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by Pyro
Tue Nov 26, 2019 5:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 29
Views: 1670

Re: I'm getting worried

I was a pilot, and there’s is something fishy going on in regards to aircrew and cancer. People inside and outside the VA are aware of it, I’d probably still do it.
by Pyro
Sun Nov 24, 2019 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 29
Views: 1670

Re: I'm getting worried

It could be longer then 2 to 3 days if I have ilieus? Basically if my bowels are slow to start. I found out my VA primary had sent request for consult with 2nd surgeon so it looks like I'm on the right path and to let him know if I don't here from the community Care team in a week who make final de...
by Pyro
Mon Nov 04, 2019 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 626

Re: 3 month scan ? What to expect. (Rectal)

Marie25, We hope for good results for your husband. I also have never heard of FOLFOX first. Surgery seems to be the standard. My follow-up was colonoscopy. The PET scan I had was a year after my surgery and treatments. I did it first, if they want the tumor to shrink before cutting it out they do ...
by Pyro
Sun Nov 03, 2019 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 27
Views: 4519

Re: Screw Cancer, Hospice is Here

Hawaii was great, didn’t want to leave. I had to get a catheter before we left, I had no pressure to pee! I’m also fighting a blockage again, I think. The nurses seem to think I have “disease progression” in my nether regions causing these problems, I hope not, a blockage would be a major event at t...
by Pyro
Wed Oct 23, 2019 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung Cryoablation
Replies: 7
Views: 342

Re: Lung Cryoablation

Everyone is different but what I can tell you is they popped one of my lungs doing the procedure. If this happens you cannot fly on an airplane for 14 days afterward, it made us have to drive from Houston to Tucson. Just be ready if you fly to treatment.
by Pyro
Wed Oct 23, 2019 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency HIPEC, possible?
Replies: 7
Views: 736

Re: Emergency HIPEC, possible?

In the setting of locally advanced CRC which has spread to a small/medium part of the peritoneum but nowhere else in the body and is causing local small bowel issues, partial blockage. Are there options for HIPEC in this setting considering there are no other metastases. Can emergency HIPECs be arr...
by Pyro
Mon Oct 21, 2019 11:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 142
Views: 19041

Re: Take me away to that special place - Picture Thread

AmyG wrote:Was there a pig and everything?


Head and all!
by Pyro
Thu Oct 17, 2019 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of surgery in need of wisdom...
Replies: 24
Views: 2403

Re: Scared of surgery in need of wisdom...

The good lord has seen to it that I’ve forgotten most of the worst parts of my surgeries and recovery, like no memory at all. My wife counts this as a blessing, I think she might be correct. As far as the jungle gym, I used to be one as well but now I’m a bit too fragile, too many things on my body ...
by Pyro
Thu Oct 17, 2019 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 65
Views: 5747

Re: Help with bowels

Lactulose, wish I would have known about it in my teens.
by Pyro
Thu Oct 17, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 142
Views: 19041

Re: Take me away to that special place - Picture Thread

From my room, the flight wiped me out and I’m sporting a cathedar now due to urinary retention. I’ll get this figured out and have a fun trip. Disney on Oahu.

Image
image hosting
by Pyro
Sat Sep 28, 2019 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 27
Views: 4519

Re: Screw Cancer, Hospice is Here

Here’s where we are staying! We’re going to Pearl Harbor, doing a helicopter tour and spending a lot of time on the beach. I’ll see if I can send pictures along the way.

https://www.disneyaulani.com/
by Pyro
Mon Sep 23, 2019 5:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 630
Views: 93915

Re: If you want prayer stop in here!

SilverWedding wrote:
Pyro wrote:[]

How did it go?



Dear Pyro - I just prayed that this transition for you is miraculously long in a way that defies expectations.


Thank you. Good luck! I hated my colostomy for a good 8 months, my wife emptied it for a long time, I just couldn’t. It got better, maybe I’m just immature.
by Pyro
Sun Sep 22, 2019 8:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 18339

Re: Quick intro -- diagnosed Friday

Counterpoint and transparency, it isn’t like the above posters for everyone. I even got an allergic reaction to erbitux after about 20 treatments that sucked really bad. My body never got used to it and it was worse every time, with the occasional easy treatment. Everyone reacts different, take care...
by Pyro
Fri Sep 20, 2019 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 630
Views: 93915

Re: If you want prayer stop in here!

My husband’s surgery is 9/19/19. Wow. That looks odd. Prayer request that he is strong through it and that it works wonderfully, and that I don’t have any more breakdowns. I am scared he will freak out about the seeing the ostomy. I pray it’s very manageable and that he feels better. I pray I can h...

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