thank you -proceeding with trial but need to get BP down, no chemo x 28 days , scary...

Thank you--bp still up this AM so from what I can tell no go with this trial--told them thank you for their effort (nicely) and decided that what is meant to be is meant to be- will see oncologist Monday for better meds to control bp..just so we don't add stroke to the list of illnesses at least now...

I'm 4 years since dx. Most recent surgery in NY (april) for removal of residual colon tumor and liver pump-did not go as planned they found 3 peritoneal spots -in June developed hip pain- though it was due to positioning-turns out its bone mets (who gets bone mets from colon cancer???) --anyway Onco...

thank you -MRI and CT next week and they usually show nothing-will see about Georgetown ..I cannot see just sitting here waiting for the end be it a year or 3 years and not doing anything to stop it or at least try

mike

just had surgery 4/7 @MSKCC-plan was for removal of residual colon tumor (or new one) and HAI pump for known liver mets (the liver mets are 10-15 small (3MM) nodules spread throughout.. While they were in there found 2-3 peritoneal mets (very small) also-so no HAI pump and back home to chemo I get t...

it sucks because you never know you've made the right choice-like dealing for a car (could I have done better)?? another thought see if any friends used one of the oncologist--basically you've seen 3 and 2 agree, unless I had strong reasons for doubting them -I'd go with the whichever one I was more...

thank you too--this has answered so many questions Paty is colo rectal, Kingham is liver- I forget who's going 1st-(I think liver d/t positioning for colon resection) , one of them called it "an all day affair"-hopefully liver is resection when pump go in -I think there are 12 or so 2mm is...

THANK YOU so much-those were all nagging questions we had but couldn't think about because of surgical focus
one less thing to worry about

mike

again quick thanks to all who suggested pushing past MSKCC front desk and contacting Kemeny directly--surgery next week, colon tumor out , hopefully attack liver and add pump, I searched on site looking to see peoples experience with the pump- when is 1st infusion, how frequent, how long does it run...

chemo 1st seems the way to go--I went for resection of residual tumor/node in August--they found 8-12 areas in the liver-closed me up and back on Folfiri since then (they felt if they attacked the liver then it would delay the start of chemo) so here I am 6 months later and hopefully surgery at MSK ...

we thought I had Peritoneal mets -went to UMMC (Maryland) saw Dr Alexander--turned out to be residual colon tumor but we were very happy with him
I hope you find someone closer to home though-sick travel sucks

mike

your message was the 1st thing I read on the board this AM-and I have to say sums up what I am trying do do--I still get bogged in "what ifs', listening to funeral choice music (I 'm not joking), but most of the time just enjoying the time that I still feel good--fortunately my wife plans ahead...

thank you all--UofP still without surgical date-or call back---hoping for call back today (my wife can get pushy) and she has run out of patience, have contacted MSK and asked for appt with Kemeny-they took insurance info and waiting on callback-already faxed up some history-MSK had previously said ...

I keep lurking -trying to absorb other posting, but just looking for more advice seen at University MD Med Center-was happy there but have liver mets (about 12 small)-they referred me up to Univ. of PA for liver resection/ablation-saw MD 1/4, he advised surgery in March-no date, no follow up apt, no...

thanks for going straight to Dr K--its an alternative .... will look into SIRT (after choosing location) and then Dr. K
fortunately my wife is a great advocate (better then I am)

mike