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by Pat
Wed May 29, 2019 1:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our Miss Molly/Karen going into hospice
Replies: 47
Views: 6749

Re: Our Miss Molly/Karen going into hospice

This is very sad news. Karen, know that you have been a big help emotionally and intellectually. My heart goes out to you.
by Pat
Wed Jan 30, 2019 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU infusions
Replies: 20
Views: 1453

Re: 5FU infusions

I am clumsy and afraid the tube connecting the Rx to my port would get pulled. I sewed a pocket inside a couple shirts. The infusion bulb and tube were both safely inside my shirt.
by Pat
Tue Oct 16, 2018 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 4916

Re: Quality of life on Folfox and others

I found that wearing gloves almost 24/7 was helpful. The cheap stretchy type worked well for everything except my phone. I had 6 pairs to cycle thru the wash. I drank warm water during my nine months of treatment and one month after. I am 2 years out from last treatment and find the residual neuropa...
by Pat
Wed Oct 03, 2018 2:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 4182

Re: New diagnosis and scared

I had a substantial number of nodes effected and, knock on wood, am still NED. I hope this gives you some hope for a NED future as well.
by Pat
Sat Nov 25, 2017 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 55118

Re: any peeps with BRAF mutation on here?

I too am BRAF V600e. I finished FOLFOX Aug 2016 and so far have been NED. I am interested in your adventure and appreciate your willingness to share. Thanks
by Pat
Tue Nov 21, 2017 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just finished treatment
Replies: 4
Views: 868

Re: Just finished treatment

I was also diagnosed with Barrett’s Esophagus and was advised that does not mean automatically advancing to cancer. However considering my luck with cancer, I get annual endoscopy to monitor status.
by Pat
Tue Nov 21, 2017 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cecum removal appendix too?
Replies: 2
Views: 951

Re: cecum removal appendix too?

:roll: I hope you continue to fight on to get this straightened out. I had a similar situation where my colonoscopy report came back stating that my uterus was healthy. I had a hysterectomy 2 years prior. And how magical my colon is that they could see a missing organ...that is not located in the co...
by Pat
Thu Nov 16, 2017 2:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 6478

Re: Tom marsilje

Such dignity and intelligence. His memory will continue to be my source of hope.
by Pat
Thu Nov 16, 2017 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hubby diagnosed 3C adenosquamous colon
Replies: 30
Views: 3854

Re: Hubby diagnosed 3C adenosquamous colon

I am checking in after a long absence and saw your post. I also have an aggressive form of CRC. I am two years NED and look forward to many more NED years. Good luck to your husband.
by Pat
Sat Jun 17, 2017 1:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alkaline PH
Replies: 4
Views: 1075

Re: Alkaline PH

Very informative. Thanks
by Pat
Mon May 01, 2017 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diet after colorectal surgery
Replies: 10
Views: 5176

Re: Diet after colorectal surgery

I also take acidophilus probiotic tables daily and my digestive system seems to be happy. I also eat smaller meals otherwise I am uncomfortable (in many ways). It took my body about 9 months to feel somewhat normal; maybe from healing and maybe because I adjusted my intake quanitity.....and maybe pr...
by Pat
Wed Feb 08, 2017 2:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My body is high maintenance
Replies: 7
Views: 1531

Re: My body is high maintenance

Same here, my body is high maintenance AND diabolical. I'm never sure what changes are in store from one day to the next. One day certain foods cause havoc & a couple days later same food is fine. Nose bleeds at inconvenient times. Difficulty walking due to neuropathy...next day I can walk but i...
by Pat
Wed Feb 08, 2017 2:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post op hemicolonectomy
Replies: 2
Views: 509

Re: Post op hemicolonectomy

I experienced the same pain after my right hemicolectomy (Oct 2015). After a trip to emergency room (Apr 2016) that included CT scan, X-ray, and blood work it was determined that I had an infection. After a week of antibiotics I was feeling better. I was also advised that healing takes longer when o...
by Pat
Sat Jan 14, 2017 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One big "crap" shoot?
Replies: 12
Views: 1548

Re: One big "crap" shoot?

I have Barrett's Esophagus, a precancerous condition in addition to colon cancer. Last upper GI (9/1/2016) added irritations in stomach. I take famotidine for Barrett's and wait & see for stomach...Onc believes chemo caused "temp" irritations in stomach. I'm watchful about Rx's...I hav...
by Pat
Sat Dec 31, 2016 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Carafate relief for GERD/Radiation Induced Esophagitis
Replies: 3
Views: 1018

Re: Carafate relief for GERD/Radiation Induced Esophagitis

I have Barrett's Esophagus in addition to colon cancer. I'm sure eventually this too will morph into cancer and your info will be much needed. Thanks & hope this treatment continues to benefit you.

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