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by KElizabeth
Wed Oct 11, 2017 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 3
Views: 260

Durvalumab and Cediranib Clinical trial - I'm in!

I've just started on the following trial:
https://clinicaltrials.gov/ct2/show/NCT02484404

I've done 4 weeks of Cediranib and have had one dose of Durvalumab and feel mostly normal so far. It's still to early to say because I'm still recovering from 22 months of Folfiri.
Fingers and toes crossed!
by KElizabeth
Wed Oct 11, 2017 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects or something else
Replies: 4
Views: 302

Re: Side effects or something else

Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else exp...
by KElizabeth
Sun Sep 10, 2017 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New scan on Keytruda. Need opinion.
Replies: 3
Views: 1414

Re: New scan on Keytruda. Need opinion.

I'm glad you are getting good results and are felling well!
by KElizabeth
Fri Sep 01, 2017 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to this board and colon cancer
Replies: 11
Views: 1165

Re: New to this board and colon cancer

I just wanted to say welcome to the club. I don't remember how I felt after surgery, it's all just a blur. It turned out okay. Hopefully it is forgettable for you too.
by KElizabeth
Fri Sep 01, 2017 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 1828

Re: ANY Pros/Cons Vitamin D3 ?

I've been taking 10,000 IU a day for 2 years. I feel great and have had no problems from it. It's hard to know if it really helps, but it makes me more optimistic.
by KElizabeth
Sat Aug 19, 2017 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 2529

Re: BeansMama - I'm still kicking (butt that is)

Glad you're ok and glad your pal Larry is loosing some weight.
by KElizabeth
Sat Aug 19, 2017 7:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 15
Views: 1639

Re: O/T...Post Your Pics Here

I still haven't figured out how to post pictures on here but I haven't many impressive veggies. I remember Brown Badger showing us the most impressive Brussels sprouts I've ever seen. He had a way with the spouts! He gave me instructions and I am grateful.
What an inspiration he was!
by KElizabeth
Fri Aug 11, 2017 12:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help understanding statistics and studies
Replies: 4
Views: 657

Re: Help understanding statistics and studies

I believe it is either from the diagnosis or it's 1 year more than if you had done nothing. I could be way off. Either way the statistics don't help. They are very often wrong and they are not worth too much attention. A positive attitude and calmness go a long way to help. Best wishes on your journ...
by KElizabeth
Thu Aug 10, 2017 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan experiences?
Replies: 11
Views: 895

Re: Irinotecan experiences?

Hi KElizabeth, Thanks for the info, I've never heard of sandostatin. I just picked up a bottle of Lomotil at the pharmacy and will see how that works. I am also taking a break next week and resuming Irino + Cetux on the 21st. Did the diarrhea continue for the entire 2 years of treatment? I would de...
by KElizabeth
Sun Aug 06, 2017 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan experiences?
Replies: 11
Views: 895

Re: Irinotecan experiences?

I did irinotecan for almost two years and the best help for diarhea was a once monthly injection of sandostatin. It works on hormones that somehow affects tour bowels. Limotil also was helpful in combination with Imodium to keep things quite for a few hours at a time. Really it's just part of the fu...
by KElizabeth
Sun Jul 30, 2017 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reoccurrence
Replies: 1
Views: 623

Re: Reoccurrence

In my experience they don't restage after reoccurance. It's just metastatic CRC at that point. I would avoid trying to check statistics as they are not too accurate and they don't really help anything. I wish you and your mother the best. I know how stressful these next few weeks can be. Take care. KE
by KElizabeth
Sun Jul 30, 2017 11:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy
Replies: 5
Views: 689

Re: Colonoscopy

I don't think you should worry but instead keep your appointments for follow-up colonoscopy and stay aware for symptoms. Don't write off symptoms that you know ate not normal. Polyps are not good news in any form, and that's why regular screening is needed. You had quite a few and you will need to m...
by KElizabeth
Mon Jul 24, 2017 8:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting chemo today
Replies: 8
Views: 2524

Re: Starting chemo today

My infusion went well. The nurse complimented me on how well I did. My visit with the oncologist did not go so well. The tumor board has concluded that the strange cells found in my ovary are precursor ovarian cancer cells. I will be seeing a GYN oncologist in the future, but right now we are conce...
by KElizabeth
Sat Jul 08, 2017 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatigue Advice
Replies: 17
Views: 2534

Re: Fatigue Advice

I've been battling an abcess that won't heal also. When it gets funky the fatigue is incredible. The only other time in my life when I've been so tired was when I was infected with a drug resistant hospital bug after childbirth. I can tell now within hours if the abcess is filling up. I never sleep ...
by KElizabeth
Tue Jul 04, 2017 10:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy while in treatment?
Replies: 5
Views: 974

Re: Colonoscopy while in treatment?

Is Dr an appointment for a colonoscopy with my GI. She called my oncologists for more information and cancelled it. She called be and told me that she would not scope while I was on chemo. That it was too risky and pointless because she wouldn't remove anything during treatment anyway. I guess it's ...

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