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by Pyro
Sat Apr 20, 2019 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 12
Views: 413

Re: Dexamethasone

Does he need 12 mg DEX ?????? Have that conversation with the docs after the first round. Doctor mindset = " I would rather PREVENT bad side effects for my patients ... THAN making THEM have to deal with it later. " Patient mindset = " I want what I NEED ... BUTT if it ain't working ...
by Pyro
Thu Apr 18, 2019 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21582

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Cynthia, If I might add, I think it is amazing kindness and compassion that you reach out to members and educate them about this. Even I spoke with my onc about your posting. I am low mutation unfortunately, but many are not. Thank you BUT....my oncologist said that if they had tested my original t...
by Pyro
Wed Apr 17, 2019 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Berberine
Replies: 10
Views: 546

Re: Berberine

My intentions were pure, I rewrote the post a couple of times, erasing it every time I thought it would be taken incorrectly. I did not know that company had been around that many years. My sister just got ripped off by an online vitamin company, so I brought my knowledge here.
by Pyro
Wed Apr 17, 2019 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21582

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Pyro: It maybe on the downswing.....Mine did that a few times....it started to go up then stayed the same then went down. We thought that maybe it had continued to go up a bit then was coming down and we caught it on the downswing. Next cycle will be telling. (Maybe you could ask your oncologist if...
by Pyro
Wed Apr 17, 2019 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21582

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Thank you for the encouragement, it makes sense but I’m no scientist. My oncologist told me he was surprised, expecting a large jump in CEA, Awesome.
by Pyro
Tue Apr 16, 2019 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Floating Stool - bowel question
Replies: 10
Views: 573

Re: Floating Stool - bowel question

Maybe it's the water...maybe it's the cleaning product you use (or a mixture) that has an alchemical effect on the water in your toilet water, making it like a little 'Dead Sea' where everything floats..... "If you eliminate the impossible, whatever remains, however improbable, must be the tru...
by Pyro
Mon Apr 15, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21582

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Well, it was 30. Didn’t expect that, went ahead with treatment. Thanks for thinking of me!
by Pyro
Mon Apr 15, 2019 7:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 21
Views: 1270

Re: Adjuvant immunotherapy

FindTheBestHelp wrote:
Pyro wrote:Anyone get Keytruda on Medicare?


Yes. If you have any question about it feel free to ask, either in thread or PM in case I don't catch the update in thread.


Thanks but Merck covered it.
by Pyro
Mon Apr 15, 2019 7:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 104
Views: 21582

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Well I get my 8 week blood test results today,probably followed my a scan. Cross your fingers, I don’t know what to do if it hasn’t worked.
by Pyro
Sun Apr 14, 2019 7:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 628

Re: Anyone Managing Stage IV with Avastin Only?

Huh, I did Xeloda pills plus Avastin for maintenance, it didn’t work for me BTW
by Pyro
Sun Apr 14, 2019 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Had Their Tumor Not Shrink Following Chemo/Radiation?
Replies: 2
Views: 275

Re: Anyone Had Their Tumor Not Shrink Following Chemo/Radiation?

I did 25 sessions of chemo/radiation in January of this year and then had a scan in mid March to check the results. The scan showed the same dimensions as before the treatment for the main tumor. My surgeon says that it shrunk but gave no details, although he did state that he no longer sees the ly...
by Pyro
Sun Apr 14, 2019 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1048

Re: What options after chemo no longer effective?

Is it funny to anyone else we are fighting to stay on chemo?
by Pyro
Sun Apr 14, 2019 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meds working
Replies: 5
Views: 355

Re: Meds working

Absolutely
by Pyro
Sun Apr 14, 2019 11:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Berberine
Replies: 10
Views: 546

Re: Berberine

mpbser wrote: Vitacost.com. I don't want fake or possibly dangerous products. :shock:
by Pyro
Sun Apr 14, 2019 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1053

Re: Stage 4 hope to share

Haha yes. I actually have used the screenname pyro70 for many years. “pyro” was the model of my favorite windsurfing sail, 7.0 m2 was the size. So I didn’t even know pyro was taken when I took it ;) Ever seen Top Gun? Turns out those funny names the fighter pilots all go by is a real thing, thus my...

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