time to buy a cemetery plot. This one, though, is a little different after the set-to with Cigna, my insurance company and specialty pha...
by recruiter
Fri Mar 09, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible for long term remission with only chemo?
Replies: 31
Views: 8708

Re: Possible for long term remission with only chemo?

My onc has a saying: Live your life like it's going to be a long one, because it just might be.
by recruiter
Wed Nov 01, 2017 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 4767

Re: Bowel "Urgency" - help!

Okay, so. Stage IV rectal cancer w/lung mets, no surgeries, just radiation & chemo, diagnosed ~2.5 years ago. Here's my problem: I seem to have lost strength entirely in my sphincter muscles. When my upper colon decides it's time to move a "package" along, I have to be able to recogni...
by recruiter
Thu Jun 22, 2017 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 33246

Re: Things Not to Say and the Responses I want to Make (Rant)

I can relate to your statements! When faced with my own medical crisis back in November, I was scared and turned to my family. My sister's answer was, " I knew people who lived with a bag in college and they did just fine." Who the heck says that to someone, let alone your own sibling? Ug...
by recruiter
Thu Jun 15, 2017 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 33246

Re: Things Not to Say and the Responses I want to Make (Rant)

I think that how a person handles the dissemination of information about their disease is an individual issue. I have a bit of a public persona so going underground with my treatment isn't an option. Being open has its downside, but it also has given me greater control of how people act toward me, e...
by recruiter
Fri Jun 02, 2017 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pills vs. Pump
Replies: 18
Views: 5154

Re: Pills vs. Pump

I absolutely hated the pump. I felt like people were staring at me the entire time I wore it. Very self-conscious about it. I wore a jacket over it all last summer, and died from the heat just to keep people from staring. As for the port ... the surgeon who installed mine didn't do a perfect job. I ...
by recruiter
Thu May 25, 2017 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Pembrolizumab/Keytruda APPROVED for MSI-High CRC
Replies: 9
Views: 3356

Re: BREAKING: Pembrolizumab/Keytruda APPROVED for MSI-High CRC

Trying to get qualified for this myself. Watching this one with a lot of interest.
by recruiter
Tue Apr 25, 2017 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda VS 5-FU
Replies: 37
Views: 9886

Re: Xeloda VS 5-FU

Peter, I've done them both. I'm on Xeloda and Avastin right now, and my tumor is shrinking significantly and the lung things are remaining quite small - a better response than the infusion 5 FU. I've had my moments with Xeloda and Avastin - I get a serious diarrhea attack on Thursday night after a T...
by recruiter
Thu Mar 30, 2017 9:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some good scan news
Replies: 8
Views: 1500

Some good scan news

After a six-day wait for CT results - ugh, the mind can become a torture chamber - mine revealed shrinkage of the tumor. And since CT isn't the best way to gauge that, my onc says that shrinkage that's obvious there means real shrinkage.

CEA was 1.0

Xeloda and Avastin are working.
by recruiter
Wed Mar 22, 2017 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long until you see light at the end of the tunnel?
Replies: 27
Views: 5058

Re: How long until you see light at the end of the tunnel?

Absolutely I have felt that way. I lost my Mom - my number one supporter - two months into this journey as well, and if it wasn't for friends - my blood family is a useless collection of greedy, self-absorbed narcissists - I don't know what I would have done. Many is the time I have asked God to tak...
by recruiter
Fri Mar 17, 2017 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chance for long-term NED for stage IV with chemo alone?
Replies: 6
Views: 2043

Re: Chance for long-term NED for stage IV with chemo alone?

To quote my oncologist, "There is always hope."

Keep fighting.
by recruiter
Thu Mar 16, 2017 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why are some people so insensitive?
Replies: 16
Views: 3293

Re: Why are some people so insensitive?

My story is a different subject, the loss last May of my Mom as my treatment was kicking off, but equally insensitive. About a month ago, a former work colleague sat down as I was eating lunch alone in a restaurant and angrily informed me, "I lost my Mom when she was 35. Your Mom was elderly. Y...

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