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by KElizabeth
Thu May 10, 2018 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED, 4.5 years after lung recurrence
Replies: 10
Views: 900

Re: Still NED, 4.5 years after lung recurrence

Wonderful! Thanks for keeping us inspired.
by KElizabeth
Thu May 10, 2018 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda+Oxaliplatin questions
Replies: 8
Views: 585

Re: Xeloda+Oxaliplatin questions

I've never heard of that. I wonder his reasoning. I could see that it does give you some time to heal from surgery, but Im not sure. I don't think it's a bad Idea to do some Oxaliplatin to kill anything that may still be kicking around. I believe at least 6 rounds in the adjuvant setting is proven b...
by KElizabeth
Mon May 07, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member checking in
Replies: 4
Views: 602

Re: New member checking in

It's wonderful chemo is working for you!
I hope your second surgery comes soon.
Go kick some Butt!
Thanks for joining us.
by KElizabeth
Sun Apr 15, 2018 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New with Questions
Replies: 6
Views: 1288

Re: New with Questions

I'm glad to read you scheduled your colonoscopy because it really is the best way to see all of what could be going on. Many tests lije ultrasounds just don't answer all the questions so you end up with test after test. Your symptoms are definitely concerning and I am sorry you are going through thi...
by KElizabeth
Sat Apr 07, 2018 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years war
Replies: 20
Views: 5143

Re: 8 years war

RP,
Congratulations to you and your wife. I've leaned on your words more than a few times and appreciate your continued efforts to keep us educated on your methods.
I may message you with some questions about folic acid and PSK.
Thank you for your contribution to the group.
by KElizabeth
Sat Feb 17, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy identified Cancer - What questions should I prepare for the doctor
Replies: 8
Views: 1264

Re: Colonoscopy identified Cancer - What questions should I prepare for the doctor

I strongly suggest finding a board certified colorectal surgeon to do the resection as you will have less chance of complications later. This is what they do all the time. I wish I had. I didn't even know they existed when I had my resection. They just know how to do the procedure so much better fro...
by KElizabeth
Sun Jan 28, 2018 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Train wreck!
Replies: 12
Views: 1499

Re: Train wreck!

Sometimes we have to put the work into ourselves and let the other stuff slide for a bit. You'll feel better soon, but right now you need to allow yourself to grieve and process all you've been through.
We care about you. Hugs.
by KElizabeth
Thu Jan 18, 2018 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 39
Views: 5650

Re: Tribute to my dear friend Anne - aka BeansMama

We'll miss you Anne but we can find solace in knowing how profoundly beautiful your next adventure is going to be. Safe travels friend.

May your joys be deep as the ocean
Your troubles as light as its foam
And may you find sweet peace my friend
Wherever you may roam

~ unknown
by KElizabeth
Sun Jan 14, 2018 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Afraid I have colon cancer
Replies: 10
Views: 1488

Re: Afraid I have colon cancer

Meowmeowgirl wrote:Did any of you experience a drop in your body temp? I don't know if that's normal or not but my temp is always around 96.1-97.9 past few days.

Yes. That happens to me. When I have bowl irritation I sometimes get a low temp like 96.5. I usually run low though. By normal temp is 97.6.
by KElizabeth
Wed Jan 10, 2018 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Afraid I have colon cancer
Replies: 10
Views: 1488

Re: Afraid I have colon cancer

You might ask to get on the wait list for any cancellations that may come up for your GI doc before your scheduled appointment. You sound like you need help now and not in one month. Call them and tell them you can't wait a month because you're sick now. Call your general practitioner if you can't g...
by KElizabeth
Mon Dec 11, 2017 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2754

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Hi KElizabeth, Sorry to know the clinical trial did not work for you. Last week I had a conversion with my Onc. In his opinion, Roche's immunotherapy for mCRC is a good candidate for a clinical trial. Please see Roche's Investor Update dated May 18, 2017. It states that if RO6958688 is combined wit...
by KElizabeth
Mon Dec 11, 2017 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2754

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Do you know your KRAS mutation? Yes. I have KRAS mutation as well as TP53 and APC. I think that you're the first person that I've run into here with multiple mutations and these are in multiple genes as well. TP53 and APC are supposed to regulate cell growth and prevent tumors. I hope that your doc...
by KElizabeth
Mon Dec 04, 2017 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2754

Re: Durvalumab and Cediranib Clinical trial - I'm in!

NHMike wrote:Do you know your KRAS mutation?

Yes. I have KRAS mutation as well as TP53 and APC.
by KElizabeth
Thu Nov 30, 2017 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2754

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Scan results are in and I've had significat disease progression. I'm out of the trial.
Time for plan B.
The doctors at NIH think Hard chemo is needed for awhile. We're considering some trials and maybe we'll start with a few desensitization treatments of Oxaliplatin while we look for other options.
by KElizabeth
Wed Nov 22, 2017 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 2754

Re: Durvalumab and Cediranib Clinical trial - I'm in!

boswind wrote:KElizabeth,

Have you had a CT SCAN since you started the clinical trial?

I am looking for clinical trials. It is worthwhile to get more info abou this one.

Thanks,

I scan next werk for the first time. I'll post here whenI get results.

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