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by KElizabeth
Mon Dec 11, 2017 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Hi KElizabeth, Sorry to know the clinical trial did not work for you. Last week I had a conversion with my Onc. In his opinion, Roche's immunotherapy for mCRC is a good candidate for a clinical trial. Please see Roche's Investor Update dated May 18, 2017. It states that if RO6958688 is combined wit...
by KElizabeth
Mon Dec 11, 2017 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Do you know your KRAS mutation? Yes. I have KRAS mutation as well as TP53 and APC. I think that you're the first person that I've run into here with multiple mutations and these are in multiple genes as well. TP53 and APC are supposed to regulate cell growth and prevent tumors. I hope that your doc...
by KElizabeth
Mon Dec 04, 2017 11:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

NHMike wrote:Do you know your KRAS mutation?

Yes. I have KRAS mutation as well as TP53 and APC.
by KElizabeth
Thu Nov 30, 2017 11:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

Scan results are in and I've had significat disease progression. I'm out of the trial.
Time for plan B.
The doctors at NIH think Hard chemo is needed for awhile. We're considering some trials and maybe we'll start with a few desensitization treatments of Oxaliplatin while we look for other options.
by KElizabeth
Wed Nov 22, 2017 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Re: Durvalumab and Cediranib Clinical trial - I'm in!

boswind wrote:KElizabeth,

Have you had a CT SCAN since you started the clinical trial?

I am looking for clinical trials. It is worthwhile to get more info abou this one.

Thanks,

I scan next werk for the first time. I'll post here whenI get results.
by KElizabeth
Wed Nov 22, 2017 12:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very worried - would like advice
Replies: 7
Views: 616

Re: Very worried - would like advice

Your husband needs a colonoscopy. Funny thing about colon cancer is that you can have bleeding from other things and cancer at the same time, and be misdiagnosed because of it. I had bleeding on and off for 6 years. I was told I just had hemroids and IBS. I was put off for two years when I could hav...
by KElizabeth
Wed Nov 22, 2017 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T The 4 Kinds Of Health Chatroom Users (Article)
Replies: 9
Views: 357

Re: O/T The 4 Kinds Of Health Chatroom Users (Article)

I'm not a participant of the survey but I think our group is unlike any other. I have tried to join a group for Meniers disease and TNA, but both were non funtional. Also, I despise surveys. I am the jerk who chooses the middle answer for every question just to be difficult. I am always annoyed they...
by KElizabeth
Mon Nov 20, 2017 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No confirming diagnosis
Replies: 9
Views: 393

Re: No confirming diagnosis

Maybe a liquid biopsy would be better. I ammot sure the cost but its less invasive and would likely ave a better observable sample.
by KElizabeth
Wed Oct 11, 2017 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Durvalumab and Cediranib Clinical trial - I'm in!
Replies: 21
Views: 1172

Durvalumab and Cediranib Clinical trial - I'm in!

I've just started on the following trial:
https://clinicaltrials.gov/ct2/show/NCT02484404

I've done 4 weeks of Cediranib and have had one dose of Durvalumab and feel mostly normal so far. It's still to early to say because I'm still recovering from 22 months of Folfiri.
Fingers and toes crossed!
by KElizabeth
Wed Oct 11, 2017 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effects or something else
Replies: 4
Views: 467

Re: Side effects or something else

Hi everyone. My mom has stage 4 colon cancer with mets to liver and possible omental involvement. She had her second cycle of folfiri and erbitux. She's in severe pain. Abdominal pain and also generalized body aches and bone pains. Shes very lethargic. And says her heart is sinking. Anyone else exp...
by KElizabeth
Sun Sep 10, 2017 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New scan on Keytruda. Need opinion.
Replies: 3
Views: 1543

Re: New scan on Keytruda. Need opinion.

I'm glad you are getting good results and are felling well!
by KElizabeth
Fri Sep 01, 2017 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to this board and colon cancer
Replies: 11
Views: 1273

Re: New to this board and colon cancer

I just wanted to say welcome to the club. I don't remember how I felt after surgery, it's all just a blur. It turned out okay. Hopefully it is forgettable for you too.
by KElizabeth
Fri Sep 01, 2017 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY Pros/Cons Vitamin D3 ?
Replies: 19
Views: 2003

Re: ANY Pros/Cons Vitamin D3 ?

I've been taking 10,000 IU a day for 2 years. I feel great and have had no problems from it. It's hard to know if it really helps, but it makes me more optimistic.
by KElizabeth
Sat Aug 19, 2017 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama - I'm still kicking (butt that is)
Replies: 20
Views: 2756

Re: BeansMama - I'm still kicking (butt that is)

Glad you're ok and glad your pal Larry is loosing some weight.

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