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by prs
Mon Jul 29, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Great news Jolene!!!

Your body will now start to recover from all that treatment. It might be a slow process but it does happen, and you'll be back to normal before you know it!!! :D
by prs
Sun Jul 21, 2019 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 13 years ago today!
Replies: 16
Views: 2074

Re: 13 years ago today!

Congratulations Jaynee, your words are so true!!!

Hey, drama at work should be a piece of cake compared to the cancer journey you went thru. :)
by prs
Fri Jun 21, 2019 4:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi PRS - thanks for the heads up !! Did you get booster jabs to avoid low blood count ? Mine's Nivestim - done on the 3rd/4th/5th day after infusion to keep the blood count going. It gives me random chest pains though during those booster jabs day but at least it has helped my blood count stay on t...
by prs
Mon Jun 17, 2019 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

How do you mean prepare for it to get worse before it's finished ? I'm left with 2 more cycles and will be using a new arm for that, I'm hoping nothing too bad will happen !! I haven't been particularly struck with fatigue as yet except for the first 3-4 days after infusion. But yes, it's definitel...
by prs
Sun Jun 16, 2019 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, my MRIs only take 45 minutes, I wonder why yours take 1.5 hours? For my last few infusions I had them switch arms half way thru the infusion. that might be something for you to consider. Yes, the treatment is bitch to get thru, and be prepared for it to get worse before it's finished. You ju...
by prs
Wed Jun 05, 2019 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Just wanted to report this week marks the four year anniversary of my Complete Clinical Response and being offered the W&W program. :!: :D I had a follow up rectal exam back in April. As usual my surgeon had one of her residents in tow. I remarked to him that Dr McLemore had literally saved my a...
by prs
Mon May 20, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My problem during chemo was exactly the opposite of constipation. Sometimes with the nausea I felt like a human fire hose at both ends! :D I had a different doctor for my last colonoscopy, and part of his prep was to drink a 10oz bottle of magnesium citrate the day before beginning the regular MiraL...
by prs
Mon Apr 22, 2019 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My arm is no longer aching, the ache went away around day 4/5 but that was also the time when I felt the most exhausted when the steroid weans off. It's day 12 of my very first cycle and I'm starting to feel mild tingling on my palms. I guessed its coming !!! Hi Jolene, the tingling in the palms is...
by prs
Sun Apr 07, 2019 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, the first cycle wasn't too bad at all, I was pleasantly surprised. I think chemo might be like radiation, in that the effects become cumulative. On the oxi infusions, they were infused thru a vein on the inside of an elbow, and the nurse would find the best looking vein to stick each time I ...
by prs
Sat Apr 06, 2019 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Back in 2015 the standard chemo protocol was twelve 2-week cycles of Folfox, or eight 3-week cycles of Xelox. I chose the Xelox, but after six cycles my blood counts fell so low the 7th cycle kept getting delayed. After three weeks delay my oncologist cancelled the last two Oxaliplatin infusions and...
by prs
Mon Apr 01, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, my very experienced colorectal surgeon strongly advised me to take a course of mop-up chemo. I began six months of XELOX almost immediately after my cCR. If you read back thru this thread you will find we have had two or three posters who went on W&W and had a recurrence. All of them did...
by prs
Wed Mar 27, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, most Drs are not used to patients who have done their research and are advocating for a different treatment plan than the one they are proposing. Hopefully your Dr will be open minded, but if not stick to your guns, and force him to have a conversation. Once you make him realize he's not the...
by prs
Tue Mar 26, 2019 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, if your Dr could feel your tumor site it must have been very low, just like mine. My Dr told me she didn't take a sample for biopsy because it would have involved cutting into the sphincter muscles and that could have had a long term effect on the muscle function. She also said that when ...
by prs
Tue Mar 26, 2019 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 402
Views: 125190

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

lakeswim wrote:Yes, PRS. My second opinion surgeon said he uses flex sig as the most critical data point for determining cCR.

Hi lakeswim, thanks for confirming this. I was following your treatment journey with great interest. Have you been able to come to any final decisions?

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