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by crazylife
Fri Oct 05, 2018 11:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for lung met
Replies: 2
Views: 227

Re: RFA for lung met

Hi!

It was super easy. In and out in a few hours. DH had it done at MSK.
by crazylife
Wed Sep 19, 2018 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 17
Views: 8042

Re: Brain metastasis

I was just diagnosed with brain Mets. Surgery on Monday. Crazylife can you please give me some hope for this situation? I am devastated Hey there, Easiest surgery he has done to date! Recovery was easy, breezy. Just try and stay positive as much as you can and don't read the statistics. Everyone is...
by crazylife
Thu Sep 13, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hernia? Nope, looks like cancer is back
Replies: 6
Views: 748

Re: Hernia? Nope, looks like cancer is back

Geez. DH is in the same boat. Clear CT in May and we are now dealing with a brain met (removed 2 weeks ago), spinal mets (being radiated), femur mets (hip replaced 2 weeks ago) and pelvic mets. Get a good plan and start fighting!
by crazylife
Wed Aug 15, 2018 9:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 17
Views: 8042

Re: Brain metastasis

Thanks for all the support everyone ❤️ JulieJ and everyone. They also found a met on his spine and hip. So brain surgery tomorrow followed by hip replacement next week. The spine met will be hit with radiation. Amazingly all organs are clear. The doctors at MSK truly amaze me. It was like no sweat, ...
by crazylife
Sat Aug 11, 2018 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 17
Views: 8042

Brain metastasis

Sending this in complete shock. After a clear scan in May, DH was diagnosed with a 3.5 cm brain metastasis yesterday. Only symptom was some headaches that started last week.

Anyone have something similar happen?
by crazylife
Thu Aug 09, 2018 8:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family friend Stage IV recurrence
Replies: 15
Views: 4905

Re: Family friend Stage IV recurrence

This seems like a manageable recurrence that can be removed with some surgery and mop-up chemo. Prayers to them this is all it is.
by crazylife
Tue Aug 07, 2018 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: long term survival stories
Replies: 17
Views: 7239

Re: long term survival stories

DH is coming up on 3 years since diagnosis, currently NED. Colon and liver resection, 6 months is chemo. Recurrence in both lungs and double lung surgery. NED since surgery in January 2018.
by crazylife
Mon Aug 06, 2018 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 20
Views: 5641

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Such great news! Can someone tell me what this means? I can't tell if he has all of these or just the first two mentioned. This is from MSK-IMPACT: Positive for the following somatic alterations in the clinically validated panel: 1. KRAS 2. TP53 Positive for the following somatic alterations in the ...
by crazylife
Thu May 24, 2018 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV...NED....AGAIN
Replies: 10
Views: 1033

Re: Stage IV...NED....AGAIN

Great news! Congratulations. What type of surgery was utilized on the lungs. (Vats, etc). Thanks I am not sure. I know they did a few wedge resections and did take an entire lobe from the right. He lost about 35 percent lung capacity. We are told his body will adjust to it and we slowly see it happ...
by crazylife
Thu May 24, 2018 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV...NED....AGAIN
Replies: 10
Views: 1033

Stage IV...NED....AGAIN

DH is NED 4 months after his last lung surgery. 5 lung nodules removed between the left and right lung.

Hoping for a nice long stretch this time or even NED forever!
by crazylife
Mon May 21, 2018 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV - Off chemo two years
Replies: 4
Views: 1192

Re: Stage IV - Off chemo two years

Thanks! 4 month post surgery scan shows NED!
by crazylife
Thu May 17, 2018 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5.5 years stage IV, now one year NED
Replies: 12
Views: 1023

Re: 5.5 years stage IV, now one year NED

Awesome news! Any idea how to get a hold of dr. Lin? DH is clear since lung surgery but thinking this protocol is worth some looking into.
by crazylife
Wed May 16, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda, Avastin, post nasal drip and a cough
Replies: 5
Views: 382

Re: Xeloda, Avastin, post nasal drip and a cough

DH had the same after lung surgery. Coughing fits and a constant drip. Claritin helped a lot and luckily it’s not resolved.
by crazylife
Wed May 16, 2018 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 3934

Re: How can I help my family watch me die?

You are amazing to be thinking of them during this horrible time! I think grieving is just a part of the process and I am not sure you can make it easier. Is there nothing they can do to extend life for a bit longer with chemo? Maybe your cancer will respond to it so you can have more time with your...
by crazylife
Mon May 07, 2018 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Path report - kras and tp53
Replies: 4
Views: 483

Path report - kras and tp53

Can someone help me decode this thing. Any insight would be appreciated. Positive for the following somatic alternations in rather clinically validated panel: 1.kras exon 3 p.q61r 2.tp53 exon 5 p.q167 Positive for the following somatic alternations in the investigational panel: 3. Amer1 4. Apc 5. Ap...

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