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by mike218
Fri Oct 13, 2017 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: joining a trial-emotional roller coaster
Replies: 6
Views: 1038

Re: joining a trial-emotional roller coaster

thank you -proceeding with trial but need to get BP down, no chemo x 28 days , scary...
by mike218
Wed Oct 11, 2017 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: joining a trial-emotional roller coaster
Replies: 6
Views: 1038

Re: joining a trial-emotional roller coaster

Thank you--bp still up this AM so from what I can tell no go with this trial--told them thank you for their effort (nicely) and decided that what is meant to be is meant to be- will see oncologist Monday for better meds to control bp..just so we don't add stroke to the list of illnesses at least now...
by mike218
Tue Oct 10, 2017 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: joining a trial-emotional roller coaster
Replies: 6
Views: 1038

joining a trial-emotional roller coaster

I'm 4 years since dx. Most recent surgery in NY (april) for removal of residual colon tumor and liver pump-did not go as planned they found 3 peritoneal spots -in June developed hip pain- though it was due to positioning-turns out its bone mets (who gets bone mets from colon cancer???) --anyway Onco...
by mike218
Tue Jun 13, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: so confused I don't know where to start
Replies: 6
Views: 1463

Re: so confused I don't know where to start

thank you -MRI and CT next week and they usually show nothing-will see about Georgetown ..I cannot see just sitting here waiting for the end be it a year or 3 years and not doing anything to stop it or at least try

mike
by mike218
Mon Jun 12, 2017 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: so confused I don't know where to start
Replies: 6
Views: 1463

so confused I don't know where to start

just had surgery 4/7 @MSKCC-plan was for removal of residual colon tumor (or new one) and HAI pump for known liver mets (the liver mets are 10-15 small (3MM) nodules spread throughout.. While they were in there found 2-3 peritoneal mets (very small) also-so no HAI pump and back home to chemo I get t...
by mike218
Tue Apr 04, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many opinions - deciding on treatment
Replies: 3
Views: 770

Re: How many opinions - deciding on treatment

it sucks because you never know you've made the right choice-like dealing for a car (could I have done better)?? another thought see if any friends used one of the oncologist--basically you've seen 3 and 2 agree, unless I had strong reasons for doubting them -I'd go with the whichever one I was more...
by mike218
Fri Mar 31, 2017 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: liver, colon, HAI, what to expect
Replies: 5
Views: 1214

Re: liver, colon, HAI, what to expect

thank you too--this has answered so many questions Paty is colo rectal, Kingham is liver- I forget who's going 1st-(I think liver d/t positioning for colon resection) , one of them called it "an all day affair"-hopefully liver is resection when pump go in -I think there are 12 or so 2mm is...
by mike218
Wed Mar 29, 2017 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: liver, colon, HAI, what to expect
Replies: 5
Views: 1214

Re: liver, colon, HAI, what to expect

THANK YOU so much-those were all nagging questions we had but couldn't think about because of surgical focus
one less thing to worry about

mike
by mike218
Tue Mar 28, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: liver, colon, HAI, what to expect
Replies: 5
Views: 1214

liver, colon, HAI, what to expect

again quick thanks to all who suggested pushing past MSKCC front desk and contacting Kemeny directly--surgery next week, colon tumor out , hopefully attack liver and add pump, I searched on site looking to see peoples experience with the pump- when is 1st infusion, how frequent, how long does it run...
by mike218
Fri Feb 24, 2017 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New spots on the liver
Replies: 9
Views: 1443

Re: New spots on the liver

chemo 1st seems the way to go--I went for resection of residual tumor/node in August--they found 8-12 areas in the liver-closed me up and back on Folfiri since then (they felt if they attacked the liver then it would delay the start of chemo) so here I am 6 months later and hopefully surgery at MSK ...
by mike218
Fri Feb 24, 2017 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Results – Need HIPEC recommendations
Replies: 7
Views: 1387

Re: CT Results – Need HIPEC recommendations

we thought I had Peritoneal mets -went to UMMC (Maryland) saw Dr Alexander--turned out to be residual colon tumor but we were very happy with him
I hope you find someone closer to home though-sick travel sucks

mike
by mike218
Fri Feb 24, 2017 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Going for It
Replies: 27
Views: 3523

Re: Going for It

your message was the 1st thing I read on the board this AM-and I have to say sums up what I am trying do do--I still get bogged in "what ifs', listening to funeral choice music (I 'm not joking), but most of the time just enjoying the time that I still feel good--fortunately my wife plans ahead...
by mike218
Tue Jan 31, 2017 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: how patient should you be
Replies: 10
Views: 1426

Re: how patient should you be

thank you all--UofP still without surgical date-or call back---hoping for call back today (my wife can get pushy) and she has run out of patience, have contacted MSK and asked for appt with Kemeny-they took insurance info and waiting on callback-already faxed up some history-MSK had previously said ...
by mike218
Thu Jan 26, 2017 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: how patient should you be
Replies: 10
Views: 1426

how patient should you be

I keep lurking -trying to absorb other posting, but just looking for more advice seen at University MD Med Center-was happy there but have liver mets (about 12 small)-they referred me up to Univ. of PA for liver resection/ablation-saw MD 1/4, he advised surgery in March-no date, no follow up apt, no...
by mike218
Mon Dec 12, 2016 12:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: terminal or not??
Replies: 13
Views: 2361

Re: terminal or not??

thanks for going straight to Dr K--its an alternative .... will look into SIRT (after choosing location) and then Dr. K
fortunately my wife is a great advocate (better then I am)

mike

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