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by CrossfitChick1980
Wed Aug 21, 2019 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 620
Views: 88299

Re: If you want prayer stop in here!

Hello, I would like to request prayer. Ever since my husband passed away, I have been struggling in so many ways. For those who pray, please pray for me, our 4 daughters, and the will to continue on despite this life being so different.
by CrossfitChick1980
Wed Jun 19, 2019 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 1822

Re: Stage IV parents with young child(ren)

When my husband was going through treatment (he was on chemo for the rest of his life), we made it a point to still have fun as a family. Our girls were 9, 8, 7 and we had our youngest the year he was diagnosed. When he was tired, we sang karaoke and jammed out at the house. When he was on maintenan...
by CrossfitChick1980
Thu May 02, 2019 6:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri after Folfox fails
Replies: 8
Views: 1118

Re: Folfiri after Folfox fails

My husband had shrinkage in the tumor in his liver with FOLFOX but after a scan, the oncologist realized that while the liver was responding, two lymph nodes in his chest had actually grown. He was switched to FOLFIRI and his liver tumors disappeared. His lymph nodes no longer lit up on scan and so ...
by CrossfitChick1980
Tue Feb 12, 2019 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help! Husband relapsed with ascites and will start Erbitux and irenotican
Replies: 3
Views: 838

Re: Please help! Husband relapsed with ascites and will start Erbitux and irenotican

My husband had ascites prior to trying Folfiri again with Avastin. It seemed like he was better for a few days, with reduction in lymphedema and ascites. However, it was only temporary as he declined pretty rapidly after starting folfiri. He had quite a bit of anxiety so Ativan was our friend during...
by CrossfitChick1980
Sat Dec 22, 2018 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Heart Is Gone
Replies: 17
Views: 3565

My Heart Is Gone

I knew it was towards the end. I knew that he would not be here much longer and in knowing that, so many of our interactions were so meaningful. For two days, my husband went between lucidity and being cloudy headed. He was brutally honest in telling people to get out of his face and to stop fussing...
by CrossfitChick1980
Thu Dec 20, 2018 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you know it was the end?
Replies: 8
Views: 2554

Re: How did you know it was the end?

Thank you all for your responses. I have found peace that my husband has fought for so long and right now, it is his time to rest. He has given our kids and I so many memories in our almost 15 year marriage. We have survived a deployment together to Afghanistan ( leaving our children with my parents...
by CrossfitChick1980
Mon Dec 17, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you know it was the end?
Replies: 8
Views: 2554

How did you know it was the end?

My DH said it so simply, "So, we are here." The mets in his liver are growing, despite one round of chemo, he has ascites and is very confused. His bilirubin is through the roof and after a lengthy conversation, he said he wanted to just go home and do hospice. My question for any caregive...
by CrossfitChick1980
Mon Dec 17, 2018 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking For Help With A Study
Replies: 5
Views: 1442

Re: Looking For Help With A Study

Hello, my husband was medically retired from the Army and they service connected it simply because, 1: He did not have any real family history; 2: He was deployed twice, both times with exposure to smoke pits. His case was thoroughly gone through as it took them a year and a half to medically retire...
by CrossfitChick1980
Thu Dec 13, 2018 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerversary
Replies: 8
Views: 1122

Re: Cancerversary

I'm with you on this bring the crappy year. The last Christmas that we experienced rough chemo and husband's fatigue was back in 2015. Trying to keep the holiday cheer but it is hard when my husband isn't doing well.
by CrossfitChick1980
Sun Dec 02, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX failed
Replies: 14
Views: 1790

Re: FOLFOX failed

My husband was diagnosed at 31 as well, so sorry for what you are going through. My husband was initially treated with just 5FU and a short month after finishing chemo, a spot on his liver lit up. His second line of chemo was FOLFOX and while it worked to get rid of his liver Mets completely, he had...
by CrossfitChick1980
Wed Nov 28, 2018 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri A Second Time
Replies: 3
Views: 910

Re: Folfiri A Second Time

Thank you for your words of wisdom. Definitely looking into Celebrex with this Folfiri+Avastin regimen this time. Just now started becoming invested in supplements to help aid my DH. Wish I would have known all I know about supplement use that may have aided my husband when he was just in maintenanc...
by CrossfitChick1980
Thu Nov 22, 2018 7:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri A Second Time
Replies: 3
Views: 910

Folfiri A Second Time

Recently, my DH had the therasphere procedure on his liver and it seems it did not provide any help. My husband is currently in Lonsurf but his oncologist wanted to put him on a more aggressive chemo - Folfiri w/Avastin. He has already had this type of chemo in the past so I wanted advice from peopl...
by CrossfitChick1980
Tue Nov 13, 2018 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma PT3,PN2
Replies: 5
Views: 813

Re: Adenocarcinoma PT3,PN2

Hello, my husband was diagnosed at 31 years of age with adenocarcinoma in the small bowel. From my signature, we have run the gamut of chemotherapies. He was actually NED after folfiri chemotherapy (5fu and iritican). He has never had the cancer return to his colon and has had the most complications...
by CrossfitChick1980
Thu Nov 08, 2018 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 2553

Re: Worried -genetic results are in. KRAS MSS

My husband is KRAS, MSS with condone 12/13 mutation. He is still alive and kicking but going through a rough spot right now. He has been on almost every chemo with the greatest success on Folfiri+Avastin. He stayed on maintenance 5fu and Avastin for over 2 years before a pesky spot showed up in his ...

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