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by Wonderfullymade
Tue Nov 20, 2018 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 10
Views: 386

Re: Sad news

I am sorry to hear of your loss also...will keep you in my thoughts
Wonderfully made
by Wonderfullymade
Tue Nov 20, 2018 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sleeping with: bag, heart monitor and pump accached
Replies: 8
Views: 225

Re: Sleeping with: bag, heart monitor and pump accached

I can not sleep on my back and turn from side to side through the night. Never underestimate yourself. For my whole life I believed that I was a side sleeper. However when I was neither able to sleep on my right side nor on my left side after a couple of sleepless nights I have learned how to sleep...
by Wonderfullymade
Tue Nov 20, 2018 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 17
Views: 1221

Re: MSI-H with liver met, in search of help

I am MSI-h, (MLH1 and PMS2) not Lynch. I did full 12 rounds of folfox and had a recurrence within 5 months. Multiple Mets to lymph nodes all over abdomen, chest and neck. We watched a lymph node in my neck grow 3 cm while doing 2 rounds of folfiri. Then I started Keytruda and within 3 months all my...
by Wonderfullymade
Mon Oct 01, 2018 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 15867

Re: Switching back to Pembro

I should be returning to more internet time in the fall. I have been using my time to RV, so I don’t always have access. I took Pembro for 20 months. I was battling colitis and then started having some breathing problems (turns out it was asthma-never had it before...side effect..dunno), so Dr did a...
by Wonderfullymade
Fri Sep 28, 2018 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 15867

Re: Switching back to Pembro

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...
by Wonderfullymade
Sat Apr 21, 2018 6:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 5466

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

No treatments since sept scan. I scan again in june.
Feeling great! I am preparing for a 10+ mile hike today, 13+ next weekend!
by Wonderfullymade
Fri Apr 20, 2018 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 5466

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

I seem to have become quite forgetful as compared to earlier especially with regards to names and upcoming appointments. Could it be related to Nivolumab ? Has anybody else on Opdivo /Keytruda experienced similar memory loss related symptoms. Occasional muscular pains are still there. But overall, ...
by Wonderfullymade
Tue Mar 27, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can someone who is stage 4 really end stage still benifit from Keytruda?
Replies: 6
Views: 1043

Re: Can someone who is stage 4 really end stage still benifit from Keytruda?

I wasnt on hospice but was pretty close! Failed at folfox and folfiri...crap kept spreading and was taking over my lymph system. A lot of my Drs weren’t offering much hope, but thankfully my fellow oncologist was all excited about this new treatment and got me on it off label. I wouldnt be here if i...
by Wonderfullymade
Tue Jul 25, 2017 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 26660

Re: BrownBagger ....... I don't know what to say

Oh no! I am shocked and so sad to hear this news! He will be greatly missed by me as well!
My condolences, thoughts and prayers to CRguy and to Erics family and those friends he has made along the way!
by Wonderfullymade
Fri May 12, 2017 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 42
Views: 15867

Re: Switching back to Pembro

Another post I absolutely needed to read today! I have been feeling the sameway Plastikos! And guilty about it! Stable is good,but...have seen some fantastic results in some people and have been wondering how long does it take myself! And thank you again Maia! You are truly a ray of light/hope for m...
by Wonderfullymade
Fri May 12, 2017 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beautiful Update ... Cured
Replies: 41
Views: 4918

Re: Beautiful Update ... Cured

This was exactly the message I needed to read today! For some reason I have really been discouraged and down, even though my last scan was stable...I just haven't wanted to post or even think about this blasted illness! Reading that your wife endured for 6 + months gives me a boost to never stop fig...
by Wonderfullymade
Thu Mar 23, 2017 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long until you see light at the end of the tunnel?
Replies: 27
Views: 3555

Re: How long until you see light at the end of the tunnel?

Judi, Happy Birthday! I hope today will be the start of feeling better for you, and am glad to hear your Onc sounds supportive! I cried pretty much straight through the first couple of months! I was prescribed Ativan also but found it didn't do much for me. I now have a script for xanax and it is go...
by Wonderfullymade
Thu Mar 23, 2017 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Haven't been on in a while, but more good news!
Replies: 27
Views: 3791

Re: Haven't been on in a while, but more good news!

:D :D :D Happy dance!!!! :D :D :D
Out with you Larry!!

Your rapid response, quick healing and complete lasting response are my prayers for you!!
Wonderfullymade
by Wonderfullymade
Sat Mar 11, 2017 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux self-care kit
Replies: 6
Views: 1663

Re: Erbitux self-care kit

I certainly hope it's just the never ending flu/cold/ junk that seems to be prevalent in our area this year due to this crazy weather! I am really sorry to hear the Keytruda didn't work for you, would you mind telling why they don't think it worked? I have had a yes it's working, is it working? Yes ...
by Wonderfullymade
Sat Mar 11, 2017 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Beloved is gone
Replies: 25
Views: 5547

Re: My Beloved is gone

I am also sorry to hear about your loss and will keep you in prayer.
Wonderfullymade

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