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by pete305
Thu Jul 27, 2023 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ever feel this way?
Replies: 10
Views: 1757

Re: ever feel this way?

thank you Valley P-23. wishing you continued peace.
by pete305
Mon Jul 03, 2023 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3559
Views: 777871

Re: Wives of husbands with Stage IV Colon Freaking Cancer

OMG!!!! i have been lurking as the wife of pete305 since 2015 and did not know this thread exists. Gosh i needed all of you caregivers and significant others throughout these years. the helplessness and almost desperation i have felt during the low times is likely paralleled by each of you but i did...
by pete305
Mon Jul 03, 2023 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ever feel this way?
Replies: 10
Views: 1757

Re: ever feel this way?

Supposedly going to start chemo again but wonder what’s the point If I can’t get liver surgery because of a lymph node why go through treatments that will only make me feel worse. I’m ready to give up. I don’t know where to turn . that feeling exactly is what motivated my initial post. i hope you t...
by pete305
Mon Jun 26, 2023 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ever feel this way?
Replies: 10
Views: 1757

Re: ever feel this way?

wife of pete305 here..... thanks so much for the responses. believe it or not it is helpful to read the other signatures. those sure show "we" are not alone. it's like every time there is bad news or discouraging news or just plain frustration, just read the signatures and know there are o...
by pete305
Tue Jun 20, 2023 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on Irinotecan, 5FU, and Avastin experience
Replies: 4
Views: 1109

Re: Question on Irinotecan, 5FU, and Avastin experience

anxious for input from others. avastin just added to my 5FU. had allergic reaction to oxaliplatin and irinotecan.
by pete305
Tue Jun 20, 2023 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ever feel this way?
Replies: 10
Views: 1757

ever feel this way?

bad topic - anyone ever get tired of the chemos and side effects and medications and waiting for that other shoe to drop? how to keep from getting discouraged?
by pete305
Tue Feb 21, 2023 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who are the longest stage 4 survivor's on here?
Replies: 136
Views: 73736

Re: Who are the longest stage 4 survivor's on here?

it hasn't been an easy road, or even a symptom free road, but he's still here. diagnosed and surgery 2015. port that is still being used inserted december 2015!!!!
by pete305
Sun May 02, 2021 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: developed fecal incontinence or diarrhea
Replies: 1
Views: 958

developed fecal incontinence or diarrhea

almost 6 years post colon cancer/re-section with 2 liver ablations since then - and the associated 3 rounds of chemo. Doing well, no current elevated CEA but now have developed a form of fecal incontinence. Like diarrhea, it comes on suddenly and sometimes don't even know it's happening until after ...
by pete305
Thu Jun 27, 2019 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 1779

Re: Levsin (Hyoscyamine) for LARS

wife takes hyoscyamine for non-cancer gastro issues. considers it her lifeline drug as it calms the "caffein jitters" that her IBS gives her. Takes as needed and has used it for about 8 years.
by pete305
Sat Nov 04, 2017 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what if you don't do chemo?
Replies: 7
Views: 1756

Re: what if you don't do chemo?

NHMike wrote:You make this decision at every stage of treatment. .......
. They've been right so far.


NHMike, wishing you the best and brightest road to recovery.
by pete305
Sat Nov 04, 2017 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what if you don't do chemo?
Replies: 7
Views: 1756

Re: what if you don't do chemo?

Maggie Nell - after the oncologist got involved the surgeon called on a monday (10/23) and set the surgery for wednesday (10/25). pathology confirmed the CC metastasized to the liver. RFA via laparoscopic procedure. i know my question is a sensitive one. i know every step of the way is a new decisio...
by pete305
Fri Nov 03, 2017 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what if you don't do chemo?
Replies: 7
Views: 1756

what if you don't do chemo?

by earlier posts my husband discloses his solitary liver met, his recent RFA, and the oncologist recommendation for 6 months of chemo with something other than oxaliplatin, most likely irinotecan. this time it's me writing, the wife. husband has decided that he does not want to do chemo. he actually...
by pete305
Thu Nov 02, 2017 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: treatment for liver met
Replies: 4
Views: 1556

Re: treatment for liver met

went to oncologist and discussed treatment plan. preferred is folfox for 12 treatment sessions - (6 months) - but since can't tolerate oxaliplatin the plan is to go to irinotocan (sp?) instead. so it will be infusion and then bringing the portable pump home for 2 days just like it was for the initia...
by pete305
Tue Oct 31, 2017 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: treatment for liver met
Replies: 4
Views: 1556

treatment for liver met

liver met treated via RFA last week, 10/25/17. (my CC history in signature below) now to meet the oncologist. what have some of you experienced as far as treatment recommendations? it would help so much to be informed when we go to the oncologist to know what is out there. almost everything i have r...

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