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by Felicitym23
Mon May 29, 2017 10:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do you imagine being told you are cured?
Replies: 17
Views: 3092

Re: Do you imagine being told you are cured?

Being Stage 4. I like to think I will be cured. I try to live with hope.

Some days I come crashing back down to earth.

Some days I catch myself dreaming.

We have to dream big.

Like you I have lost so much and I just crave to go back to work etc and be normal.

Dream big.
by Felicitym23
Mon May 29, 2017 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5-FU cumulative side effects?
Replies: 18
Views: 4430

Re: 5-FU cumulative side effects?

I have had over 35 sessions of 5FU. It gets worse the longer you are on it. I am not surprised a Dr would say that your first dose is how you are going to be. :roll: I ended up in hospital several times because my body just got tired from the 5FU. I had to have a break after every 5th cycle. I also ...
by Felicitym23
Sat Dec 03, 2016 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year cancerversary TODAY!
Replies: 38
Views: 6071

Re: 5 year cancerversary TODAY!

Congratulations. Thank you for posting. It gives such hope to us Stage 4ers. I plan on being around way past the 5 year mark too.
by Felicitym23
Tue Sep 13, 2016 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: starting vectibix tomorrow,side effects are scary
Replies: 10
Views: 2323

Re: starting vectibix tomorrow,side effects are scary

I am another Stage 4er. My cancer grew while on my first rounds of Oxy and FU. In January 2016 I started on Vectibix. I will be honest I responded very well to Vectibix but when you respond well. It means the side effects are bad. The dry pimply skin, red burning rash, dry nose, Spilt feet, infectio...
by Felicitym23
Thu Aug 11, 2016 11:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerversary 7 years NED since stage 4
Replies: 15
Views: 1966

Re: Cancerversary 7 years NED since stage 4

I love reading posts like this.

Congratulations and wish you many many more years of NED.
by Felicitym23
Wed Aug 03, 2016 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Re-Staging
Replies: 5
Views: 1038

Re: Re-Staging

Have you found out about the re-staging ?

In Australia once we are Stage 4 we are always stage 4 even if there are no signs of cancer. :roll:
by Felicitym23
Tue Jul 26, 2016 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: vectibix
Replies: 8
Views: 1225

Re: vectibix

I have been on Vectibix for nearly 7 months. I have ended up in hospital due to the rash causing so much dryness that my body started to shut down. But in saying that I have gone from Dec 15 being told that the cancer has spread to lymph nodes in my neck and abdomen to March 16 being told I am now N...
by Felicitym23
Mon Jul 18, 2016 1:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE-There are stage 4 survivors !!!!!!!
Replies: 14
Views: 2123

Re: HOPE-There are stage 4 survivors !!!!!!!

Thank you for sharing this with us. While I am stage 4 and currently in remission (only been 3 months). But still on Chemo.
My Dr seems to talk with such dread not positives. I need to know that we can and could beat this monster of Stage 4.

Thank you xx
by Felicitym23
Tue Jun 14, 2016 1:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Colon Cancer on the ROAD TO RECOVERY
Replies: 13
Views: 2279

Re: Stage IV Colon Cancer on the ROAD TO RECOVERY

We do not want to go for chemotherapy, I am surprised that you say this. Its not your body and you are not a Dr or God to be playing around with another persons life. Sorry I was told I wouldnt need chemo.... Within 4 weeks of having the turmour removed the cancer had spread. I chose chemo and I am...
by Felicitym23
Sun May 08, 2016 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to cope with an "affair" when terminally ill (sorry, it's long)
Replies: 57
Views: 7187

Re: How to cope with an "affair" when terminally ill (sorry, it's long)

My belief is its an emotional affair. He is putting time and effort into another woman and not you. It has taken me 12 months or more of therapy to realise my husband does not respect me or our marriage. He can tell me he loves me to the end of the earth but telling another women deepest secrets and...
by Felicitym23
Thu May 05, 2016 8:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to cope with an "affair" when terminally ill (sorry, it's long)
Replies: 57
Views: 7187

Re: How to cope with an "affair" when terminally ill (sorry, it's long)

Oh my gosh I could have written your post myself. I found my husband sex texting messages to a "new" female staff member just as I was DX with cancer. In fact I knew something was going on before my DX but he lied to my face and said they where just friends. Until I found the vile skype me...
by Felicitym23
Fri Apr 29, 2016 1:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 7609

Re: Any Stage IV long term survivors here?

I am not long term as such YET....... But I plan on being it. I am stage 4. Told I had a couple of year most likely. At Christmas just gone. I am only 46... January this year I started on an Auto Immune Therapy with my Folfox 6 treatment. Come March and all my scans showed no cancer. I am now in rem...
by Felicitym23
Fri Apr 29, 2016 1:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy
Replies: 6
Views: 1164

Re: Immunotherapy

I am in Australia. Stage 4. I was told at Christmas time that I am incurable. I had already had several rounds of Folfox 5 chemo. In late January of this year. I started Folfox with Vectbix. In March this year I had a CT Scan and PET scan and there was no signs of cancer being awake. And I am now in...
by Felicitym23
Sun Apr 03, 2016 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph nodes mets
Replies: 7
Views: 1563

Re: lymph nodes mets

Shan I hope the numbers come down.

My oncolgyist is not too concerned about my CEA levels because he said colon cancer can't always be predicted by those numbers. They are too unreliable.

Good luck my friend. Its hard not being in control of this journey.
by Felicitym23
Sun Apr 03, 2016 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant
Replies: 11
Views: 1279

Re: Rant

So glad I am not the only one feeling these emotions. I was told when I was in hospital by a family member who wanted to see me but I felt so unwell. "Its not all about you". I feel like if I tell people how I am really feeling that I am making them feel bad but they have no idea what I am...

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