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by OrchardWriting
Wed Jun 08, 2016 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowl Prep Question
Replies: 3
Views: 606

Re: Bowl Prep Question

I agree with pathfinder. There are things you can do to help, but you want to speak with the doc or nurse in his office.
by OrchardWriting
Mon Jun 06, 2016 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to expect for liver resection recovery
Replies: 18
Views: 2329

Re: What to expect for liver resection recovery

The immediate issues for me were the after surgery pain (I had about a twelve inch long incision in my abdomen). The best thing is to walk as soon as possible after the surgery even if it is for just a few steps. This will help prevent adhesions and other issues. There was also the complete numbness...
by OrchardWriting
Mon Jun 06, 2016 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cannabis oil - breathlessness
Replies: 12
Views: 2289

Re: Cannabis oil - breathlessness

I would add that the oils and edible marijuana are much stronger than the smoked leaf, which itself is pretty strong these days. I didn't do the oil or an edible for this reason. Instead I put a very small punch in a one hit pipe took the small hit and exhaled and that was enough to ease the chemo i...
by OrchardWriting
Tue May 31, 2016 7:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gas!!!
Replies: 10
Views: 1243

Re: Gas!!!

Gas is the bane of my life. If I have to be at some event that will be quiet and around people I will not have so much as a thfft until everyone sits down and the room is quiet. Then it is a continuing embarrassment. It has happened in all sorts of places and once so loud in the Boston Museum of Fin...
by OrchardWriting
Fri May 13, 2016 7:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer Causes
Replies: 13
Views: 1789

Re: Cancer Causes

I'm with bad luck/genes. I know people who drink like fish and smoke and eat crap and nothing, though that will catch up with them eventually. There are others who lived active healthy lifestyles, even vegans and so on, and they are no longer with us. The one theory that feels like it makes sense, b...
by OrchardWriting
Wed May 11, 2016 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA spike from 1.1 to 6.1
Replies: 6
Views: 1236

Re: CEA spike from 1.1 to 6.1

Well worth reaching out to your oncologist especially since your last CT was a year ago. Could be nothing, but best to be sure now with another CEA and then CT scan rather than take a wait and see approach.
by OrchardWriting
Wed May 11, 2016 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On My Way to the Land of Semi-Colon
Replies: 8
Views: 1036

Re: On My Way to the Land of Semi-Colon

Best of luck. Be well and know we're here to help.
by OrchardWriting
Fri Apr 29, 2016 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 6314

Re: Any Stage IV long term survivors here?

Also, poet Donald Hall, former poet laureate of the US, was diagnosed with stage iv in about 1995 and is still kicking around his farm.
by OrchardWriting
Wed Apr 27, 2016 6:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer- Staging question? Follow Mop up Chemo??
Replies: 15
Views: 2256

Re: Rectal cancer- Staging question? Follow Mop up Chemo??

I did the mop up chemo too. It was hard, but I made it through. As you go along there are a lot of people here who can help with dealing with side effects.
by OrchardWriting
Wed Apr 27, 2016 6:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy blues
Replies: 5
Views: 928

Re: Neuropathy blues

I had fairly severe neuropathy up to my knees and elbows, but after treatment I walked as much as I could stand without pushing too hard and used my hands to type and so on. After a while it eased considerably so that it is only in the tips of my fingers and bottoms of my feet.
by OrchardWriting
Mon Apr 25, 2016 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 6314

Re: Any Stage IV long term survivors here?

As to chemo questions: Chemo affects everyone differently and there are a range of side effects he can experience. Some people have very little problems while others get very sick. I was among the very sick. As to premeds, you have to be careful you don't take something that lessens the effectivenes...
by OrchardWriting
Mon Apr 25, 2016 7:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 38
Views: 6314

Re: Any Stage IV long term survivors here?

Stage iv two and a half years ago with a 5 cm tumor in my liver after rectal cancer. Still sweating it, but knock on wood so far so good.
by OrchardWriting
Mon Apr 25, 2016 7:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Enema therapy
Replies: 9
Views: 1606

Re: Enema therapy

I have a colostomy and irrigate as well as take senna. I try to only take the senna when I am backed up, but the irrigation works well most days. Every so often it falls short.
by OrchardWriting
Mon Apr 25, 2016 7:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ewwww more sticky poo... UPDATED
Replies: 9
Views: 1775

Re: Ewwww more sticky poo...

PS

You also have to play around with diet. The big problem is that the things that help keep you regular also tend to cause gas. Nuts and raw carrots are okay for me, but I wish I could eat far more veggies without terrible gas.
by OrchardWriting
Mon Apr 25, 2016 7:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ewwww more sticky poo... UPDATED
Replies: 9
Views: 1775

Re: Ewwww more sticky poo...

Since the chemo I am perpetually constipated. The first thing is to drink plenty of water. Also warm liquids at night and in the morning such as an herb tea. I also use Senakot that has a stool softener and that keeps things moving. You have to kind of experiment around, but the chemo did a number o...

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