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by some808guy
Sun Jun 03, 2018 1:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please! Read me...
Replies: 23
Views: 1994

Re: Please! Read me...

My husband surgery for his port placement to the left side of his chest went well. Will he ever feel normal with it? He can't rest his arm on the window when driving for more than 10 minutes he's just sent my heart racing talking about pain in his (left) arm that had me thinking heart attack. Can s...
by some808guy
Sat Jun 02, 2018 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 4278

Re: Trying Keytruda Off-Label (MSS with a Twist)

UPDATE: I had one treatment and 3 weeks later my CEA has gone from 39.4 to 60.1....so I am thinking that Keytruda is not working for me. I had my second treatment but I don't expect it to help. (MY oncologist said it may be too early to make that determination...). Just wanted to update you all on ...
by some808guy
Mon May 07, 2018 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: As we come up on a year
Replies: 8
Views: 700

Re: As we come up on a year

Hello fellow caretakers and all cancer warriors It will be one year on Sunday that our precious daughter took her life. Her brother (age 26)died in 2014 of colon cancer when she was starting sophomore year in high school She never really was able to move past this devastating event that took her on...
by some808guy
Mon May 07, 2018 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice
Replies: 5
Views: 749

Re: CAR-T Immunotherapy Eliminates Metastatic Colorectal Cancer in Mice

Is this the same type of study as the one we read about at Stanford a few months ago? I seem to remember they starting recruiting for the trial but only for Leukemia patients? I believe this is different. The one at Stanford utilizes 2 immunotherapy drugs in combination. This one basically grows yo...
by some808guy
Sat May 05, 2018 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 41
Views: 4278

Re: Trying Keytruda Off-Label (MSS with a Twist)

NHMike wrote:Do you have a list of the mutations? I'm just curious here - I've never run into someone with that many.


Actually I have about 30 pages worth of mutations on mine from my report.
by some808guy
Tue Mar 27, 2018 2:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can someone who is stage 4 really end stage still benifit from Keytruda?
Replies: 6
Views: 942

Re: Can someone who is stage 4 really end stage still benifit from Keytruda?

Stage 4 here... I am on keytruda. it has worked wonders for me to say the least.
not cured yet... but the difference between past therapies and keytruda are night and day.
My opinion would be to push hard for it...
having MMR signature is lucky.
there are numerous success stories here about it.
by some808guy
Tue Mar 27, 2018 2:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: spots on liver on CT scan
Replies: 3
Views: 708

Re: spots on liver on CT scan

MRI is usually better for liver scans. It just sees liver tissue better than CT.
Possible that they just want to make sure of size and/or location
by some808guy
Thu Feb 08, 2018 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 colon Cancer Please read and help me as confused
Replies: 12
Views: 1318

Re: Stage 4 colon Cancer Please read and help me as confused

Do they know what the gene mutation is? That could be a clue as to what clinical trials might be available. I do not know how that stuff works in England but some of the trials in the US are based off of the mutation. I think it’s not a mutation gene which he said was a good sign in October 16 Is t...
by some808guy
Thu Feb 08, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 colon Cancer Please read and help me as confused
Replies: 12
Views: 1318

Re: Stage 4 colon Cancer Please read and help me as confused

If I am not mistaken, "locally advanced" for Rectal Cancer means it the cancer has penetrated the rectum muscles. It does not need to go to distant areas for it to be considered "locally advanced stage 4" I have taken Folfox with Avastin I also have taken Irinotecan as a single a...
by some808guy
Thu Oct 01, 2015 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still in shock I lost the love of my life...
Replies: 35
Views: 3539

Re: Still in shock I lost the love of my life...

I'm so sorry for your loss... I was researching information on here and saw that you were also in Hawaii... I am also in the same boat and wanted to connect with you and your DH... devastated to have missed...
Much Aloha to you and your family...

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