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by prs
Sun Apr 07, 2019 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, the first cycle wasn't too bad at all, I was pleasantly surprised. I think chemo might be like radiation, in that the effects become cumulative. On the oxi infusions, they were infused thru a vein on the inside of an elbow, and the nurse would find the best looking vein to stick each time I ...
by prs
Sat Apr 06, 2019 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Back in 2015 the standard chemo protocol was twelve 2-week cycles of Folfox, or eight 3-week cycles of Xelox. I chose the Xelox, but after six cycles my blood counts fell so low the 7th cycle kept getting delayed. After three weeks delay my oncologist cancelled the last two Oxaliplatin infusions and...
by prs
Mon Apr 01, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, my very experienced colorectal surgeon strongly advised me to take a course of mop-up chemo. I began six months of XELOX almost immediately after my cCR. If you read back thru this thread you will find we have had two or three posters who went on W&W and had a recurrence. All of them did...
by prs
Wed Mar 27, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, most Drs are not used to patients who have done their research and are advocating for a different treatment plan than the one they are proposing. Hopefully your Dr will be open minded, but if not stick to your guns, and force him to have a conversation. Once you make him realize he's not the...
by prs
Tue Mar 26, 2019 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, if your Dr could feel your tumor site it must have been very low, just like mine. My Dr told me she didn't take a sample for biopsy because it would have involved cutting into the sphincter muscles and that could have had a long term effect on the muscle function. She also said that when ...
by prs
Tue Mar 26, 2019 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

lakeswim wrote:Yes, PRS. My second opinion surgeon said he uses flex sig as the most critical data point for determining cCR.

Hi lakeswim, thanks for confirming this. I was following your treatment journey with great interest. Have you been able to come to any final decisions?
by prs
Tue Mar 26, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, I do hope your PET/CT tomorrow turns out well. One interesting thing I would like to point out is that my Dr relied almost exclusively on visual observation of the tumor site to determine CCR. I did have confirming MRIs and she did feel the site with her fingers, but she used some kind of...
by prs
Mon Feb 25, 2019 1:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I have a Kaiser Medicare Advantage plan so don't have to worry about insurance. If a Kaiser Dr schedules me for a procedure, then Kaiser automatically covers it. My treatment is as you described, except I do not have CT scans of chest and pelvis. I did have a chest CT shortly after I had the CCR but...
by prs
Fri Feb 22, 2019 4:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Great news lakeswim!!! You now have options available, and that's exactly what you wanted from the second opinion. Do take some time to absorb all the new info, I know it can take a few days to go over what the Drs were saying, and figure out exactly what they meant in layman's terms! The Drs on my ...
by prs
Thu Feb 21, 2019 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Here's hoping it all works out for you Jolene. I was very uncomfortable talking about my rectal cancer when first diagnosed, and we only told those people who would have been curious about my absences for treatment. :oops: Three years later the number of people who have seen my bare backside is in t...
by prs
Mon Feb 18, 2019 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Does the sigmoidoscopy requires a full operating theater preparation and admission(in-patient) like the colonoscopy does ? Or is it simply done at the doctor's clinic (out-patient) ? Were you under sedation ? I just googled and it says typically not, but with a scope up in the bum for 10-20 mins th...
by prs
Mon Feb 18, 2019 5:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Yes, liquid diet for 24 hours before the procedure, followed by two Fleet saline enemas, two hours before the procedure. The two enemas to be about 1/2 hour apart. I usually do an extra enema the evening before.
by prs
Mon Feb 18, 2019 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I should add my W&W program also includes an annual colonoscopy.

So like many on this board, I am a fully qualified MiraLAX expert. :mrgreen:
by prs
Sat Feb 16, 2019 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Annie50, I'm still on W&W, it's a five year program. For the first two years I had quarterly flex sigs and MRIs. Now it's every six months until the five years are up! It's a very long drive for me to get to my Drs in LA. Most often they will kindly arrange for me to have the flex sig in the ...
by prs
Thu Feb 14, 2019 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 358
Views: 103449

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene You should check this out. He is head of MSK Colorectal surgery and running the watch and wait study. I'm surprised you have not been advised to do full chemotherapy. It's called "consolidation" chemo and increases the chance of a full response. My opinion is that I would do eve...

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