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by dudette
Thu Mar 02, 2017 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for experience - Liver caving in
Replies: 7
Views: 1865

Re: Looking for experience - Liver caving in

Thanks so much for sharing, Maggie Nell and Ana. And of course Maia for our email conversations. Ana, reading about your experience was extremely helpful. I'm actually looking at a hospice place tomorrow. I was already told that the permanent sedation that I wish for won't be happening but maybe the...
by dudette
Wed Mar 01, 2017 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for experience - Liver caving in
Replies: 7
Views: 1865

Looking for experience - Liver caving in

Besides being completely yellow from jaundice, I am so tired these days and have no energy whatsoever. Even typing this message is a major effort. I just wanted to ask about experience when you know that the liver is not going to recover. When do I know that this is the end? Unfortunately, there is ...
by dudette
Sat Jan 07, 2017 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Some good news for a change
Replies: 15
Views: 2251

Re: Some good news for a change

Keep on delivering the good news! Congrats.
by dudette
Tue Jan 03, 2017 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for chemo for lifers...
Replies: 31
Views: 3567

Re: Question for chemo for lifers...

You are one tough cookie, Beans. Folfoxiri (Folfirinox?) is harsh stuff - I only lasted 4 rounds. Stanfordmum has a point. Maybe now is a good time to switch to immunotherapy. Your body is taking a real beating with your current chemo cocktail, and the catch 22 is that if you keep on pushing you mig...
by dudette
Mon Jan 02, 2017 2:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looks like it's cryoablation for me - UPDATE
Replies: 24
Views: 3061

Re: Looks like it's cryoablation for me

Great news to start a new year with. Your radiologist sounds like a gem.

Good luck with cryoablation. Keep us posted!
by dudette
Fri Dec 30, 2016 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible trial for me?
Replies: 11
Views: 1311

Re: Possible trial for me?

Good stuff! Good luck and keep us posted.
by dudette
Fri Dec 30, 2016 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nice surprise! No more chemo!
Replies: 13
Views: 1620

Re: Nice surprise! No more chemo!

Whohoo! High five to you. Congratulations.
by dudette
Fri Dec 30, 2016 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cetuximab sucks balls (the big ones)
Replies: 22
Views: 2843

Re: Cetuximab sucks balls (the big ones)

Update on my Cetuximab saga. Went to see my oncologist yesterday. I didn't even have to be the squeaky wheel to get help - the doctor was pretty shocked when she saw me, kept apologising and said that she had never seen a reaction that bad. So she sent me over to see a dermatologist. Got some cortis...
by dudette
Wed Dec 28, 2016 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Qigong and Traditional Chinese Medicine to prevent cancer recurrence
Replies: 9
Views: 1310

Re: Qigong and Traditional Chinese Medicine to prevent cancer recurrence

Every time I visit this board I learn something new and valuable. Amazing.

Thanks everyone for sharing your experiences.
by dudette
Wed Dec 28, 2016 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cetuximab sucks balls (the big ones)
Replies: 22
Views: 2843

Re: Cetuximab sucks balls (the big ones)

Thanks for sharing your "funny" stories. Just what I needed today because "the face" got even worse. Woke up with puffy eyes (the left one doesn't open properly), somehow my nose doubled in size and yellow crusty stuff all over my face - and a 6 hour train ride home ahead of me. ...
by dudette
Tue Dec 27, 2016 1:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cetuximab sucks balls (the big ones)
Replies: 22
Views: 2843

Re: Cetuximab sucks balls (the big ones)

Thanks for the recommendations and kind thoughts. I really appreciate being part of this community (although I'd prefer not having to be a part of it ... but that's a different story and not optional).
by dudette
Mon Dec 26, 2016 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cetuximab sucks balls (the big ones)
Replies: 22
Views: 2843

Cetuximab sucks balls (the big ones)

Just need to get this off my chest. Not only do I look like a burn victim but my face hurts like hell and my nail beds started bleeding. I've been sucking up the aesthetic modifications caused by various treatments without too much complaining but the side-effects of Cetuximab are pushing me over th...
by dudette
Fri Dec 23, 2016 3:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver failure...confused
Replies: 6
Views: 1319

Re: Liver failure...confused

Shoot. Sorry to hear that your mum's having liver issues. But I agree with plastikos A lot of people undergoing therapy for cancer have abnormal liver function tests When I re-started chemo in September I had a couple of "liver failure" symptoms - which I didn't tell my oncologist about be...
by dudette
Wed Dec 21, 2016 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4 year stage IV cancerversary
Replies: 58
Views: 5921

Re: 4 year stage IV cancerversary

I wish I could tell you all how the odds were beaten Just out of curiosity, Bev G.: did you have an infection during/after your treatment? I have read of a few cases of remarkable recoveries that had infections and fever before they had complete remissions (those stories were backed up by doctors/o...
by dudette
Wed Dec 21, 2016 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fatigue /can't sleep
Replies: 21
Views: 2464

Re: Fatigue /can't sleep

If you go for AbbyDoo's herbal recommendation make sure to get the Indica strain. Here's a nice and short overview of Indica vs. Sativa. http://www.leafscience.com/2014/06/19/indica-vs-sativa-understanding-differences/ Unfortunately I can't use this natural remedy at the moment. It's 4am and sleep i...

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