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by Soccermom2boys
Sun Jul 16, 2023 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I think it could be the end? (spine mets?)
Replies: 97
Views: 5452

Re: I think it could be the end? (spine mets?)

Initially I just felt like I pulled a muscle in my groin (left side)—first noticed it on a Friday afternoon but didn’t think too much about it. It continued to feel like a pulled muscle, I went for a light walk around my neighborhood the following afternoon, it felt weird, but I could walk—then I fe...
by Soccermom2boys
Sun Jul 16, 2023 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I think it could be the end? (spine mets?)
Replies: 97
Views: 5452

Re: I think it could be the end? (spine mets?)

Hey! Just something to ask about, probably not the case, but everything you have said about in your left leg reminded me of when I found out I had May-Thurner Syndrome . Look it up and see if it matches what you are feeling. I would think it would have been diagnosed if you had an ultrasound of your...
by Soccermom2boys
Sun Jan 31, 2021 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING Updated >>> 2023 November <<<
Replies: 29
Views: 57530

KRAS G12C Mutation—Amgen scientists working to challenge this mutation

Check out this article from USA TODAY: Amgen scientists’ rapid work to challenge the undruggable KRAS G12C mutation in cancer https://www.usatoday.com/story/sponsor-story/amgen/2021/01/27/amgen-scientists-rapid-work-challenge-undruggable-kras-g-12-c-mutation-cancer/6656349002/ Came across this as I ...
by Soccermom2boys
Wed Aug 19, 2020 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery scheduled. Need your advice
Replies: 9
Views: 2114

Re: APR surgery scheduled. Need your advice

Hi Dave! I have had the surgery you are planning for and wanted to answer some of your questions. As best as you can, plan on how the ostomy will be affected by the waistline of your clothing. You do have to consider that in general there is a limited amount of space so to speak for where they can p...
by Soccermom2boys
Sun Jul 05, 2020 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Poor bowel habits/long term colostomy
Replies: 4
Views: 1122

Re: Poor bowel habits/long term colostomy

https://www.identifyepi.com/ I heard about this (Click on link above) on the radio recently and was looking it up because of some issues my dad has been having. And then when I read your post followed by CRGuy’s comment I thought this may be a place for you to at least check out and bring up to a d...
by Soccermom2boys
Tue Feb 18, 2020 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 1682

Re: HELP! Post surgery pain

Hi Marie— I hope your husband is feeling better, figuring out what the issue is. I can share a few experiences from my own situation—I had the same surgery a little over four years ago. I don’t know how long his pain lasted or it’s specifics, but I absolutely recall the jarring, completely out of no...
by Soccermom2boys
Wed Feb 05, 2020 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Twelve year old Niece has surgery tomorrow
Replies: 9
Views: 2175

Re: Twelve year old Niece has surgery tomorrow

Life really can be so unfair and just plain sucky sometimes! I will have your niece in my thoughts as she recovers from this surgery. I am someone with a permanent colostomy so I just wanted to chime in to say have them check out the UOAA website for people of all ages and reasons for having an osto...
by Soccermom2boys
Mon Feb 03, 2020 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery coming scared and questions
Replies: 3
Views: 1240

Re: APR surgery coming scared and questions

Hi Paul— I had your same surgery just over four years ago so I can share with you my experience. I went in for the surgery on a Thursday morning and I was in the hospital until the following Tuesday so a total of five nights. I was up and walking for sure by Friday (the day after)—I don’t believe I ...
by Soccermom2boys
Mon Jan 20, 2020 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Barbie Butt question?
Replies: 3
Views: 1341

Re: Barbie Butt question?

Hey Paul— I am in the Barbie Butt club. LOL In general, your healing will be different because you are only a few months out from the initial surgery and I am guessing you have also had some chemo treatments as well, right? I had my permanent colostomy surgery about seven weeks after completing radi...
by Soccermom2boys
Tue Aug 27, 2019 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 30485

Re: Newly diagnosed rectal cancer

Even better, buy a pill box that does a.m. and p.m. for the week. They are only a few bucks at pharmacy and for sure helps to see if you have taken it at both times during the day. I would then sit down on Sunday night and count out the pills for the following week.
by Soccermom2boys
Thu Aug 22, 2019 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 162
Views: 36872

Re: Take me away to that special place - Picture Thread

Where to begin?!? All of these pics are awesome—thanks everyone for sharing! This is my favorite thread because it gives you such a neat glimpse in to our non-CRC lives. Seriously Peanut—those pups are beyond adorable—how can you not want them all?!? I am looking forward to sibling pics of Fonzie wi...
by Soccermom2boys
Thu Aug 22, 2019 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had my surgery...ended up with colostomy bag
Replies: 6
Views: 1511

Re: Had my surgery...

Hi Cmarie—glad to hear your surgery came with clear margins—words you definitely want to hear! I am responding as someone who also had to have a permanent colostomy, although I was told in advance of the surgery I would need one as the tumor was butting up against my anal sphincters so it all had to...
by Soccermom2boys
Mon Aug 05, 2019 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 30485

Re: Newly diagnosed rectal cancer

Hi MeAndMine—welcome to a club of the most wonderful people for the most awful reason. I am four years out from my rectal cancer diagnosis and popped on and saw your message and thought of how I was in a similar situation exactly four years right this week. Everything you have from the dr who did yo...
by Soccermom2boys
Tue Jul 30, 2019 10:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can we please talk about colostomies/ileostomies?
Replies: 13
Views: 1842

Re: Can we please talk about colostomies/ileostomies?

Hi TinaFish! Welcome to ColonTalk. :D I have a permanent colostomy (since December 2015) so I will answer your questions as best as I can from my own personal experience and I am certain that others with ostomies will as well, give them a little time. #1: There are items called “wraps” that you can ...

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