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by mmblz
Tue Sep 18, 2018 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 974

Re: Stage 3 After Treatment Plans?

I had forgotten (blocked?) but looking back it looks like after chemo I started with CEA every 6 weeks the first four times (that was awful) then switched to 3 months... CT at 3 months, 6 months, then every 6 months from there. I think both CEA and CT were more frequent than standard - we pushed bec...
by mmblz
Thu Jul 26, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello new to site
Replies: 14
Views: 1734

Re: Hello new to site

Noticed a different post you made because our age, kids, and staging is so similar. I'm glad it sounds like you're doing well since treatment! Thanks. I am definitely blessed! I was lucky that treatment wasn’t too bad. I just got pushed back from 6 to 9 months scans which is nice. After my next it ...
by mmblz
Sat Jul 21, 2018 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello new to site
Replies: 14
Views: 1734

Re: Hello new to site

Noticed a different post you made because our age, kids, and staging is so similar. I'm glad it sounds like you're doing well since treatment!
by mmblz
Tue May 08, 2018 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5242

Re: Just diagnosed and it's EVERYWHERE...what to do now??

I am so sorry! This diagnosis of nothing, just living your normal life to stage 4 cancer is so shocking and scary. We live near MD Anderson but did not get very good answers and responses from them regarding the extent of DH's cancer. We sought out a specialist at Memorial Sloan Kettering in NYC an...
by mmblz
Sat Jan 20, 2018 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Early age onset colorectal cancer survey: Your responses needed!
Replies: 8
Views: 1382

Re: Early age onset colorectal cancer survey: Your responses needed!

Done.
Really, twitter for the online discussion? I'm not THAT young. Under 50 yes, not under 25 ROFL.
by mmblz
Thu Nov 09, 2017 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 737
Views: 237864

Re: For Stage III's: NED for how long now?

2+ years, just had a clean scan
by mmblz
Wed Oct 04, 2017 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rooms at MSK Hospital
Replies: 9
Views: 1484

Re: Rooms at MSK Hospital

We had a shared room for about one hour. Even worse than any noise was the shared bathroom. We were glad we opted for the paid upgrade when I started vomiting during prep for surgery... for nearby hotel we liked the affinia garden.
by mmblz
Thu May 04, 2017 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about ground glass opicity and update on CT
Replies: 7
Views: 2140

Re: Question about ground glass opicity and update on CT

jortego128 wrote:How do you suppose ground glass got into your lung?


It's a term to describe something that looks a certain way on a scan..
I had one on one scan after I had had a persistent cough. Then it was gone on next scan. Hoping it will still be gone on Tuesday ( next scan)
by mmblz
Thu May 04, 2017 10:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA levels - would this trend concern you?
Replies: 9
Views: 2380

Re: CEA levels - would this trend concern you?

Would I be worried? Heck yeah.
Should you be worried? likely not.

I had some readings that were in similar range, climbing. It was really hard until I got a lower reading. Next test Tuesday, will see if I'm due for more worry or not...
by mmblz
Thu May 04, 2017 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Much/any difference in side effects when oxaliplatin is removed
Replies: 18
Views: 2894

Re: Much/any difference in side effects when oxaliplatin is removed

I did this - dropped ox for the last 4. This was on recommendation from oncologist at MSKCC. My onc here agreed it was a reasonable approach, especially since I'm young, just to avoid possibility of permanent neuropathy as much as possible. I was comfortable with it especially considering they had o...
by mmblz
Thu May 04, 2017 10:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CURED!
Replies: 42
Views: 6273

Re: CURED!

Congrats!
by mmblz
Thu May 04, 2017 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beautiful Update ... Cured
Replies: 41
Views: 4857

Re: Beautiful Update ... Cured

Beautiful indeed, that is awesome!!

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