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by Soccermom2boys
Wed May 30, 2018 9:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 416
Views: 36623

Re: NEW-Need some positivity here.

It’s been a terrible ride and I want to get off. Isn’t that the truth?! :lol: Definitely enjoy the good news, it was hard earned! I feel your concern with the lymph nodes, but many on here have had LN involvement and are NED many years out, so why can’t we be as well, right?! From one teacher to an...
by Soccermom2boys
Wed May 30, 2018 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 29
Views: 1486

Re: The Miseries - But 'Hey I have it pretty good...'

And as from my 'autograph' I pray a lot. Currently with questions galore..!? Just a thought, but when I was first diagnosed in August of 2015 I stumbled across a book by Michele Cushatt—she was writing about her recent experience with cancer (tongue) in her memoir “Undone”. Michele is very steadfas...
by Soccermom2boys
Tue May 29, 2018 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 911

Re: CEA dropped!

Woo hoo—party time! Totally reminds me of doing the Limbo: how low can you go?!

Seriously, Shana, soooooo happy for you and the hope this brings your way. :D
by Soccermom2boys
Tue May 29, 2018 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 29
Views: 1486

Re: The Miseries - But 'Hey I have it pretty good...'

What has hit is the real bad miseries!????? Totally illogical BUT WOW pretty rough. There is nothing illogical about it—your brain and emotions have just caught up to you now that you are back home and taking a respite from active treatment. It is easy to see how people can suffer from PTSD after d...
by Soccermom2boys
Mon May 28, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about rectosigmoid cancer......
Replies: 6
Views: 247

Re: Question about rectosigmoid cancer......

Tomorrow is the appointment with the surgeon. We are both a nervous wreck! Yes, that appointment will be mentally exhausting, but also very important for the framework of your husband’s near future. I would recommend using your cell phone to record the visit (I definitely did for the early key meet...
by Soccermom2boys
Fri May 25, 2018 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 39 degree C temp.....(102 F) just 2 days after sigmoidoscopy....
Replies: 7
Views: 240

Re: 39 degree C temp.....(102 F) just 2 days after sigmoidoscopy....

Ugh, so sorry you are not only dealing with the shock of learning he has cancer, but also his wanting to just not deal with it. Obviously we can’t know him the way you do, but perhaps it is just a short-term coping mechanism and he will indeed go for the colonoscopy after he has a few days to take i...
by Soccermom2boys
Thu May 24, 2018 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband diagnosed with rectosigmoid cancer...overwhelmed!
Replies: 8
Views: 422

Re: Husband diagnosed with rectosigmoid cancer...overwhelmed!

Hi Daniellabella—welcome to the best club nobody ever wants to have to join! I see that you have posted on the tail end of a few threads as well as starting your own—always good to start your own thread like this when you want a lot of traffic to see your questions, etc. I am by no means an expert, ...
by Soccermom2boys
Tue May 22, 2018 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clean Scan May 14- 7 year survivor, about 2 yr 7 month NED
Replies: 2
Views: 225

Re: Clean Scan May 14- 7 year survivor, about 2 yr 7 month NED

Aww, what an awesome post—thanks so much for sharing! Here’s to many more clean scans in her future! :D
by Soccermom2boys
Tue May 15, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation / Chemo Treatment then a Stroke
Replies: 7
Views: 723

Re: Radiation / Chemo Treatment then a Stroke

I agree that painkillers are a necessity at times, just be mindful that they also can bring on constipation and with your radiation causing you so much pain, that is likely to exasperate it. Ask if there is something you can take for pain that will not affect your bowel movements too much. You have ...
by Soccermom2boys
Tue May 15, 2018 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 41
Views: 5633

Re: Surviving radiation for rectal cancer

You are cracking me up, SteveNZ, with your descriptions of dealing with bowel movements during radiation! Sadly I know all too well of your pain. Two tips to help ease the pain a bit: ask for a sitz bath, those were my “treat” several times a day during the last two weeks or so of radiation. Also, i...
by Soccermom2boys
Wed May 02, 2018 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 43
Views: 2681

Re: Scan scheduled

Good luck with your upcoming scan, Heiders! You are absolutely right, nothing at work is worth any excess stress—we have been through a lifetime’s worth of stress dealing with our cancer diagnosis, definitely puts the “little stuff” in perspective. I am two years out from finishing my treatments and...
by Soccermom2boys
Sun Apr 29, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2108

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

Starting to feel 'really rotten' so finding ways to laugh and smile. SMILE EVENT 1: :D My dad and step mum are in a nice old folks home, nearby to where we are staying. *I live in another city so do get to see them much. So I get to see dad which is great. He is getting older quickly and both dad a...
by Soccermom2boys
Sun Apr 29, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0
Replies: 44
Views: 4628

Re: Life Earthquake: Wednesday Feb 21 Rectal Cancer T3C N2 M0

I have been able to balance working and having my clients not know what is going on with my diagnosis or treatment as it would be destructive to my business. Any hints on what to do to power through the systemic chemo as strongly as possible will be appreciated. I will be taking oxaliplatin, 5 fu a...
by Soccermom2boys
Mon Apr 23, 2018 10:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last Folfox (#12) on Friday!
Replies: 2
Views: 406

Re: Last Folfox (#12) on Friday!

Yay Appletree, so happy for you! 12 rounds of FOLFOX, that is a feat—way to go! It is so hard to see there being an end to the treatments for the bulk of the time you are going through them, but once you get down to the last few you can look back and realize you are capable of more than you think. R...
by Soccermom2boys
Fri Mar 23, 2018 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 112
Views: 13721

Re: New Member here on the forum

Hey girls—was reading through your chemo experiences and wanted to share something I found helpful. Between the pins and needles and that occasional cramping/muscle locking of your hands, I found a microwaveable gel heating pack to be a go-to resource during my four months on FOLFOX. They cost aroun...

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