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by prs
Wed Nov 28, 2018 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 24
Views: 850

Re: Is LARS a foregone conclusion? Anyone doing W&W?

My surgeon encouraged me to start a course of chemo as soon as she offered, and I accepted, the W&W program. She has since told me the data shows that both W&W and surgery patients have higher rates of recurrence if they don't do mop up chemo. The standard mop up chemo for all rectal cancer ...
by prs
Wed Nov 28, 2018 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 24
Views: 850

Re: Is LARS a foregone conclusion? Anyone doing W&W?

Hi Big Jay, did you have six months of mop up chemotherapy after you went on W&W, either FOLFOX or XELOX?
by prs
Tue Nov 27, 2018 12:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Sorry lakeswim, I just realized that when one is writing a reply, and one scrolls down to check previous posts, all the signatures disappear. Your sig is fine! One point I would like to make is that when I first started this thread W&W was very new. I certainly didn't want to be seen as trying t...
by prs
Mon Nov 26, 2018 10:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi @lakeswim the answers to most of your questions are contained in the thread, but it's a long thread and it's a very complex subject. :!: Just take your time to read it thru slowly, page by page, so you get to fully understand and remember all the little details. You have plenty of time for this b...
by prs
Sat Nov 24, 2018 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 24
Views: 850

Re: Is LARS a foregone conclusion? Anyone doing W&W?

Hi lakeswim, this thread will take you thru the W&W learning curve fairly quickly. I really hope you have a complete clinical response to the radiation, and as you'll learn in the thread, your tumor can keep on shrinking for weeks after the treatment ends, so no need to rush any decision. Take y...
by prs
Tue Nov 13, 2018 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4315

Re: Update from Rikimaroo

Original Fiber One breakfast cereal is an easy way to get some fiber, 14gms per half a cup. I take it every morning with blueberries and coconut milk, tastes really good once you get used to it.
by prs
Wed Oct 17, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 4315

Re: Update from Rikimaroo

Hope all is well and wishing you a speedy recovery!
by prs
Sat Sep 22, 2018 2:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Great news skb !!!

I have an appointment with my colorectal surgeon at the end of October. I know she keeps up with all the data, so I'll ask her how long she thinks it will be before W&W goes mainstream.
by prs
Fri Sep 14, 2018 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Welcome back @mozart13 !!!

Hope you are still NED, and your body is recovering from the chemo.
by prs
Sat Sep 08, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 5208

Re: STAGE 3 rectal cancer treatment without surgery

I've been on Watch and Wait for three years, see this thread: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53498 My surgeon strongly advised me to start a six month course of chemo as soon as she determined I'd had a complete clinical response. She also told me she strongly advise...
by prs
Tue Jul 31, 2018 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Here's a link to a paper giving prospective, comparative results for W&W patients at the Kaiser facility where I am being treated.

https://www.journalacs.org/article/S1072-7515(17)30680-4/fulltext

Pretty good results I think!!
by prs
Sun Jun 03, 2018 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Today is the three year anniversary of my post-chemoradiation rectal exam, and determination of the effectiveness of the treatment. All the Drs I saw before treatment had told me I was going to lose my sphincter, so I was just hoping that by some miracle the tumor had shrunk far enough away, and I w...
by prs
Fri Apr 06, 2018 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 203
Views: 81610

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I am curious as to how other complete responders like prs, mozart13 and Rikimaroo are doing. Please post if time permits. You are the ones who gave me hope. Peace! Hi skb, thanks for posting that info. I'm so happy W&W is working out for you. It's three years since I started my chemoradiation t...
by prs
Thu Mar 29, 2018 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 55
Views: 12560

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

I am having neoadjuvant chemo/radiation for 30 sessions over 6 weeks, starting this Wednesday. I will be taking 1500mg of Xeloda twice a day only on the days I am having radiation. Then I will be having systemic chemo and will be having a port put in at the end of this first 6 weeks of treatment, a...

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