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by Cfbiff
Sun Nov 06, 2016 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Options other than death?
Replies: 3
Views: 941

Re: Options other than death?

Could be either one as we now have cancer growing from the inside out through my scars. :(
by Cfbiff
Sat Nov 05, 2016 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Options other than death?
Replies: 3
Views: 941

Options other than death?

This week we had 2.5 liters of ascites drained, and sudden appearance of cancer coming through one of my scars from resection and hai pump surgery in June. We have a scan tomorrow then meet with dr Kemeny Monday. Has anyone experienced this and had other options beside stopping treatment and going t...
by Cfbiff
Sat Oct 08, 2016 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 minute with dr k= good news!
Replies: 20
Views: 1893

Re: 1 minute with dr k= good news!

Congratulations.....and it was nice to meet you at the appts. Such good news!
by Cfbiff
Tue Sep 20, 2016 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fungating Tumor/Tumor spread outside/through skin
Replies: 10
Views: 1175

Re: Fungating Tumor/Tumor spread outside/through skin

Look up Sister Mary Joseph nodule. Is it similar? Google images can give visual examples.
by Cfbiff
Tue Sep 20, 2016 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer growing through scar?
Replies: 6
Views: 891

Re: Cancer growing through scar?

Thank you all. Before all this started, I had never been to the hospital, was in great shape, barely even took an aspirin for headaches. Then a year ago, at 45 all that changed and I am concerned about any ache, pain, etc. While it took a while...this spot had healed after we packed it for a number ...
by Cfbiff
Tue Sep 20, 2016 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer growing through scar?
Replies: 6
Views: 891

Cancer growing through scar?

In June/July, I had HAI and resection surgery. The lowest open wound from that surgery was at the belt line and took the longest to heal....likely due to the irritation from the belt line. It was Mid to late Aug before it closed and was dry. Since that time has been fine. Sunday it 'caught' me with ...
by Cfbiff
Mon Sep 05, 2016 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: on to FOLFIRI, with severe nausea at +4 +5 days
Replies: 8
Views: 1178

Re: on to FOLFIRI, with severe nausea at +4 +5 days

For me, the nausea cycle didn't break until I started using compazine as a preventative. I start taking it the night immediately following the treatment.
by Cfbiff
Mon Sep 05, 2016 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ugh Folfiri is not my friend...
Replies: 26
Views: 1806

Re: Ugh Folfiri is not my friend...

Sorry to hear this but not surprised. I had to change thing a bit from folfox routine. The night immediately following treatment, I take a compazine. I do so again the following day/evening. That normally is enough to get me through the nausea. The nasty taste in the mouth......haven't found a way a...
by Cfbiff
Thu Sep 01, 2016 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anybody else accindently pull the tubing out of their port...I did :(
Replies: 11
Views: 969

Re: Anybody else accindently pull the tubing out of their port...I did :(

Oh man.....so sorry Teri. This is one of my fears and I've had a close call very similar to yours. I tape the connector to my hairy chest so I'll have an early warning system......it's grabbed my attn a few times. I know what you mean about feeling concerned with the lost dosing. As much as I don't ...
by Cfbiff
Sun Aug 28, 2016 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Results of my clinical trial - pls read, VERY important
Replies: 31
Views: 4916

Re: Results of my clinical trial - pls read, VERY important

i spoke to Dr. Isadora Guggenheim, the naturopathic doctor mentioned in Vilca's post, about setting a consult appointment at her clinical office in Nyack, NY, as well as receiving the initial 10 cycle ozone treatment next week. She was very enthusiastic with the ozone therapy results obtained by Dr...
by Cfbiff
Tue Aug 09, 2016 6:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump end of June but cea rising. Scared
Replies: 5
Views: 1068

Re: Hai pump end of June but cea rising. Scared

Thank you all. Last evening Dr. Kemeny had her nurse call us with a personal message...."we know you are concerned, but don't worry. We have seen this before. Wait for the scan in Sept. Until then rest easy. ". Whether she is ultimately right or wrong in this instance, we love dr. Kemeny. ...
by Cfbiff
Mon Aug 08, 2016 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News ???
Replies: 17
Views: 1478

Re: Good News ???

Good news.....sincerely happy for you! Keep fighting!
by Cfbiff
Mon Aug 08, 2016 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pump end of June but cea rising. Scared
Replies: 5
Views: 1068

Hai pump end of June but cea rising. Scared

I'm scared and want to cry. We worked so hard to get to the HAI pump and dr kemeny. In June cea was 129. Then we had pump placement AND colon resection to remove the primary. They said biopsy showed the primary still alive. Liver tumor biopsies showed mostly or all dead. So we thought cea taken a we...
by Cfbiff
Sat Jul 30, 2016 6:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post sigmoid resection heaviness below navel
Replies: 2
Views: 384

Post sigmoid resection heaviness below navel

Wound healing well for surgery end of June. Also installed the HAI pump on left side. I have a very real heaviness from navel to just below the belt line. It's primarily dead center with the incision and about 3 inches on each side. When my bladder is full, I'm uncomfortable....until relief. Anyone ...
by Cfbiff
Sat Jul 30, 2016 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 53rd street club meeting?
Replies: 0
Views: 1832

53rd street club meeting?

Anyone from the board going to be at 53rd street to see dr. Kemeny on aug 8? We'll be there for follow up, first HAI pump REfill and treatment.

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