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by Bob Bones
Thu Dec 15, 2016 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch test in USA, Miami?
Replies: 4
Views: 1201

Re: Lynch test in USA, Miami?

You won't need a sub total even if you have LS. As long as you stick to regular screening your chances of another cancer are on par with the general population. I don't know why they still insist on this outdated practice. Take my advice and Google around for more information and take a 2nd opinion ...
by Bob Bones
Sun Nov 20, 2016 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some genetic testing results back
Replies: 13
Views: 1876

Re: Some genetic testing results back

First test they do when looking for Lynch syndrome is to look for MSI in a tumour sample. If this is found then LS is suspected and then they begin further testing to work out the mutation which can take some time. MSI doesn't confirm LS by itself. A blood test is only available once the mutation ha...
by Bob Bones
Wed Nov 02, 2016 6:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Should I really test for Lynch?
Replies: 6
Views: 1798

Re: Should I really test for Lynch?

You're probably aware that Lynch syndrome can strike someone out of the blue with no previous family history. It would be sensible to have it ruled out because if you are a carrier you won't be getting the screening you need. In LS a polyp can go from zero to cancer in under two years.
by Bob Bones
Thu Oct 27, 2016 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another Newbie here - Stage IIIC questions on treatment
Replies: 32
Views: 6447

Re: Another Newbie here - Stage IIIC questions on treatment

I was also Stage 3C. Next January I'll be 11 years post surgery
by Bob Bones
Thu Oct 27, 2016 8:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin Study starting
Replies: 23
Views: 6832

Re: Aspirin Study starting

I have Lynch syndrome and I'm on the CAPP3 (Cancer Prevention Program) Aspirin has been proven to help protect against cancer. The problem being what is the lowest effective dose hence the trial. It's a blind dose of either (mg) 600,300 or 100 once a day for two years then 100 for the next 3 years. ...
by Bob Bones
Wed Feb 17, 2016 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24 yrs. old with precancerous polyp.
Replies: 8
Views: 3236

Re: 24 yrs. old with precancerous polyp.

Do you have a family history of bowel or womb cancers at an early age? Even if you don't your polyp should be checked for MSI traits to rule out the Genetic condition called Lynch Syndrome since you are so young. It's possible to have Lynch Syndrome with no family history whatsoever I expect you'll ...
by Bob Bones
Wed Feb 17, 2016 9:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24 yrs. old with precancerous polyp.
Replies: 8
Views: 3236

Re: 24 yrs. old with precancerous polyp.

Do you have a family history of bowel or womb cancers at an early age? Even if you don't your polyp should be checked for MSI traits to rule out the Genetic condition called Lynch Syndrome since you are so young. It's possible to have Lynch Syndrome with no family history whatsoever
by Bob Bones
Thu Dec 24, 2015 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed aged 28
Replies: 23
Views: 3963

Re: Newly diagnosed aged 28

Have you looked into or been tested for Lynch Syndrome?
by Bob Bones
Mon Dec 14, 2015 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 808
Views: 345573

Re: For Stage III's: NED for how long now?

10 years post surgery this coming January
by Bob Bones
Fri Nov 27, 2015 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing/Lynch Syndrome
Replies: 12
Views: 2820

Re: Genetic Testing/Lynch Syndrome

Couldn't agree more with bathroom_tile_blues. While nobody would choose to have Lynch Syndrome it isn't an automatic death sentence, far from it. The important things are regular screening and being symptom aware. www.lynch-syndrome-uk.org
by Bob Bones
Fri Oct 16, 2015 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Serrated Polyposis
Replies: 9
Views: 2827

Re: Serrated Polyposis

serrated sessile polyp at a young age is a classic sign of a condition called Lynch Syndrome. If you have a family history of young onset bowel cancer and womb cancer then you need to explore this. You can find out more at www.lynch-syndrome-uk.org
by Bob Bones
Fri Sep 25, 2015 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic testing
Replies: 7
Views: 1058

Re: Genetic testing

It all depends on if LS has already been identified in your family. If it hasn't than tests can take up to a year while if it has a simple blood test will let you know within a matter of weeks.

Always ready to answer your questions about LS www.lynch-syndrome-uk.org
by Bob Bones
Wed Aug 26, 2015 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph Nodes Question
Replies: 11
Views: 1508

Re: Lymph Nodes Question

double post
by Bob Bones
Wed Aug 26, 2015 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph Nodes Question
Replies: 11
Views: 1508

Re: Lymph Nodes Question

11 positive out of 23 and NED for almost 10 years

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