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by Soccermom2boys
Wed Jan 17, 2018 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 40
Views: 1257

Re: Facing a permanent stoma

Yay, good to hear from you and that all is going as well as it can just a week out of surgery! The no sitting is challenging, I lived on my recliner sofa for a good two months after the surgery so that I was not directly sitting on that area while it tried to heal. Get as much walking in as you can,...
by Soccermom2boys
Sat Jan 13, 2018 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy
Replies: 4
Views: 215

Re: Colostomy

Welcome to the club! It sounds like it was your decision so hopefully that makes it easier on you for the long term. Truly not the horrible scenario that so many perceive it to be, just different. Take it easy for the first few months and then before you know it this will become more normal to you. ...
by Soccermom2boys
Mon Jan 08, 2018 12:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 618
Views: 39406

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Hey, NHMike, I just saw that the $500+ billion Powerball winner is from NH—any chances you’re the lucky player??? :lol:
by Soccermom2boys
Sun Jan 07, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 27
Views: 894

Re: Chemotherapy Journey

LOL but yeah, I pooped the pellets so I am taking that as normal. It’s funny because you can so easily swing from diarrhea to constipation. Just do your best to drink as much water/fluids as you can possibly take in each day, I suspect that was partly why I might have had some pellets in the earlier...
by Soccermom2boys
Sun Jan 07, 2018 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 559

Re: Anyone doing xelox and xeloda. Please help

Taking the pills for 14 days straight is the part I don’t like . Sigh! I just don’t want to do the pills at all Have you considered switching to FOLFOX? No pills needed for that one. Yes, you have a pump attached to you for 48 hours every two weeks, but it’s more manageable than it sounds. I person...
by Soccermom2boys
Sun Jan 07, 2018 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 40
Views: 1257

Re: Facing a permanent stoma

Thank you everyone for all of your comments. I am doing my surgery prep today. By this time tomorrow I should be in the recovery room. talk to you soon Beth Good luck, Beth! The unknown is so much scarier than reality, once you get some time under your belt you’ll be fine and may very well apprecia...
by Soccermom2boys
Sun Jan 07, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 15
Views: 481

Re: Port Removal

I think this will in all likelihood be the easiest part of all you have been through in the past two years! :lol: I can only speak for my experience, but I was not in any way sedated for the removal—just a heavy shot of something to numb that area. I had mine in for a full year after treatments fini...
by Soccermom2boys
Sun Jan 07, 2018 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 994

Re: Miss Molly, Hope you are okay. . .

I was on the UOAA site and Karen posted on there a few days ago that her beloved Ms. Molly passed away around the holidays. As we know from her many posts on here, Molly meant a lot to Karen. She said that Molly was almost 15 years old. Breaks my heart to pass on the news, but I am guessing that is ...
by Soccermom2boys
Thu Jan 04, 2018 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spleen and liver enlargement after Neulasta
Replies: 7
Views: 254

Re: Spleen and liver enlargement after Neulasta

I am not sure how helpful this will be to build your case, but I took Neulasta 4 or 5 times over the course of my 8 FOLFOX treatments (February to June 2016). When I completed my treatments and did the follow up CT scan at the end of June 2016, it was noted that my spleen was enlarged. I didn’t do a...
by Soccermom2boys
Thu Jan 04, 2018 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting gabapentin
Replies: 9
Views: 401

Re: Starting gabapentin

For anybody that has taken or is taking gabapentin, what can I expect? Side effects? How much improvement have you seen? I finished my 8th and last treatment of FOLFOX on June 2, 2016. All 8 were the full dose of Oxaliplatin. I had only just started to feel any tingling in my toes the week before m...
by Soccermom2boys
Thu Dec 28, 2017 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 40
Views: 1257

Re: Facing a permanent stoma

Figure out where your clothes' waistbands are! She is right on the money! I would honestly suggest you take in a few clothing items to try and see. When we were marking for mine we had a few spots I was deciding between and I wish I had chosen mine about a half inch lower because I too feel like th...
by Soccermom2boys
Sat Dec 09, 2017 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 2181

Re: CT Scan Just came in Liver Met (one)

Anyone do the 2day on 12 day off regimen of folfox/oxalaplatin with pump for 3 months, 6 treatments? Is the chemo tough when given like this? Also installation of the port, is that scary? Yep! I did a total of eight treatments over the course of four months, had a setback after the fourth treatment...
by Soccermom2boys
Tue Dec 05, 2017 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some things that have helped me - chemo side effects
Replies: 7
Views: 368

Re: Some things that have helped me - chemo side effects

I also have hand cramping, but I haven't figured out anything to help with that except perhaps some light massaging. I totally remember the hand cramping. I purchased an inexpensive gel pack from Walgreen’s that you can microwave (at most for 30 seconds) and then would hold that in my hands and the...
by Soccermom2boys
Thu Nov 30, 2017 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: oxaliplatin side effects - 9 years after treatment
Replies: 31
Views: 1261

Re: oxaliplatin side effects - 9 years after treatment

I have a new side effect and the oncologist says it's not from oxi. When I bend my head down, it feels like an electrical impulse shoots across the tops of both feet. It only happens when I bend it down. While this is not a side effect I personally had from Oxaliplatin, I have read that one from se...
by Soccermom2boys
Sat Oct 28, 2017 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband recovering from LAR and need opinions on Path report please!
Replies: 13
Views: 910

Re: Husband recovering from LAR and need opinions on Path report please!

My husband is now just hoping he is able to work his job through all of this as he is the main bread winner. He really worries about this. Glad to hear that you feel good about the path ahead, that really makes a difference mentally. Just wanted to say that when you meet for a chemo teaching sessio...

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