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by AnonSurvivor
Mon Feb 05, 2018 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly unnecessary open liver surgery
Replies: 54
Views: 4332

Re: Possibly unnecessary open liver surgery

Was this a Dr. Ryan / Dr. Berger (aka the "two Daves") production? Those guys (+ Dr. Hochster at Yale (now at Rutgers)) cured me.

AnonSurvivor
by AnonSurvivor
Fri Jan 05, 2018 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 27
Views: 3197

Re: Fasting During Chemo

After about six cycles of Folfox, I began fasting 48 hours before each infusion solely to avoid bowel movements for as long as possible after infusion. Breaking my nose was more comfortable.
by AnonSurvivor
Thu Dec 21, 2017 12:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 3750

Re: CT Scan Just came in Liver Met (one)

You may begin to taste a little 5FU in the food you eat during the 46 hour pump time. I, too, hit the coconut water hard, but eventually I started to taste 5FU in it -- even days after the pump came out. It took about two years after chemo ended until I could drink it again.
by AnonSurvivor
Wed Dec 20, 2017 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 3750

Re: CT Scan Just came in Liver Met (one)

Some one mentioned chest hair above, and I want to advise those among us with chest hair that the chemo infusion is likely to involve some serious tape around the port. I always did a pre-infusion shave of 3-4" inch radius around the port and profited by it.
by AnonSurvivor
Sun Dec 17, 2017 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 26
Views: 3277

Re: Just found out I have cancer

Had surgery two days ago, planned to do resection. Unfortnately, they found several seeds/mets in peritoneum, so they sewed me up and I start chemo soon. So I am stage IV signet ring adenocarcinoma. I am so lost and hopeless. This cant be happening. It is not fair. My wife doesnt deserve to see me ...
by AnonSurvivor
Sun Dec 17, 2017 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Just came in Liver Met (one)
Replies: 62
Views: 3750

Re: CT Scan Just came in Liver Met (one)

Anyone do the 2day on 12 day off regimen of folfox/oxalaplatin with pump for 3 months, 6 treatments? Is the chemo tough when given like this? Also installation of the port, is that scary? I did 12 cycles with the pump + Oxali + Avastin and 8 more without the Oxali NOV 2012 - AUG 2013. Neither the p...
by AnonSurvivor
Sun Dec 17, 2017 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 185
Views: 12934

Re: any peeps with BRAF mutation on here?

I was also BRAF V600E and stage IV. I had a right hepatectomy and cholecystectomy in October 2012. Then 12 cycles of FOLFOX/Avastin followed by 8 more of just Florouracil and Avastin. The cancer never returned after surgery. More detail in http://coloncancersupport.colonclub.com/viewtopic.php?f=1&am...
by AnonSurvivor
Sun Dec 17, 2017 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Suvivor Celebrates Third Anniversary of Surgery
Replies: 17
Views: 2854

Re: Stage IV Suvivor Celebrates Third Anniversary of Surgery

Following up here. I just had another clear CT scan, so that makes it five (5!) years and two months of NED since surgery. I should also mention that I have been lifting free weights regularly for the last 14 months, and I expect to attempt a 300 lb bench press (I weigh about 225) later this week af...
by AnonSurvivor
Tue Oct 17, 2017 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Suvivor Celebrates Third Anniversary of Surgery
Replies: 17
Views: 2854

Re: Stage IV Suvivor Celebrates Third Anniversary of Surgery

Just an update here: I just celebrated my fifth anniversary of NED.

My situation was ugly, but here I am. If I can do it, so can you.

Advice -- above all, stay positive and resolute. Never give up.

Best regards.

A.S.
by AnonSurvivor
Sat Nov 07, 2015 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Needle biopsy spreads cancer?
Replies: 15
Views: 1290

Re: Needle biopsy spreads cancer?

Has your Mom had a PET scan meatie? The onc's office called and said that a PET scan will pretty much gave the save indications as the ct scan. So, a pet scan will not be done. This seems inconsistent with my experience at Mass General with a possible met on my liver. They PET scanned instead of bi...
by AnonSurvivor
Mon Nov 02, 2015 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hot lava poo
Replies: 10
Views: 1355

Re: hot lava poo

On the positive side, look forward to things getting back to normal after chemo. In the meantime, though, it's not fun. The suggestions above are good. I used to fast for 2-3 days before chemo, which seemed to be the most effective way of dealing with this particular side effect.
by AnonSurvivor
Mon Nov 02, 2015 8:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin or no Avastin?
Replies: 11
Views: 1144

Re: Avastin or no Avastin?

A few thoughts: 1. Avastin is VERY expensive, at least it was in 2013, when I was taking it. As I recall, it was $20,000 per cycle. 2. I strongly suspect that Avastin aggravates certain undesirable side effects of Fluorouracil,in particular painful bowel movements. 3. At diagnosis I had a single liv...
by AnonSurvivor
Sat Oct 24, 2015 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Breast cancer chemo vs Colon cancer chemo
Replies: 8
Views: 1016

Re: Breast cancer chemo vs Colon cancer chemo

I understand (and have observed) that two common chemo drugs for breast cancer -- adriamycin (aka "red death") and taxol -- are significantly tougher to bear for most than Folfox, though the oxaliplatin did start to wear a bit after 9 or 10 cycles.
by AnonSurvivor
Fri Oct 23, 2015 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does everyone's CEA go up during chemo
Replies: 15
Views: 1688

Re: Does everyone's CEA go up during chemo

My CEA doubled from 6.65 to 13.8 over six months of FolFox + avastin after surgery which included the removal of half of my liver. CEA dropped back to the 6s. I was NED the entire time, though, and have been for three years since surgery. 4-5 months after I stopped chemo, CEA spiked to 17 for a mon...
by AnonSurvivor
Thu Oct 22, 2015 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does everyone's CEA go up during chemo
Replies: 15
Views: 1688

Re: Does everyone's CEA go up during chemo

My CEA doubled from 6.65 to 13.8 over six months of FolFox + avastin after surgery which included the removal of half of my liver. CEA dropped back to the 6s. I was NED the entire time, though, and have been for three years since surgery. 4-5 months after I stopped chemo, CEA spiked to 17 for a mont...

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