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by prs
Thu Dec 24, 2020 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

mozart13 wrote:Just stopping by, 4 years since beginning.
MRI,CT and colonoscopy still remain negative.

Thank you prs for starting this tread, a lot's of good info and support.

Happy Holidays and good health to all !

Thank you for the kind words.

Merry Christmas and Happy New Year to all :!: :!: :!:
by prs
Thu Dec 24, 2020 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you PRS for your encouraging and supportive words. As my anxiety tablets were finishing soon, I checked in with a general doctor wondering if he could prescribe me some more to help overcome random panic attacks. He said it is not uncommon to experience post-traumatic stress for cancer surviv...
by prs
Tue Dec 15, 2020 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, I too am keeping my fingers crossed for you, and will be very happy when you hit that two year milestone in January! Hopefully that will help take some of the stress out of your mind, knowing the chance of a recurrence continues to decrease. This pandemic for sure isn't helping any of us ...
by prs
Thu Nov 05, 2020 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Figured I’d update this group (that I keep trying with all my might to join): WARNING: I’m going to try to keep this post lighter — unlike my usual overly loquacious and sober posts — in part to keep the ol’ chin up, but it involves lots of references to a number of distressing bodily functions, so...
by prs
Fri Oct 16, 2020 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

roadrunner, if I remember correctly there is discussion of these procedures in this thread. You'll likely have to read thru the entire thread to find them.

If those posts don't give you enough, you could try private messaging those contributors for more info.
by prs
Sun Oct 11, 2020 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Thank you prs. You were inspirational, and I followed your story not expecting to ever make it to W&W. I told him about your side effects and how you mentioned later how you felt after recovery. How important it is to stay the course. It seems like he’s one of very few, stage 4, to be given the...
by prs
Sun Oct 04, 2020 11:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

@jsbsf, congratulations on your husband's complete clinical response. It looks like you've had quite a journey to get here, but to this point it all seems to have worked out extraordinarily well. Welcome to the W&W club, and always remember the emphasis is on the "Watch" part! Those qu...
by prs
Thu Jun 18, 2020 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Prs we finished CRT 28th March 2020, so it's been 11 weeks after treatment, and now we are thinking of doing the mop up chemo. Yes stray cancer cells are the worry for us as well, especially since it looked like 1 Node was involved in the workup investigations after the first DX. Is mop up or Adjuv...
by prs
Wed Jun 17, 2020 4:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

In a dilemma myself after onc surgeon says get surgery on the safer side. As biopsy during flex sig following a neoadjuvant or preop chemoradiotherapy(1500mg cap per day plus 50.4 gy in 28 days) said negative for disease, even an mri and pet ct done four months apart agree. However I am a bit unsur...
by prs
Mon May 04, 2020 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Peter, thanks so much for your prompt reply .. roll on June then as that’s my 2 years .. is that for local and distant? Xxx Annie, looking back at my treatment history, I had whole body CT and PET scans periodically during the first two years. After that it's been six monthly rectal MRIs and ann...
by prs
Mon May 04, 2020 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hey guys quick question: I just got MRI (a little over 12 weeks since CRT) results today that showed a “near cCR.” It sounded like the radiologist wasn’t exactly sure whether there was any remaining cancer or not. My surgeon, who is fantastic, wants to wait about 5 weeks then do a flex sig to decid...
by prs
Thu Apr 16, 2020 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hey guys quick question: I just got MRI (a little over 12 weeks since CRT) results today that showed a “near cCR.” It sounded like the radiologist wasn’t exactly sure whether there was any remaining cancer or not. My surgeon, who is fantastic, wants to wait about 5 weeks then do a flex sig to decid...
by prs
Sat Mar 28, 2020 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi lakeswim,glad to hear you are doing well. All my blood counts are at, or slightly below the low end of the normal range. They stabilized at those levels a little over a year after my radiation treatment, and have remained like that ever since (4 more years). I think that's just the way it is for ...
by prs
Tue Mar 24, 2020 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spontaneous expulsion of primary tumor
Replies: 12
Views: 2129

Re: Spontaneous expulsion of primary tumor

I'm pretty sure I similarly saw bits of my tumor that had flaked off during chemoradiation. Given your husband's tumor is very low, and there might be a chance of it completely disappearing during the current phase of treatment, it might be worthwhile for you to have a look at this thread. http://co...
by prs
Thu Mar 19, 2020 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 529
Views: 217698

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congratulations Jogey, and welcome to the W&W crew! I agree there is some tension on every follow up visit, but it does get easier as time passes. I understand the chances of a recurrence decrease considerably at the two year mark, so you might find yourself more relaxed as you approach that mil...

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