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by SurvivorsSpouse
Thu Sep 06, 2018 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phase 2 vs Phase 3 trials
Replies: 4
Views: 435

Re: Phase 2 vs Phase 3 trials

In researching treatments for cancer, in patients under active treatment, there is no placebo arm. The studies are testing vs current line treatments. So, the treatment is either standard line treatment or with the study drug/protocol. No one will tell a cancer patient that you risk receiving placeb...
by SurvivorsSpouse
Wed Jul 25, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CHEMO? Any Stage 2a or 3 Rectal Cancer survivors that didnt do Chemo?
Replies: 5
Views: 546

Re: CHEMO? Any Stage 2a or 3 Rectal Cancer survivors that didnt do Chemo?

My wife is 6 years NED from stage 2A Rectal 12cm from the anal verge, no high risk factors and no chemo. 2A Rectal is though to be overtreated with Chemo. There is a lot of work going on to figure out when it is right and when it is overkill. Only you can make the decision that you can sleep with at...
by SurvivorsSpouse
Sat Jul 07, 2018 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 4305

Re: Are we doing everything we can?

This looks like the tumor was a T3 and 3mm from the anterior abdominal wall adhesion. I don’t see where it says the tumor itself adhered to the wall. This would place the stage at 2A, which is questionable when it comes to chemo. The distance of 3mm from the margin and Grade 2 (moderate) might push ...
by SurvivorsSpouse
Mon May 28, 2018 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about rectosigmoid cancer......
Replies: 6
Views: 439

Re: Question about rectosigmoid cancer......

Hi. The determination of treating as rectal or colon is generally made by where the tumor is in relation to the Peritoneal Reflection. Treatment will depend on stage based on imaging studies. A CT scan will be scheduled and maybe an MRI. The CT scan will look for spread to other organs/structures an...
by SurvivorsSpouse
Sun May 27, 2018 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed stage 2a @ 38
Replies: 8
Views: 649

Re: newly diagnosed stage 2a @ 38

My wife was diagnosed 2A after pathology 5 1/2 years ago with no high-risk factors. Our oncologist discussed a chemo option with us but said he recommended against it because at stage 2A with no high risk factors there was a very small percentage improvement vs the potential for liver damage. Additi...
by SurvivorsSpouse
Fri May 25, 2018 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband diagnosed with rectosigmoid cancer...overwhelmed!
Replies: 8
Views: 666

Re: Husband diagnosed with rectosigmoid cancer...overwhelmed!

Hi Daniellabella—welcome to the best club nobody ever wants to have to join! I see that you have posted on the tail end of a few threads as well as starting your own—always good to start your own thread like this when you want a lot of traffic to see your questions, etc. I am by no means an expert,...
by SurvivorsSpouse
Tue May 01, 2018 7:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Déjà vu
Replies: 11
Views: 1271

Re: Déjà vu

Good luck. One thing to keep in mind is that your paperwork will get reviewed by insurance prior to approval for surgery. “Colon cancer”is most likely something he used as the ICD code to make approval sail through without much question. Otherwise, insurance may hav come back with questions and revi...
by SurvivorsSpouse
Tue Jan 02, 2018 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What a difference a year makes! UPDATE
Replies: 25
Views: 2514

Re: What a difference a year makes! UPDATE

A little hope for you, my wife went through the same journey. We thought it was stage 1 from the scans, but it turned out she was stage 2 after surgery.

5 years NED in Sept or 2017!!

Good luck on your journey.
by SurvivorsSpouse
Thu Dec 21, 2017 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swollen lymph node in groin... almost 5 years NED
Replies: 3
Views: 721

Re: Swollen lymph node in groin... almost 5 years NED

Swollen groin nodes can be a thousand things that aren’t cancer. From bug bites to infected ingrown hairs, there are plenty of things that can make a node mad enough to swell.
by SurvivorsSpouse
Sun Oct 22, 2017 6:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 226190

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

... Your notes mentioned bi-lateral ureter stents. Do you know why they are doing this? Is it because the radiation may have weakened the ureter walls? Any idea why this is necessary and what complications may develop? Other members who have had laparoscopic-assisted LARs may chime in later on with...
by SurvivorsSpouse
Thu Sep 21, 2017 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Dad
Replies: 6
Views: 886

Re: My Dad

Sorry to hear of your troubles. Can you get your dad to Georgetown? That is an NCI designated center that might be good for a 2nd opinion.
by SurvivorsSpouse
Thu Sep 21, 2017 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GI Surgeon wants chest added back to my ct scan
Replies: 23
Views: 4052

Re: GI Surgeon wants chest added back to my ct scan

My ct doesn't cover the neck area because my endocrinologist told me that I no longer need a biopsy. During the second thyroid ultrasound the technician said the radiologist said it looked like a collection of cysts and not a nodule. I assume that's why I won't need a thyroid biopsy. I see my endoc...
by SurvivorsSpouse
Tue Sep 19, 2017 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health insurance coverage
Replies: 6
Views: 892

Re: Health insurance coverage

We are on United through my employer and it has been great for us with my wife for the past 5 years starting at surgery and in to surveillance. We have access to the major cancer centers in network and are currently using Duke for scans/surveillance with an onc. The only issue was a procedure that c...
by SurvivorsSpouse
Wed Sep 13, 2017 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation AFTER resection
Replies: 3
Views: 1393

Re: Chemo/radiation AFTER resection

If Stage 2A, ask to understand why he wants to do adjuvant chemoradiation. There may be some risk factors like close margins, grade, lymphovascular invasion etc. 2A can go either way with oncologists generally recommending further treatment if higher risk factors are there. Folks without higher risk...

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